Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 " Will I get to choose a forum name, or will my yahoo ID be my name? " Your Yahoo ID automatically gets listed in your posts. Youa re free to sign them however you'd like. Tom Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 Hi. My name is Matchinsky. I have Hep C, and genotype 1A and have gone through 2 treatments with PegIntron. Actually, call that 1 and ½. My insurance company stopped the second treatment before it was complete. Their argument has been that 72 weeks of treatment is " investigational and experimental. " My doctor's argument is that I've already relapsed after 48 weeks, twice, and anything less than 72 weeks would be futile. I am a quick responder, so there is hope. My wife's employer (where the insurance is from) is actually self-insured with an insurance company managing the program. They have seen fit to grant an exception to the policy and I will be starting 72 weeks of Infergen treatment next week http://www.infergen.com/3-About_Infergen/. I'm not sure how good that is; I seem to react strongly to interferon. Still, I'm not ready to give up. I have a Master's in psychology and teach part-time at the local community college. I've been playing with computers since 1985, and like using the web for information, though I try not to believe everything I read. The doctor is telling me that I will be needing a transplant, with or without successful treatment for the Hep C. (I also have fatty liver disease). Not sure if he was trying to scare me, but it did. It is getting worse, and though I only teach one class, it is a struggle. It was almost 20 years ago that I contracted Hep C. I was an IV cocaine user, but I've been clean and sober for 19 years now. I still work the 12 Steps, and have lots of support through meetings. I continue to look for support. I also have a 12 Step based HCV support group, but it is very inactive. http://groups.yahoo.com/group/HCVA m Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 Dear , Welcome to the group. I am sure you will be a great addition to our group. You will find that we are a friendly, and helpful group here. Love Janet wrote: Hi. My name is Matchinsky. I have Hep C, and genotype 1A andhave gone through 2 treatments with PegIntron. Actually, call that 1and ½. My insurance company stopped the second treatment before itwas complete. Their argument has been that 72 weeks of treatment is"investigational and experimental." My doctor's argument is that I'vealready relapsed after 48 weeks, twice, and anything less than 72weeks would be futile. I am a quick responder, so there is hope.My wife's employer (where the insurance is from) is actuallyself-insured with an insurance company managing the program. Theyhave seen fit to grant an exception to the policy and I will bestarting 72 weeks of Infergen treatment next weekhttp://www.infergen.com/3-About_Infergen/. I'm not sure how good thatis; I seem to react strongly to interferon. Still, I'm not ready togive up.I have a Master's in psychology and teach part-time at the localcommunity college. I've been playing with computers since 1985, andlike using the web for information, though I try not to believeeverything I read. The doctor is telling me that I will be needing a transplant, with orwithout successful treatment for the Hep C. (I also have fatty liverdisease). Not sure if he was trying to scare me, but it did. It isgetting worse, and though I only teach one class, it is a struggle. It was almost 20 years ago that I contracted Hep C. I was an IVcocaine user, but I've been clean and sober for 19 years now. I stillwork the 12 Steps, and have lots of support through meetings. Icontinue to look for support. I also have a 12 Step based HCV supportgroup, but it is very inactive. http://groups.yahoo.com/group/HCVAm"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 Thanks Janet. Sorry it took so long to get back to you. I'm trying to keep up with the emails and work too. hehee... You made me feel better to know that maybe it is the meds and the whole situation that sets him off. Once he gets off the meds, hopefully, we'll see a much better environment at home...Hooty hooo... ) Take care, d... Re: [Hepatitis_C_ Central] New member , I am relating to your broken heart. My spouses and my son do not at this time have HepC, but I was the target for all their failings while drinking. I can sooo feel your pain. I do hope this treatment makes your husband see all the pain that has come from his illness and makes a go of sobriety. Alcoholism is a terrible waste of human dignity and happiness. I'm here also, if you need to vent or to cry on someone's shoulder. Sharon in NW Washington Life isn't about how to survive the storm, but about how to dance in the rain. , My husband is just finishing his 2nd treatment for Hep C. His genotype is 1A. During the first treatment, he didn't drink even one beer. But, once he got thru that 1st treatment and was non-detectible for 3 months, he started to drink beer again...not just one or two a night. It got to where he was drinking a 6-pk/night. When he went back for his checkup, the virus was back with a count of 60,000,000. (yes-60 million). We got him started on the 2nd treatment, and within 3 months, I was laid off from work as a Sr. Software Analyst where our insurance was. There was no way we could afford the treatment then. So, I looked up Roche Pharmaceuticals on the web. They have grants available to those who qualify. It couldn't hurt to check them out because they gave him a 12mo grant, which covered his 15mo treatment. (The first 3mo was covered by my insurance.) It's been a rough road for us this last 3 years. He throws fits of rage that last a short time. He threatens to leave me constantly after he gets thru this treatment during these rages. So, needless to say, I need support as well as anyone. But, we're near the end now...6 weeks to go. He has told us that he isn't going to drink beer any longer. It just isn't worth the chance. I hope the rage episodes go away also. My heart has been broken for the fact he's sick and then torn apart for the fact that I'm the target of his rage. Congratulations on your 19 years of soberity. That's a true accomplishment and shows you have a strong will. Maybe you can check out Roche for Pegasys treatment. It was a life-saver for him. Best Regards, Dianna Never miss a thing. Make Yahoo your homepage. "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Sharon, We actually tho't of doing that when I first got laid off...LOL... I have to say it freaked my husband out a little, but we were divorced for 7 years a long time ago and just celebrated our 8th anniversary. We're not perfect. I hope we make it to our 9th...But, one day at a time... ) Dianna Re: New member I divorced my husband to meet poverty guidelines for the first round of tx. We married again a year later and that was fun, but I got the help I needed at the time... Sharon in NW Washington Life isn't about how to survive the storm, but about how to dance in the rain. I did look into some funding options, but unfortunately, we make too much money. Even though I am only working 3 hours a week, but wife is a long-term nurse. That helps but also complicates matters. She knows what can go wrong, though she works in pediatrics. I¢m finally looking at cheese burgers like they were whiskey. Both would be slow suicide for someone with liver disease. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did better." ~Maya Angelou~ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Thanks Sharon. I used to play Bunko and the group disolved. He doesn't like for me to be away from him at all. So, I've found a few friends at work and we enjoy the day together, even tho we have to work. It does help. I'd just like to go out to eat again. I tried to get my son to go out with me, but he's too busy. I think I'll ask him and his girlfriend again. It's worth a try to get some peace and enjoyment. Thanks for the suggestion!!!Dianna Re: [Hepatitis_C_ Central] New member Thanks Sharon. At this time, he says that when this is over, he's not going to see me as someone who was there for him. He's been quite cruel about it. His brother also has Hep C (homemade tatoos years ago), and he adores his wife for hanging in there for him. My husband says he won't be like that. I hope it's just the disease and treatment talking. I hope he sees that I have sacrificed something over these years just for him. One good thing is that I'm immune to Hep C. It's unusual, but I thank God. I don't know what I would've done if we both had been down with it at the same time. I hope to chat with you again soon. Thanks for listening. Dianna Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 I understand why I stayed, but wish I'd found the strength to leave far earlier.Sharon in NW Washington Life isn't about how to survive the storm, but about how to dance in the rain.Im with you Sharon,,, after being married for years to a very very abusive fireman, I have reached the part of my life when I just do not understand WHY I STAYED for so long or why anyone would tolerate abusive,, SHARON CROSBY wrote: I'll be tuned!!! It's a dreadfully hard emotionally and mentally thing to go through, never mind the physical drain. It's good you are staying with him through treatment. I tend to climb up on a soapbox with these kind of issues, I've lived with them sooo long and they created a he!! of my life for over 40 years, with my mother and 2 husbands.. Hugs and good karma to you, Dianna Sharon in NW Washington Life isn't about how to survive the storm, but about how to dance in the rain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 I understand why I stayed, but wish I'd found the strength to leave far earlier.Sharon in NW Washington Life isn't about how to survive the storm, but about how to dance in the rain.Im with you Sharon,,, after being married for years to a very very abusive fireman, I have reached the part of my life when I just do not understand WHY I STAYED for so long or why anyone would tolerate abusive,, SHARON CROSBY wrote: I'll be tuned!!! It's a dreadfully hard emotionally and mentally thing to go through, never mind the physical drain. It's good you are staying with him through treatment. I tend to climb up on a soapbox with these kind of issues, I've lived with them sooo long and they created a he!! of my life for over 40 years, with my mother and 2 husbands.. Hugs and good karma to you, Dianna Sharon in NW Washington Life isn't about how to survive the storm, but about how to dance in the rain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 well the only reason I stayed is because I WAS very much in love with him,, but I wish I'd had the strength to leave much earlier because it might have made the difference in his stopping his abusive behavior,,SHARON CROSBY wrote: I understand why I stayed, but wish I'd found the strength to leave far earlier. Sharon in NW Washington Life isn't about how to survive the storm, but about how to dance in the rain. Im with you Sharon,,, after being married for years to a very very abusive fireman, I have reached the part of my life when I just do not understand WHY I STAYED for so long or why anyone would tolerate abusive,, SHARON CROSBY <csharonxoxomsn> wrote: I'll be tuned!!! It's a dreadfully hard emotionally and mentally thing to go through, never mind the physical drain. It's good you are staying with him through treatment. I tend to climb up on a soapbox with these kind of issues, I've lived with them sooo long and they created a he!! of my life for over 40 years, with my mother and 2 husbands.. Hugs and good karma to you, Dianna Sharon in NW Washington Life isn't about how to survive the storm, but about how to dance in the rain. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 I stayed because I had 4 children and no clue how to make a decent living. I was very afraid of the world back then. I still have huge abandonment issues, but no kids to feed and I now know I will survice somehow. I'm still a fearful thing in this big world, tho until I'm forced to face a situation and I always come out better. Funny how we delude ourselves. lolSharon in NW Washington Life isn't about how to survive the storm, but about how to dance in the rain. Re: Re: New memberwell the only reason I stayed is because I WAS very much in love with him,, but I wish I'd had the strength to leave much earlier because it might have made the difference in his stopping his abusive behavior,, Quote Link to comment Share on other sites More sharing options...
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