Welcome

[Guest guest]

I just wanted to say hello to a fellow RSD sufferer to the group and i hope

we can speak off list sometime as well if you like. I have RSD in my right

ankle foot and knee , am on 4200mg of neurontin a day, elavil 150mg at

bedtime and methadone 10mg 4x a day for medications and have had 2 nerve

blocks that havent helped me that much at all.

i just want to say I am sorry for all the pain you must have been and

continue to suffer with this condition and I am here for ya. take care and i

dont know how u do it with twin boys but you are to commended!!!! Bye hun-

[Guest guest]

Boy a lot of people here are from nc. Do you get better treatment in NC

in VA

[Guest guest]

I see Dr. Manzanero as a first consult (along with my mom who is also

thyroidless) on Thurs. I will let you guys know. I'm driving 3 hrs to

see him from the recommendations of Pat and Annie.

I've seen Dr. Sakina here in The Woodlands and several Endos who

were ALL not interested in helping me and instead managed to make me

feel worse.

De

>

> Hi ,

> Welcome to the group. I also live in Leander and have experienced

> doctors in our area that dont understand how to treat the thyroid.

> There is one in Austin that is on our site list that does understand.

> Dr Ron Manzanerro & his PA Debbie Windler. I havent been myself as

they

> dont accept insurance and you must file your own claim to be

> reimburst. Other than that I dont know of any in our area. I had

> thought I found one but turns out that Dr Ehrin Parkar doesnt

> understand it either. Also, had seen Dr Ron Mansolo and he wasnt even

> interested in testing more than TSH and my 4.5 was good to him. I

> understand your frustration. I am saving my nickels and dimes so that

I

> can see Debbie Windler PA.

> Pam

>