Re: Msg for Lila/2nd EN Bout /Possible IBD?

December 31, 2006

Hi Lila,

Yes, the site is chock full of info., and we have only been around

since July of 2003.

Certainly EN is rare, but in my opinion not as rare as believed. Many

of us who have chronic idiopathic EN like me don't go to dr's for it

anymore so we aren't even counted. Actually there aren't good stats

for the numbers of us who have EN. The only thing I have ever seen

were studies counting the number of persons treated for EN in

hospitals, and we know those are in the minority.

Tests for IBD aren't usually done unless one has bowel/digestive

symptoms. It's unlikely any of the standard lab tests you had would

show a bowel problem. But putting 2 and 2 together, EN along with

digestive or bowel symptoms would indicate the clues to have a gastro

check out. The good news is that once the IBD is under control, the EN

" should " subside. I use quotes as sometimes it seems subjectively that

one has IBD in control , and they still get EN outbreaks.

To start learning about EN, I suggest you read my favorite EN link:

EN can present a real puzzle to determine the triggering cause, and

this list only includes the known or proven causes. We have some more

recently discovered triggers listed in our Files at the Group Site.

Enjoy exploring our Group Site and Good Luck in finding your EN

Trigger. I hope you feel better soon!

Love,

idio. EN since '68

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