hot/cold

November 8, 2003

Hi,

For the question regarding items for hot and cold. Food was a great choice

for us. We used pizza, soup, and french toast. I would heat the food in the

microwave before trials. If your child is on the GFCF diet, the food may be a

little more difficult. We also used the food as a reinforcer. Washcloths and

towels worked too! (I would put the wet washcloth in the freezer and

microwave) My son loves to take baths so I always try to use bath water for

hot/cold.

Hope this helps.

Maureen

June 11, 2009

When was the last time you had his thyroid checked? I have hypothyroidism and

have trouble regulating my body temperature. I'm either too hot or too cold.

HTH,

Robyn

From: Jerri Gann <njgann@...>

Subject: Hot/Cold

" " < >

Date: Thursday, June 11, 2009, 9:57 AM

I hope someone knows the answer here. My younger son (who is no longer a

patient of Dr G) has not been feeling well for three weeks now. He has

not become real sick but he says he can't get a comfortable temp. he is

either too hot or too cold. He has not had a fever but sometimes feels

warm. I remember Dr G. talking once about this hot and cold thing and I

can't remember what he said. My younger son was with Dr G for a short

while. We caught him quick and did ABA and he is doing great. He is very

fragile though and when he doesn't feel well things fall apart rather

quickly. They noticed a huge difference at school and the teacher and

parents asked me what happened to him. He started the school year off

great and had troubles at the end. I took him to a Dr. who said he

thinks he is fighting off a virus, but this is going on for too long. He

never gets very sick but I know that can be a problem too. Anyway, any

input would be greatly appreciated. I don't know how we all can survive

the constant worry. My older son (now 12) is full on into puberty and

getting mean. He has always been a very loving, sweet child. His

allergies are driving him nuts and from your emails I'm wondering if

allegra could be a problem. Sometimes I think it's just puberty and he's

becoming more " normal " The one email about the 16 year old who is now

having tons of problems. I wondered if maybe it could be

puberty/hormones? Anyway, I think part of my sons anger is rebelling

against the constant worry I have. I try not to let him see it but I

think he feels it. Sorry for the long post here. I hardly ever have time

to respond. Thanks, Jerri

June 14, 2009

When my son was in a CFIDS state, his temperature sense was dysregulated. Room

temp bath water was hot, he was cold much of the time, but there was nothing

specific causing these. It eventually went away.

Once you've ruled out hormonal problems, I think you're probably dealing w/

other dysregulation. I can't remember what it's called, but it is common among

the CFIDS group and has a name. Is it HPA axis? The first thing you have

control over is the diet, and making sure it's clean during this time could

help.

This all started creeping up after he had stopped the protocol the first time.

Nine months after stopping antivirals, something just seemed a little " off " and

I was commenting on this to the pediatrician. Within 3 months after that, he

was really starting to show symptoms including fatigue. He was sick for about 8

months, then spiked a 106.9 degree fever, and improved drastically after that

for several months before starting to feel bad again. Once he regressed the

second time, I got him back on meds.

One thing you may be able to do is a trial round of antibiotics (I like Cefzil

when there isn't something well-defined because it doesn't set things off) and

see if 3-5 days into them you see a noticable improvement. We can have subtle

low grade infections that drag us down and don't ever really manifest

themselves, and this test often brings both of my kids out of whatever it is and

we never know what the problem was.

HTH-

________________________________

From: Jerri Gann <njgann@...>

< >

Sent: Thursday, June 11, 2009 11:57:19 AM