Guest guest Posted March 4, 1999 Report Share Posted March 4, 1999 Michele, Have they tested for Giardi lately. That can produce some of symptoms you have shared. It takes sometimes 3 tests or more to prove it's existence. Giardi is very common for PID patients. It's worth asking the question to Dr. It just requires a stool culture. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 1999 Report Share Posted March 4, 1999 Gail, What is Giardi? What are the symptoms so I can mention it to the immunologist? One other question. Have any children(mine being a boy) had any problems with blood in the urine??? My son at least once a week tells me or shows me he has passed blood while using the restroom. Docs took urine samples but nothing was found(no bacteria or yeast inf). He also complains constantly about (sorry....) " anal " itching. No hemmoroids were found but hem cream helps! Thanks, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 julie, Be well, thanks for all your insight. Hope to see you back again sometime. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 Dear Annette: Lorin is feeling better today, only a slight headache and stomach seemed more settled. I have wondered about the medications myself. Late in the spring when it started warming up, she started spitting up alot whenever she was outside. She lost most of her recess at school since the teachers would send her inside after she did. She started trying to hide when she felt queasy so the teachers wouldn't see her. She seems to catch every stomach virus that goes around and keeps it 3 times as long. Thank you so much for asking. I just feel like sometimes I am hitting my head against a wall. thanks again, and Lorin At 07:00 AM 11/15/1999 -0700, you wrote: > > >Dear : Hope your daughter is feeling better and the lab work shows >what is the problem going on. Could one of her medications be giving her a >stomachache or has she been on antibiotics for a long time prophalactically? > take care and I hope things are better for you, >regards, >annette and alissa > > >> >>Reply-To: PedPIDonelist >>To: PedPIDonelist >>Subject: RE: (no subject) >>Date: Sun, 14 Nov 1999 16:53:04 -0500 >> >>I am new to the list, but have been keeping up the best I can the last few >>days. We have had an earlier diagnosis of my daughter having a low IgA >>count. She has had 4 sets of tubes, tonsils and adnoids are already gone, >>she has ecezema, asthma, allergies and chronic sinus infections. Since >>this spring we have also had problems with headaches and stomach problems. >>They told me friday to start giving pepcid ac to her when she goes to bed. >>The doctor also ordered a ct scan friday (second this year) and the >>allergiest had 3 vials of blood drawn. I know I am no where near the >>complications that most of you are, but can anyone offer any suggestions to >>the headaches and stomach aches...thanks >> Hill >> >> >>At 12:48 PM 11/14/1999 -0700, you wrote: >> > >> > >> >Dear Ursula: When I worked for a gastroenterologist, his definition was >> >inflammatory was just worse off shoot of IBS, which could be triggered by >> >emotions or foods that set off the cramping episodes. Either way a BRAT >>diet >> >was the answer when things got out of hand along with a good >>antispasmodic >> >to control the cramping,he also used fiber to control the either >>excessive >> >diaherrea or constipation going on. Hope that helps it kind of a >>simplistic >> >way of looking at it, >> >regards, >> >annette and alissa >> > >> > >> >> >> >>Reply-To: PedPIDonelist >> >>To: <PedPIDonelist> >> >>Subject: RE: (no subject) >> >>Date: Sat, 13 Nov 1999 22:22:03 -0500 >> >> >> >>Debbie - I'm operating completely under assumptions here but I guess the >> >>only way to judge severity would be to take xrays and look at any >>breakdown >> >>in joint fibers or muscle tissue. I as her mom go by what she keeps >>from >> >>using by choice or what she gripes about the most on any given day. >>Lately >> >>it's been her ankles and feet. The only thing we've ever seen swell or >> >>have >> >>the redness/fever is her fingers and ankles. We've thought lately of >> >>getting a strip thermometer and laying it across the joints to see if it >> >>would register any fever. May or may not pan out but we're grasping at >> >>straws until the workup is completed. Dr. Harville has gone to Arkansas >>to >> >>head up a BMT center. It was very nice having him work with this since >>he >> >>was also a ped rheumatologist but now it falls to our ped. The current >> >>immuno (Dean Firschein) agrees that PID's are predisposed to autoimmune >> >>problems but hasn't said much else. I know our ped will involve him in >>the >> >>final chit chat about all the decisions. If they decide that JRA is the >> >>problem then I'm sure the local rheumy (ped/adult guy) will be >>consulted. >> >>The ped has talked to us about how the usual med used for inflammation >> >>(Naproxen) is not a good one for her because it causes GI problems and >>she >> >>has a colorful GI history. So for now she gets Advil every 6 hrs. I'm >> >>hoping the aqua therapy starting this week helps (even though its meant >>to >> >>treat something completely different). >> >> >> >>Now, question from me. To Debbie or anyone.. What's the difference >> >>(besides positive pathology results) symptom-wise between Inflammatory >> >>Bowel >> >>and Irritable Bowel? My scopes always come back negative for Crohns and >> >>Celiac but I'm on 4 different meds (Librax, Doxepin, Sal-tropine, >>Kuzyme) >> >>for Irritable Bowel. Last GI appointment (Tuesday) I had finally gained >>a >> >>pound (107 now). Just curious. >> >> >> >>Ursula - & Macey (4 yr old w/CVID) mom >> >> >> >> >> >> >> >>------------------------------------------------------------------------ >> >>This forum is open to parents and caregivers of children diagnosed with >>a >> >>Primary Immune Deficiency. Opinions or medical advice stated here are >>the >> >>sole responsibility of the poster and should not be taken as >>professional >> >>advice. >> >><< text3.html >> >> > >> >>This forum is open to parents and caregivers of children diagnosed with >>a >>Primary Immune Deficiency. Opinions or medical advice stated here are the >>sole responsibility of the poster and should not be taken as professional >>advice. >> > >> >> >>------------------------------------------------------------------------ >>This forum is open to parents and caregivers of children diagnosed with a >>Primary Immune Deficiency. Opinions or medical advice stated here are the >>sole responsibility of the poster and should not be taken as professional >>advice. >><< text3.html >> > >>This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 Hi All, I invite you to attend a showing of Food As Medicine, Jerry Brunetti's Cancer, Nutrition, and Healing, A personal Odyssey video. We are watching it at 2:30 Sat. Feb 28 at the warehouse. We are also sampling Jerry's super-energy and healing breakfast smoothy recipe on that day. It is showing right after shopping ends for the day, so come early to shop and bring a friend who is new to Trad Foods with you! You might want to bring something to take notes on, the video is full of information. If you'd like to notify me that you'll be attending that would be good, so I can plan on food quantities. But its okay to just show up. Thanks, Hope to see you on the 28th. Amy Storbakken Kraut, Kombucha, Essiac etc maker Quote Link to comment Share on other sites More sharing options...
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