A hello ,thats been a long time coming,

[Guest guest]

Hello everyone,

I've actually signed up for this group a very long time

ago but I just recently got back on my computer after a long ( over

a year) absence. My name is Jackie and I have RSD for over 18+ years

now. Like all of you I took the same medical roads and came to the

same dead ends. At this time it has made it's way just about

everywhere there is to go. I'm also being treated for

spinalstenosis so I don't get completely bored with the RSD, LOL. I

didn't think it was possible but thats quite painfull too. I thought

it was just the pain from the rsd so I didn't have it looked at for

a long time and so by the time I told the Dr. about the increased

pain in my lower spine it was pretty advanced and not much that can

be done other than surgery and I'm not ready for that so it's

increased amounts of meds and frequent tumbles.If I were smart I'd

be wearing elbow and knee pads but I did say if I were smart.

Well I don't want to ramble on to much but I can't sign

off till I say something about insomnia. I haven't slept in 2 years.

I'm serious! I consider 3 hours a good nights sleep. Theres also the

problem I have with terrible night sweats, Do any of you have this

problem? I swear I should loose 10 lbs. a night. Actually my Dr.

put me on a med for that LOL, how funny he can find a med for

anything lol. I don't see it doing anything though, just like all

the other meds. Well thanks for listening, I hope to hear from you

all soon. Take care and God bless.

Your Friend,

Jackie