it was bound to happen

[Guest guest]

Well it was bound to happen. My curious little 4 yr old reminded us that

she stays in pain a good bit. Here's what happened. Most of today she has

complained of a bad neck pain. Actually it started last night. So we've

been giving Advil and reassuring her that it's just her joints working

overtime and lots of love. Today she received two doses of Advil about 6

hrs apart. Her last dose was at 4:30 p.m. Well around 8:30 tonight

comes running out of their bedroom and tell us that Macey is drinking the

bottle of Advil. Thankfully there was only half a bottle of Advil liquid

left. After reassurances from Poison Control and the ped on call (who

happens to be my SIL 's ped) telling us to give her Mylanta, we sat her down

to scold/question her. Basically what came out of her was that she liked

Advil because it made her feel better and that her neck was hurting and

Advil would make it all better. We strongly put across to her that we

realized she had been in pain all day but that mommy and daddy " gave " the

medicines and Macey does not " take " them (she's a very literal child, she

really thought it meant SHE could take them). We always call her into the

kitchen by saying " Macey, come take your medicine " . Now we will say " Macey,

come let mommy/daddy/grandma give you your medicine " . It sounds really

simplistic but that's her development level and once again we're reminded

that some things on her are at a 4 yr old level and some are still at a 2 yr

old level. I also feel really bad because she was having such an awful time

of the pain this afternoon that she couldn't even get out of bed (she had

put herself to bed around 3 p.m.). So around 4:30 I brought the bottle of

Advil into the bedroom to give a dose. She was so miserable that I put the

bottle on the dresser and crawled in beside her to comfort. We both fell

asleep. When I awoke I headed straight to start dinner and never remembered

to bring the Advil bottle back to the kitchen to be recapped.

I'm upset I left the bottle in the room.

I'm upset I didn't put the lid back on.

I'm upset she was in so much pain that she immediately sought medicine

instead of a comfort or a hug from me.

I'm upset that a week from now she will not have retained the lesson she was

taught tonight and it could happen again.

She is fast asleep now and except for the old nasty yeasty beasties raging

none the worse for ware.

Thanks for lending an ear.

Ursula - & Macey (4 yr old w/CVID) mom

[Guest guest]

Ursula,

Don't feel bad, for us it was Lysol cleaner. And, I still can't figure out

the reason Cassie would enjoy that taste (ugh!!)

I am glad that Macey did do well. Hope that you guys are on the road to

recovery.

Belinda Rose,

mom to Cassie, igg immunodefficient, asthma, chronic sinusitis

[Guest guest]

Ursula,

I think it probably happens at some point in most kids' lives that they

get into something they're not supposed to or take too much of something

they usually do (for my brother and I both it was the Flintstones

Vitamins that tasted like candy! Do they still even make those?...

seems like a recipe for disaster). Don't feel too badly... no permanent

harm done, and now everyone will know to keep the Advil out of reach.

You were just trying to comfort her. Glad Macey's okay, though, and

hope you all got a good night's (pain free!) sleep... if nothing else,

at least you know her neck won't hurt tonight.

Take care,

[Guest guest]

Ursula:

Sorry to hear about Macey, how about a trip to the chiropractor for the neck?

[Guest guest]

Ursula-

((((((HUGS)))))) you need some. The main thing to

think about is tha macy is ok. I know all about I

should have done.... I shoud have done...... Its over

with now and we learn from this. I don't know what to

say about macy's pain, except that we will pray for

her. She has been through soo much. Be thinking

about you and yr family. Here is another hug for both

you and Macy. (((((((hugs)))))).

=====

and

(congential neutropenia, hypogammaglobulinemia, chronic sinusitis and

leukopenia)

mom to Evan 6, 4 and Abby Rose 2

[Guest guest]

Hi Ursula,

Please don't beat yourself up!! Things like this happen to most of us, and

twice to me. My going on 9 year old drand pine sol exactly 5 years ago when

she was a month away from turning 4. She spent several hours in the ER

getting her stomach pumped (she drank about 5 ounces) and drinking charcoal.

Then spent the night in the hospital watching for complications. To this

day the people on duty that day can't tolerate the smell of lemon cleaners

or pine sol, and within a week had the hospital change cleaning formulas

because it reminded them of Shelbie. she too was looking for medicine to

help her tummy!! Then about 2 years ago my 3 1/2 year old decided to eat

tooth paste. I called poison control because I knew that high amounts of

floride can be poisonous and they told me to make her drink milk.

Apparently the milk makes the floride inactive (so don't drink milk after

brushing your teeth).

Anyway, I hope all is well now!!

;o)

[Guest guest]

They didn't have Flinstone vitamins when I was a kid, I ate a bottle of

orange flavored childrens asprin (fresh bottle) in the car while my mom went

into the 7-11 to get me ginger ale because I had the flu. Boy was I a

candidate for complications.

Kids will be kids!!!

Re: it was bound to happen

>

>

>Ursula,

>

>I think it probably happens at some point in most kids' lives that they

>get into something they're not supposed to or take too much of something

>they usually do (for my brother and I both it was the Flintstones

>Vitamins that tasted like candy! Do they still even make those?...

>seems like a recipe for disaster). Don't feel too badly... no permanent

>harm done, and now everyone will know to keep the Advil out of reach.

>You were just trying to comfort her. Glad Macey's okay, though, and

>hope you all got a good night's (pain free!) sleep... if nothing else,

>at least you know her neck won't hurt tonight.

>

>Take care,

>

>

>>This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

[Guest guest]

Dear Ursula, HOpe Macey is feeling better and do not beat yourself up for

what she got into. She is a very bright young lady and thought she could

probably help herself, and you would be surprised how much she will

remember, please feel better and get some rest if you can,

God Bless, and always in our prayers,

annette and alissa

>

>Reply-To: PedPIDonelist

>To: " PedPID - onelist " <PedPIDonelist>

>Subject: it was bound to happen

>Date: Sun, 24 Oct 1999 23:47:08 -0400

>

>Well it was bound to happen. My curious little 4 yr old reminded us that

>she stays in pain a good bit. Here's what happened. Most of today she has

>complained of a bad neck pain. Actually it started last night. So we've

>been giving Advil and reassuring her that it's just her joints working

>overtime and lots of love. Today she received two doses of Advil about 6

>hrs apart. Her last dose was at 4:30 p.m. Well around 8:30 tonight

>comes running out of their bedroom and tell us that Macey is drinking the

>bottle of Advil. Thankfully there was only half a bottle of Advil liquid

>left. After reassurances from Poison Control and the ped on call (who

>happens to be my SIL 's ped) telling us to give her Mylanta, we sat her

>down

>to scold/question her. Basically what came out of her was that she liked

>Advil because it made her feel better and that her neck was hurting and

>Advil would make it all better. We strongly put across to her that we

>realized she had been in pain all day but that mommy and daddy " gave " the

>medicines and Macey does not " take " them (she's a very literal child, she

>really thought it meant SHE could take them). We always call her into the

>kitchen by saying " Macey, come take your medicine " . Now we will say

> " Macey,

>come let mommy/daddy/grandma give you your medicine " . It sounds really

>simplistic but that's her development level and once again we're reminded

>that some things on her are at a 4 yr old level and some are still at a 2

>yr

>old level. I also feel really bad because she was having such an awful

>time

>of the pain this afternoon that she couldn't even get out of bed (she had

>put herself to bed around 3 p.m.). So around 4:30 I brought the bottle of

>Advil into the bedroom to give a dose. She was so miserable that I put the

>bottle on the dresser and crawled in beside her to comfort. We both fell

>asleep. When I awoke I headed straight to start dinner and never

>remembered

>to bring the Advil bottle back to the kitchen to be recapped.

>

>I'm upset I left the bottle in the room.

>I'm upset I didn't put the lid back on.

>I'm upset she was in so much pain that she immediately sought medicine

>instead of a comfort or a hug from me.

>I'm upset that a week from now she will not have retained the lesson she

>was

>taught tonight and it could happen again.

>

>She is fast asleep now and except for the old nasty yeasty beasties raging

>none the worse for ware.

>

>Thanks for lending an ear.

>

>Ursula - & Macey (4 yr old w/CVID) mom

>

>

>

>------------------------------------------------------------------------

>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

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