Welcome, New Member Ann Whisker annw1952 [annw1952@...]/Case History

[Guest guest]

Dear Group,

Please join me in welcoming our newest member,Ann Whisker from the UK

who has joined us because: I noticed Ann's posts on another group and

invited her to join us.

Ann, I have added your info to our Member Medical History Files and

posted it below. You have full EN Group privileges.

You are set to receive ALL EN Group emails.

In addition you may access the Group site at:

http://health.groups.yahoo.com/group/erythema_nodosum_Group/

and logging on with your Yahoo ID: " annw1952 "

and secret password.

We are an active group, so if you want the emails to stop, PLEASE LET

ME KNOW.

Your symptoms and treatments are quite familiar to us. Together our

group is looking for answers as we support each other. I'm happy you

joined us. Welcome!

Love,

*********

Ann Whicker's Case History

7/27/05

My Name is Ann Whicker (Mrs), I live in Birmingham, England and I am

52.

I had a Biopsy which confirmed I have Panniculitus

The name of which is : erthyema nodosum

I was diagnosed in 2004 (after my General Practitioner tried

everything - lots of blood tests - this is when he picked up I had an

overactive thyroid - after 2 years he than sent me to a specialist -

I had to wait 1 year for an appointment - but the company i work for

have Private Health Care. So three years later - I had a name to my

problem ). I have a dermatologist Specialist I see every three

months.

I am on : Dapsone 1 for 1 day and 2 for 1 day etc, ( steroids did not

work - and affected my mind - badly ! ), also Mynocin daily, and

Thyroxine for my underactive thyroid.

I have a blood test every month, to check for Anemia.

I have side effects, but no one seems to be able to contribute them

to a particular medicine.

I get Headaches, I cant sleep properly, when the lumps on my lower

legs arrive, the pain is really bad, and I have trouble walking. (I

also suffer from Osteoarthritis in my knees). When at work i have to

put my legs up and then walk around a bit. My Bowels play me up, one

day i can't go, and the next I go too much. I get depressed.

The problem doesn't seem to be clearing up at all, I still get lumps

every so often. Last time i visited the Hospital (Specialist) they

injected steroids into two of my lumps. I must admit it killed the

lumps, but I was ill for five days afterwards.

I would love to hear from anyone.

Thanks for getting in touch

Love

Ann

Hello to you all, I have only just found you as a group, and I am

grateful to be allowed to join your group. I have been suffering

with Panniculitis for approx. 5 years, diagnosed two years ago. My

specialist dermatologist gave me steroids Prediserone (please excuse

spelling) and they did not suit me at all, they nearly sent me

loopy. i had to start on 7 a day for a week dropping 1 tablet per

week untill i had reached 1 tablet per day. My Doctor then tried

Dapsone, which I have been taking for over a year now, and its not

geting rid of the painfull lumps, I last visited the Hospital last

month (June) and they injected two lumps with steroids, (they

worked - but sent me funny again). I only get the lumps on my lower

legs. I am still working 18 hours a week, and last year had a lot of

time off, due to the steroids. I am lucky I wasnt asked to leave !!

I try very hard to carry on as normal, and my children (all grown

up) seem to think " it's all in my head " . Its very difficult, as you

are all aware.

Thanks for letting me join and able to speak to people who are

suffering from this problem. I have been told that it should have

left me by now, and that the steroids should have killed it, but

back they come.

Thanks All

Best Wishes

Ann