Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 B., Regarding the procrit trial did the mention whether you have to pay an office visit each time you go to the office for th eprocrit (every three days?)? Also did they mention if it was a blind trial or not...is everyone going to receive the procrit or will some be palcebos? Hope all is going well with your move? Where in Texas are you? My sister in law is in Amarillo. Theresa > > > Are you participating i nthis trial? Have you started and if so do > > you notice any difference?--- > > I am signed up for the trial, but can't start it until I'm out of the house that we believe has been contributing to my ongoing illness. I'm hoping to move within a week. At that time, I've first got to verify that the new place is safe by going off the CSM for two weeks (after I've been there for 2 wks to allow residual toxins to get removed). So, my plan is to move into the new house with minimal stuff - all new (except for my kids and pets . Although, at this point, I'm debating whether I should move alone first and then gradually introduce kids and pets. The kids part, though, I think I have to do all at the same time, since they are both impacted by the toxins. We may end up with a tent in the backyard for them to do homework since their school books and backpacks have been in the old house. Fortunately, we live in Texas, so that's not quite as bad as it sounds. Also, it's been recommended that I stay on the CSM twice a day after that 2 week period since mold is so u > biqutious and I am so sensitive. > > If all goes well with the move, I should start the procrit in 3-5 weeks. > > B. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 My understanding is that it's not a blind trial. I am participating remotely (I apparently signed up early enough, as I have a friend that will have to travel to Pocomoke to participate). So, I plan on using my company nurse to do the injections. I would think if there was a charge for the injections it would be nominal since the nurse can do it . I'm planning on moving this weekend - I'll let you all know how it goes. I'm fortunate in that I can do things in stages - starting with new, bare bones stuff until I'm sure I'm not reacting. B. -------------- Original message -------------- From: " tcuddy1 " <tcuddy1@...> B., Regarding the procrit trial did the mention whether you have to pay an office visit each time you go to the office for th eprocrit (every three days?)? Also did they mention if it was a blind trial or not...is everyone going to receive the procrit or will some be palcebos? Hope all is going well with your move? Where in Texas are you? My sister in law is in Amarillo. Theresa > > > Are you participating i nthis trial? Have you started and if so do > > you notice any difference?--- > > I am signed up for the trial, but can't start it until I'm out of the house that we believe has been contributing to my ongoing illness. I'm hoping to move within a week. At that time, I've first got to verify that the new place is safe by going off the CSM for two weeks (after I've been there for 2 wks to allow residual toxins to get removed). So, my plan is to move into the new house with minimal stuff - all new (except for my kids and pets . Although, at this point, I'm debating whether I should move alone first and then gradually introduce kids and pets. The kids part, though, I think I have to do all at the same time, since they are both impacted by the toxins. We may end up with a tent in the backyard for them to do homework since their school books and backpacks have been in the old house. Fortunately, we live in Texas, so that's not quite as bad as it sounds. Also, it's been recommended that I stay on the CSM twice a day after that 2 week period since mold is so u > biqutious and I am so sensitive. > > If all goes well with the move, I should start the procrit in 3-5 weeks. > > B. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 " My understanding is that it's not a blind trial. I am participating remotely (I apparently signed up early enough, as I have a friend that will have to travel to Pocomoke to participate). So, I plan on using my company nurse to do the injections. I would think if there was a charge for the injections it would be nominal since the nurse can do it. " , could you share how you became a part of the trial? Did you contact Dr. Shoemaker's office or did they contact you? The reason I ask is that he had indicated to me that my family would be included, but possibly he changed his mind on that. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 That's good that it is not a blind trial. I was wondering how the participants are chosen and what variables they are using... Theresa > > " My understanding is that it's not a blind trial. I am participating > remotely (I apparently signed up early enough, as I have a friend that > will have to travel to Pocomoke to participate). So, I plan on using > my company nurse to do the injections. I would think if there was a > charge for the injections it would be nominal since the nurse can do > it. " > > , could you share how you became a part of the trial? Did you > contact Dr. Shoemaker's office or did they contact you? The reason I > ask is that he had indicated to me that my family would be included, > but possibly he changed his mind on that. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 > That's good that it is not a blind trial. I was wondering how the > participants are chosen and what variables they are using... The only variable I know for sure is that you need to have a C4A that is elevated. I'm sure also that there would be a minimum time required on the CSM and addressing other problems (such as MRSA nasal infection) before the procrit would be appropriate. I do have alot of the other things abnormal as well (VEGF, MSH, VIP etc.), so those may also be a factor. B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 Yes, me too Getting rid of those marcons was great > > > That's good that it is not a blind trial. I was wondering how the > > participants are chosen and what variables they are using... > > The only variable I know for sure is that you need to have a C4A that is elevated. I'm sure also that there would be a minimum time required on the CSM and addressing other problems (such as MRSA nasal infection) before the procrit would be appropriate. I do have alot of the other things abnormal as well (VEGF, MSH, VIP etc.), so those may also be a factor. > > B. > > > > Quote Link to comment Share on other sites More sharing options...
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