Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 Dear ,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving Daily Digest EN Group emails, and you may also visit the Erythema Nodosum Group Site :http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here.EN is rare among children, but not unheard, of and we have some members here. I think that the fact that Simon has so many allergies is a clue to why he has come down with EN. EN is a hypersensitivity reaction and if we can determine what specifically is causing this reaction we have hopes to getting the EN to go into remission. It's awful to watch a child you love suffer, and I hope we can help to find a way to let Simon get better. Welcome to our friendly Group!Love,Idiopathic EN 1968******** 'Friends Child Simon's Case History12/17/061. Your name and age: age:442. Your location: Ontario, Canada3. Your email address: bj@...4. Your Yahoo ID: bjames20075. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group.My best friend of over 25 years has a 7 year old son (as close as a nephew to me) who has just been diagnosed in July with EN, I wish to better understand it in an effort to support her and him in dealing with this.6. List any other health conditions.Severe allergies, food as well as environmental factors. At the age of 3 he had all of his upper baby teeth removed, at 7 the permanent teeth have not as yet surfaced...no formal Dx given.7. State what medications or treatments you take for EN, and their effectiveness:At present Simon is taking liquid multi-vitamins with an increased (200iu) of iron, in hopes of increasing his appetite. He also drinks 425 ml of 'Boost' per day to help increase his body mass, at the age of 7 (as of December 25 2006) he weighs 42.5 lbs, but in July his weight had decreased to 38 lbs.8. When did you first get erythema nodosum or PG?Simon's symptoms presented in July of 2006.9. How long have you had erythema nodosum or PG?EN- July 200610. Do you agree to treat all EN members with respect?Of course.11.Do you agree to post NO advertisements for any products or services?Yes12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.)I was researching EN and had gone through many sites on Google, I came across a site on 'skin conditions'. I read back a few pages on the message boards and came across a post referring those dealing with EN to this message board. I have since applied for membership to this group after registering with Yahoo. Quote Link to comment Share on other sites More sharing options...
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