Guest guest Posted November 28, 1998 Report Share Posted November 28, 1998 Alison, welcome to our fine little group..... the best on the web for us lymies..... I am now collecting ssd " for lyme disease and lyme related disabilities..... it took me 2 years to get and yes I also have mental manifestations due to lyme along with nuero and physical troubles..... I just started to receive money in sptember....however it was retro back to July 96.... it seemed like it would never come but u must have faith.... If ssd was easy to get everyone would be collecting.....pile as much lyme information as u can on them and I found that by getting my congressman (a great guy) and his office involved that it helped to finally speed up the process...... they still owe me some money that they held back to pay my lawyer and I called the G-man again and it is being processed as we speak when my lawyer was told it could take up to a year...... get ur representation involved thetas what my experiences have been if I can be of any other help e mail me ...... this group has a wealth of knowledge like no other .....we have all walked the same mile in each other's shoe's god bless Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 1998 Report Share Posted November 28, 1998 In a message dated 11/28/1998 6:01:57 AM Eastern Standard Time, alison7@... writes: > Right now I am in the process of trying to get SSDI and after speaking > to someone from there on Wed., I got the impression that I am going to > get it but for psychiatric reasons as opposed to physical ones. I don't > really care why they give it to me but it makes me sad that they are so > ready to ignore all the horrible, debilitating effects of this disease > and grant me money because I am considered suicidal...this sort of gives > us all a pretty good impression of where this society is at when it > comes to suffering! > Hello Alison: I was finally able to get Social Security after fighting for it for four years!!! I had a jerky lawyer.....I had an ancient Judge who heard the opposite of everything I said at the hearing! But I fought it to the end...and (like Reid mentioned....) I got my Congressman involved....(Bless Him!!!!!) He (his assistant) wrote letters to SS and demanded they take a real...unbiased look at my file!!! Ended up I won....and now have a list of SEVEN AILMENTS that were disabilities!!!! (Of course...lyme is not specifically listed...but some of the symptoms it caused are!!) And...psychiatric depression of course is very important!!! (who wouldn't be depressed being sick and being rejected by social security all the time!!!!!!) Hang in there....truth will prevail!!! sincerely your friend, Fransea nj seashore Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 1998 Report Share Posted November 30, 1998 Thanks, Debbie. I was amazed when I saw the volume of stuff I received and all the warmth and friendship in this group. No matter how bitchy we Lymies can be, we still need a little love and I guess it takes one to know one!<G> Hugs, Alison -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 1998 Report Share Posted November 30, 1998 Hi, Val..believe me, joining was my pleasure. I noticed that Marta already sent along the website info with my sordid story so she saved me the trouble of doing so...all I can add is if you know ANYONE who is contemplating getting the vaccine, WARN THEM AWAY FROM IT!!!!!!!!! And...you feel better too!!! Hugs, Alison ValP74@... wrote: > From: ValP74@... > > Hi Alison, thank you for joining in. Your story seems extremely interesting. I > have never heard of any experiances with the Lyme vaccine. Do you know what > happened to you? Did they explain why the vaccine made you sicker? That is > just awful!!! Did you know you had Lyme disease prior to the vaccine? Please > share your story when you get a chance. Everyone on this list is wonderful and > very caring and helpful I am glad you have joined. FEEL BETTER!!! -Val (fellow > Lymie) > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 1998 Report Share Posted November 30, 1998 Dear Fransea, FOUR YEARS!!!!!How did you keep from totally cracking up? I have only been trying for 8 months and I already feel like I am losing my mind! Everyone keeps telling me to get a lwawyer but I can't see the point until they turn me down! My doctors assured me that I had 4 distinct syndromes that were automatic for getting Disability and not to worry....but of course I have to worry!!!! I can't pay the mortgage this month...that to me is something to worry about! Anyway, I was happy to read that yu finally got it. If they want to give it to me on a psychiatric...more power to them...I just think its sad! With all the things wrong with me, my psychosis is the least thing I am worried about! Nice meeting you! Alison SEAFRAN731@... wrote: > Hello Alison: > I was finally able to get Social Security after fighting for it > for four years!!! I had a jerky lawyer.....I had an ancient Judge > who heard the opposite of everything I said at the hearing! > But I fought it to the end...and (like Reid mentioned....) I got > my Congressman involved....(Bless Him!!!!!) He (his assistant) wrote > letters to SS and demanded they take a real...unbiased look at > my file!!! Ended up I won....and now have a list of SEVEN AILMENTS that were > disabilities!!!! (Of course...lyme is not > specifically listed...but some of the symptoms it caused are!!) > And...psychiatric depression of course is very important!!! > (who wouldn't be depressed being sick and being rejected by > social security all the time!!!!!!) > > Hang in there....truth will prevail!!! > sincerely your friend, > Fransea > nj seashore > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 1998 Report Share Posted November 30, 1998 Dear Reid, I have to ask you the same thing I asked Fransea...how did you keep from totally going over the edge while you waited?????? Truthfully, I was terrified to stop working and start this whole Disability thing because of the horror storied I had heard but I finally convinced myself it couldn't really be all this bad...I guess I was wrong!<G> MY job also refuses to pay me my pension-the pension board retired me on Oct. 21st but my employer, the NYC Board f Ed claims I am not all that sick...I pent my last year as a teacher in a motorized scooter, waiting in the rain for them to find the ramp and once I got inside, hooked up to an IV bag that was hanging from a window pole....there is NO WAY I am going back to that! I don't know how sick they think you have to be to be " sick enough " but this is " sick enough " for me!<G> It was nice meeting you-all of you! I like it here already-I feel more " normal " than I have for a long time! Hugs, Alison RMcmur3194@... wrote: > From: RMcmur3194@... > > Alison, > welcome to our fine little group..... the best on the web for us lymies..... > I am now collecting ssd " for lyme disease and lyme related disabilities..... > it took me 2 years to get and yes I also have mental manifestations due to > lyme along with nuero and physical troubles..... I just started to receive > money in sptember....however it was retro back to July 96.... it seemed like > it would never come but u must have faith.... If ssd was easy to get everyone > would be collecting.....pile as much lyme information as u can on them and I > found that by getting my congressman (a great guy) and his office involved > that it helped to finally speed up the process...... they still owe me some > money that they held back to pay my lawyer and I called the G-man again and it > is being processed as we speak when my lawyer was told it could take up to a > year...... get ur representation involved thetas what my experiences have been > if I can be of any other help e mail me ...... this group has a wealth of > knowledge like no other .....we have all walked the same mile in each other's > shoe's > god bless > Reid > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 1998 Report Share Posted December 1, 1998 Alison, Lymefighter on this list (Marleen) got her SSDI approved quickly as her attorney contacted the Congressman, who pushed it through. Marleen, if you are reading this can you give Alison some advice and encouragement??? Hugs, Marta > I can't pay the >mortgage this month...that to me is something to worry about! >Anyway, I was happy to read that you finally got it. If they want to give it to me >on a psychiatric...more power to them...I just think its sad! With all the things >wrong with me, my psychosis is the least thing I am worried about! >Nice meeting you! >Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 1998 Report Share Posted December 1, 1998 alison, GET YOUR CONGRESSMAN INVOLVED......TELL THEM THE WHOLE STORY....MORTGAGE AND EVERYTHING....I DID AND IT WORKED AFTER 2 YEARS OF FIGHTING THE SYSTEM.......THATS WHAT THEY ARE THERE FOR....DO IT NOW!!!!!!!!! REID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 1998 Report Share Posted December 1, 1998 ALISON, through this whole adventure i have come to realize that i need to relie on faith in a power greater than me..... i have turned to my own image of god and put my trust in him......his will shall prevail....it has not been easy buit it has helped.....i use to have a government job good money, great benefits, i also had a thriving side busioness.....made over 100k a year .....while waiting for ssd i made 8k in 1997 .....try surviving on that ......we did our needs were met not our wants.....but we survived .....i now get ssd and my pension from the state ......fight the bastards with a good lawyer....luckily my lawyer is lyme literate also.....he has been a god send..... ssd owes him (and me) almost 6kcombined they said it would take a year.....i called the congressman we will have checks in 2 weeks...... social security does not like pressure from politicians ...it upsets them.....awwwww....to bad....it is a crime that we have to feel bad and have money worries thanks to a system that is suppose to protect us....i was told since i was born in this country i wasn't entitled to food stamps.....that really pissed me of but i got over it ....i shall keep u in my prayers.....god bless Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 1998 Report Share Posted December 2, 1998 I JUST finished writing to my congresswoman, Marta...I guess we aare on the same wavelength!<G> I could understand these stalling tactics if they only had to pay you from when it was granted...but since SSDI is retroactive, and they already owe me several thousand dollars, this makes no sense to me other than the fact that our government proves once again to be totally sadistic! I guess their goal is to see us totally destitute and INSANE before they consent to throw us a lifesaver!!!!!! Be well, my friend! Alison -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 1998 Report Share Posted December 2, 1998 Thank you, Reid...for the prayers and the story. I guess I was spending too much time on the pity pot<G>... I did write to my congresswoman but she claims she isn't allowed to accept E-mails requesting assistance so I am going to hard copy it to her....rules, rules and more rules! But hey!!! If yu and so many others have soehow managed to survive while waiting...I guess I will too! When the bills pile up I get a bit antsy...but I'll survive! I've never paid a bill late in my life, I guess there is always a first time for everything! And if I skip Christmas this year, I am sure no one will hate us forEVER!!! Maybe for the moment...but they'll get over it! Thank you sincerely for the encouragement! Hugs, Alison -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 1998 Report Share Posted December 3, 1998 hi Alison, I'm sorry you are having such a hard time with SSD. I went through it too before winning last year. In the processof preparing my case I had the worst relapse of symptoms in all the years that I've been ill - and I still am suffering from the effects of it.. Their delaying tactic is in the hope that you will not have t he energy to keep pursuing the case , so the first couple of refusals are almost automatic. The trick is to just stick with it without getting yourself as crazy as I did. You will ultimately win when you get to your hearing. I know that everybody told me that at the time, and I couldn't believe it., but from all the stories I've heard since it does seem to be true that you will win by just sticking it out. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 1998 Report Share Posted December 4, 1998 Thanks for the encouragement, Ellen! I feel a little bit better about all this, my lawyer's office finally called for information so maybe at least my lawsuit against the vaccine people is going to start moving! I guess I should be thankful for little steps! I hope that now that yu have started getting your benefits, the ill-effects of this disgustiing process will start to reverse themselves. The honest truth is, only the sick would give up the fight...the malingerers have nothing to lose so the government's theory isn't going to work! Alison Ellen Lubarsky wrote: > From: ellenlu@... (Ellen Lubarsky) > > hi Alison, > > I'm sorry you are having such a hard time with SSD. I went through it > too before winning last year. In the processof preparing my case I had > the worst relapse of symptoms in all the years that I've been ill - and > I still am suffering from the effects of it.. Their delaying tactic is > in the hope that you will not have t he energy to keep pursuing the case > , so the first couple of refusals are almost automatic. The trick > is to just stick with it without getting yourself as crazy as I did. > You will ultimately win when you get to your hearing. I know that > everybody told me that at the time, and I couldn't believe it., but > from all the stories I've heard since it does seem to be true that you > will win by just sticking it out. > > Ellen > > ------------------------------------------------------------------------ > Help support ONElist, while generating interest in your product or > service. ONElist has a variety of advertising packages. Visit > /advert.html for more information. > ------------------------------------------------------------------------ > Please send privately messages unrelated to lyme. > /archives.cgi/ > /archives.cgi/Lyme-Docs > Email: -subscribeonelist > You may substitute " unsubscribe " , " digest " , or " normal " for > the word " subscribe " ( " normal " is the opposite of " digest " ) -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 1999 Report Share Posted November 3, 1999 Carol, BRAVO to you! I so enjoyed reading your story! Welcome to the list! You are an inspiration! Kerin Mom to Tyler, Trevan and -Mae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 Your plight touched me, my two children who had the most ultrasounds had baby teeth that decayed rapidly., My last child(of five children) had many ultrasounds, he now has " artifical teeth " . Has anyone noticed a difference in their children that were induced as to those that weren't, it would be an interesting discussion. Some of 5 children have varying degrees of vaccinations the last 2 none at all. So I can't take the approach of the vaccination route when talking about being induced. Theresa tmod@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 Hi Carol! Glad to see you on this list! I have heard that story before but it never fails to send chills up my spine. OT, but how is your little boy doing with the tooth decay deal? You were having a rough time with him last I heard. Toni Hi... > From: C8743@... > > I'm the sahm to 2 wild and woolies, and I homeschool - which had nothing to > do with my decision to NOT vaccinate. > > At one of my prenatals with my oldest, the doctor asked if we would do an > ultrasound, because I was most likely carrying twins. We asked about the > procedure, and he said that actually, the majority of his severe ear problem > children come from mothers who have done ultra-sound, And his nurse said she > had boiled water with it, so we opted out. And started questioning other > procedures. > > Where I was working, a woman came up to me, introduced herself as a midwife, > and offered help if I needed it. Knowing my husband probably wouldn't be > helpful, I spoke with her weekly, sometimes more. > > We gave the dr. a birth plan. I asked about everything I had listed, I > wanted to understand what it was. We got to vitamin K, and he said, the > problem is, the people who need it don't get it. We didn't need it. And I > was given information about the side effects, etc. So I crossed that off our > list, and a whole host of other things. > > Well, the day came, I was due the 15th of Jan, and went into labor on the > 14th. When we got to the hospital I was 2.5 mins, and screaming - I had back > labor the whole time. My dd finally was born on the 16th. They whisked her > away from me, saying she was premature (not). Even though I had a birth plan, > they disregarded it, saying that they had the right to treat as she was at > risk. Her APGAR was 8, but that wasn't good enough. They gave her a vitamin > K shot, and pku. Then she became jaundiced. The nurses kept saying to me > " all babies get that. It'll go away " . But the wouldn't let me keep her next > to the window in the sun, and they kept re-bundling her. Until they finally, > at my screaming requests, tested her and her bilirubin was 20. So they > whisked her away again to put her under lights. I called the midwife, who > put me in touch with a woman who has been head of a vaccine info group for > over 10 years. I received more information about the damage they were doing. > I did my best to keep up, and finally they *let* me take her home. They > gave her a Hep B shot (her bili was 15) before we left, and within 12 hours > we were back at emergency - her bili had shot up to 23. She was hospitalized > for a week and I spent the entire week arguing with interns and nurses - > until a doctor showed up who said " this mother knows best. Do what SHE > wants " . It took a long time for everything to settle down. > > Up to this point I had not made up my mind about shots. I had listened to > everyone else " you'll kill your daughter " , " it's the law " - and they hadn't > done much better, so I decided no more. At my first well baby visit, they > snuck in the shots. I was appalled. At the next visit, I flat out refused > them. They locked me in the room, while they called Child Protection - and > found out I was well within my rights. > > I work best when I have support, the problem is, I usually don't have any, so > I get scared into things that I much regret later. With my son they were > able to scare me into an ultra-sound -- and now I have to do therapy with him > daily, he can't talk, he has major tooth decay (he's 2), and his immune > system was almost non-existent, not to mention the ear problems. I have no > recourse, because the only studies they have done on ultrasounds, are > inconclusive. IN other words, they say, well this stuff happens, but we > can't be sure it's the procedure. > > My kids contracted the measles, mumps and chickenpox from vaccinated chldren. > Glad it's over, but I would have rather dealt with the wild versions. Ours > were so much more severe. Anyway, that's about it. I run into people all > the time who don't know that vaccines can kill. They don't know what's in > them, and they have no idea that they don't work. But it's the law. That's > the mentality. The government and the doctor said do it, so we must. And > we'll believe it's okay because of that. shame. > > Carol > Mom to Stormy & Wyatt > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 Carol, Would love to get ahold of any info you have on the side affects of Vit K and Ultrasound. And from anyone else who has any... Please recommend sources. -mommamotorbiker@... --- C8743@... wrote: > I'm the sahm to 2 wild and woolies, and I homeschool > - which had nothing to > do with my decision to NOT vaccinate. > > At one of my prenatals with my oldest, the doctor > asked if we would do an > ultrasound, because I was most likely carrying > twins. We asked about the > procedure, and he said that actually, the majority > of his severe ear problem > children come from mothers who have done > ultra-sound, And his nurse said she > had boiled water with it, so we opted out. And > started questioning other > procedures. > > Where I was working, a woman came up to me, > introduced herself as a midwife, > and offered help if I needed it. Knowing my husband > probably wouldn't be > helpful, I spoke with her weekly, sometimes more. > > We gave the dr. a birth plan. I asked about > everything I had listed, I > wanted to understand what it was. We got to vitamin > K, and he said, the > problem is, the people who need it don't get it. We > didn't need it. And I > was given information about the side effects, etc. > So I crossed that off our > list, and a whole host of other things. > > Well, the day came, I was due the 15th of Jan, and > went into labor on the > 14th. When we got to the hospital I was 2.5 mins, > and screaming - I had back > labor the whole time. My dd finally was born on the > 16th. They whisked her > away from me, saying she was premature (not). Even > though I had a birth plan, > they disregarded it, saying that they had the right > to treat as she was at > risk. Her APGAR was 8, but that wasn't good enough. > They gave her a vitamin > K shot, and pku. Then she became jaundiced. The > nurses kept saying to me > " all babies get that. It'll go away " . But the > wouldn't let me keep her next > to the window in the sun, and they kept re-bundling > her. Until they finally, > at my screaming requests, tested her and her > bilirubin was 20. So they > whisked her away again to put her under lights. I > called the midwife, who > put me in touch with a woman who has been head of a > vaccine info group for > over 10 years. I received more information about > the damage they were doing. > I did my best to keep up, and finally they *let* me > take her home. They > gave her a Hep B shot (her bili was 15) before we > left, and within 12 hours > we were back at emergency - her bili had shot up to > 23. She was hospitalized > for a week and I spent the entire week arguing with > interns and nurses - > until a doctor showed up who said " this mother knows > best. Do what SHE > wants " . It took a long time for everything to > settle down. > > Up to this point I had not made up my mind about > shots. I had listened to > everyone else " you'll kill your daughter " , " it's the > law " - and they hadn't > done much better, so I decided no more. At my first > well baby visit, they > snuck in the shots. I was appalled. At the next > visit, I flat out refused > them. They locked me in the room, while they called > Child Protection - and > found out I was well within my rights. > > I work best when I have support, the problem is, I > usually don't have any, so > I get scared into things that I much regret later. > With my son they were > able to scare me into an ultra-sound -- and now I > have to do therapy with him > daily, he can't talk, he has major tooth decay (he's > 2), and his immune > system was almost non-existent, not to mention the > ear problems. I have no > recourse, because the only studies they have done on > ultrasounds, are > inconclusive. IN other words, they say, well this > stuff happens, but we > can't be sure it's the procedure. > > My kids contracted the measles, mumps and chickenpox > from vaccinated chldren. > Glad it's over, but I would have rather dealt with > the wild versions. Ours > were so much more severe. Anyway, that's about it. > I run into people all > the time who don't know that vaccines can kill. > They don't know what's in > them, and they have no idea that they don't work. > But it's the law. That's > the mentality. The government and the doctor said > do it, so we must. And > we'll believe it's okay because of that. shame. > > Carol > Mom to Stormy & Wyatt > <HR> <html> > ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 Hi, toni - geesh I guess I told everybody -- HAH. Not really, I think I posted what I could on mol. He's doing great. The dentist has completed work on 9 of the 10 teeth, with no novacaine. They did 5 in one sitting! He (the dentist) also does body work on him, which helps tremendously, and his immune system is finally up to par - hasn't even had a cold since 8/1. His speech is starting to come along too. He said " mama booboo " when he fell 2 days ago, I cried. Of course, that's all he's said in front of us. We suspect he talks to himself alot, but once he knows we're listening, he stops - so he is trying to verbalize. Also, the last 2 baby teeth came in - and they're perfect, so the homeopathics must have worked. Hopefully we're over the worst, and his adult teeth will be in decent shape. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 > Made soup. Sounds like a good soup. I have been into just celery, onion & carrots.... simple soup but I like it... especially with a wedge of fat free Moroccan wheat bread... that is lunch today. In defense of his response to emails I did email once and did receive reply from his workers. This was well over a year ago... and I was paying his fees. I wish I would have saved a copy of the letter because I was so lost... not suicidal... but defiantly hurting bad. It said it would take a month or so for a response.... the bitterness came because I was so desperate for direction... physically & emotionally. That is when I got to the boards. Things got better. > Sometimes I do think he is in it > for the money. BUT hey isnt that what makes the world go around. Well he has to be in it for the money, that is how he makes his living. I didn't mean that but, doctors, counselors... they are in it for the money but the genuinely care (at least the good ones) ... I used to think really cared but now I have to question that and wonder if it is an act.... and yes using your money is part of the " act " it is good business and is budgeted as any expense would be. > Like does > FRIENDS stars really need million an episode. NO... but I used to watch it & loved it... I want to be wrong about ... but .... Maybe I am just in a very cynical mood! I might change tomorrow. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi there! You know, I don't worry about whether he is in it for the money or 'cause he likes getting his body oiled up and into those cute little outfits....the important part is, the programme works. I don't mind saving up to pay for tapes etc, that will help me get stronger, just think of all the money I spent getting morbidly obese! And there is no way he would be able to answer all his mail, but one of the things I do appreciate about , is that he gets up there and sweats right along with me, and other people on his tapes are as heavy as I am. Now, pass the soup please.....yes, I did my exercises, now give me some soup, or I'll start to prattle on.....and on..... Eleanora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 Christie, Welcome and congratulations on your new baby! I have only one child and will like another baby if someone else took care of him/her I don't really know how people with more than one child manage... It's not that my y is troublesome, but lets face it, he is a child. Well, as you go on you will figure out that Hana is mostly like any other baby. Enjoy! Martha C. Vance mom to y 5 (DS) AZ mailto:marthavance@... http:/www.geocities.com/Heartland/Valley/7373 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 Hi Christie, and way to go Hana! I love it when a baby can prove a doctor wrong! My son is 10 and is still proving doctors wrong today. I have invited my doc to join this group...you'll love it. I do a lot of lurking mostly but I learn a lot from all of the wonderfully smart and expereinced moms and dads (and aunts too!) here. Lots of luck and love with the little angel, I bet she is precious! , mom to Isaiah (10ds) and Isabel (16 months) flowermomi <FlowerMomi@...> wrote: My name is Christie and I have just had my fourth daughter who has DS. She also has AV Canal Defect. I have just started with homebased visits with a PT, ST and teacher. She's 6 weeks old and doing well. They are amazed with her muscle tone and head control. She actually rolled over from tummy to back 4 times last week...once being in front of the team evaluating her. I had mentioned only minutes prior that she had done this earlier in the week and they told me to consider it a fluke. They changed their minds after they witnessed it. lol. Her ped has said she's doing as well as a baby without ds at this age. So, I'm optomistic that we won't have alot of hurdles ahead of us. I hope to get to know you all and look forward to your advise and compassion. Take care, Christie *Momi* of Sara 9, Sabaa 6, Alia 5 and Hana 6 weeks (ds) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 A pleasure to meet you!!! We have very similar stories (except for the cat, the dogs and mom...) I would love to chat privately with you and see what type of reactions and experiences you've had with all the different supplements you've tried. Hope to hear from you! Lillian mcdermott@... [ ] Hi... I've actually been a member of this list for a long time. Just never posted and only lurked every once and a while. Guess I'll be hanging out a bit more. I'm " *Ann " from the gfcf diet board (or autism diet board, whatever you want to call it) For those who don't know me here's my stats... I'm a 36 year old mom to a three year old boy(will be four in June). He's is and will be my only child. He was diagnosed with mod to high functioning Autism back when he was two and a half years old. But was really showing the beginning symptoms of it around twenty months of age. He, my husband, and I live in Southern Califonia with our six cats and two dogs. And my mom just moved in with us this month too (fun, fun, fun) He's been gfcf since his second b-day. We've tried all sorts of suppliments. Right now we do EFA's from Childlife, CLO from Kirkmans (weakends off), probiotics from Kirkmans, Biocidin, Colloidal Silver, and Grapefruit Seed Extract (we alternate), glutathione lotion from Kirkmans (every other day), Epsom Salts (every night), and when we go out to eat he gets Peptizyde enzymes. He also gets a gfcf multivitamin (from Childlife)about once or twice a week. (any more times a week and he breaks out in a rash on his face) I've also used the Ease cd with my son and found it to be of value. He goes to an intergrated preschool five days a week. There he also gets OT and Speech Therapy. They do a mixture of discrete trial and floortime with him. Plus he uses PECS there. We stopped using PECS at home, because he's been talking more and more and I want to encourage that. I'd say if he were evaluated today he's be somewhere between PDD and ADD/ADHD (leaning more towards ADHD)And if he gets talking down he would definately be re-diagnosed ADHD Anyway..hi all..nice ot meet yah ) I probably won't post regularly, but I'll be around. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2002 Report Share Posted September 15, 2002 That is a good sign that you came out of the depression... I'm on Paxil for anxiety and it's helps a lot to where I can control it like I did before...you know normal anxiety..but over the years it got out of control and I didn't want to leave my house....So now the anxiety is controlled with Paxil but it wasn't touching the depression --~~Shelvira~~Shelvira2002@...My Outgoing mail was Scanned with Norton's Antivirus 2002 Hi... I'm currently taking Celexa but still have a number of SE's after 4 1/2 months. I also take buspar and if it wasn't for that there are one or two SE's I think would be unbearable. I'd like to "listen in" and learn, if that's ok. Maybe Lexapro will turn out to be a viable alternative for me.I have severe anxiety (was causing asthma like symptoms) and had mild depression. I say had, cause since the attacks were brought under control *finally*, I've come out of the depression.Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 Graham: At our hospital we try to get the patient to 90 degrees knee flexion before they leave the hospital in 1-2 weeks, and 75% are. Ask your therapist what the norm is there. You will still be able to get nearly full range of motion, but it will take LOTS of HARD work, and working through the pain! The longer you go after surgery, the harder it will be. Just don't give up, and don't depend on the Physical Therapist to do all the work, you must work on it at home, too. Also, don't get too impatient, it will come, just be persistent. Marilyn swansam100 wrote: Hello All.. As a new member I would just like to introduce myself.. My name is Graham and I am from Australia and I have just had a total replacement of my left knee.. It has been just on eight weeks since my surgery and I still have only about 85 degrees of bend and as a result I am having to still walk down steps one at a time.. The surgeon that did the operation seems somewhat reluctant to talk to me about it and it is kinda starting to worry me and I am wondering if the amount of bend I do have is the norm at this stage.. I am having physio and do my excercises regularly and it sure feels good to be able to walk again pain free but I am really concerned about the progress I am making.. The operation was done in a public country hospital and that to is a worry as the country hospitals here leave a lot to be desired.. I look forward to getting to know you all.. Take care.. Graham..... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.