university

[Guest guest]

hi jeff, (and everyone!)

thanks for sharing...wow...whew...i hope you have good insurance!

my last two "specialist visits" were at university of madison to a dermatologist specialist. they are the ones that "we didn't go deep enough" and didn't have my file....the first visit i went he said we needed to rule out vascular issues because of the splotchy appearance of my lower legs and feet but on my second visit when i asked he said it wasn't necessary because it wasnt' the same thing and we weren't ruling out a brain tumor...good thing i didn't get angry there....i was kinda in shock he said that...i told my doc about it and she went back to read the first letter from him and he did write vascular down...i guess since he didn't have my chart to read he didn't know that but none the less i don't want to go back to him...they explained my med routine they wanted me to go on, and wrote out one of the prescriptions as something else so when i got it i had to call them, plus they didn't fill out a prescription for the bactriban and the pharmacy had to call them...

my representative at work who works closely with the insurance company went with me to this visit- she was more mad then me when we walked out of there. she thinks i should now push the insurance company to go to mayo in minnesota. right now i am feeling okay, just really tired- don't know why but maybe its because i haven't slept in months and just now am sleeping again plus the fact that i have gained 20 lbs since oct. my history is everytime i get below 7 mg of prednisone is when i start feeling like crap, so for now i hope i don't want to go to mayo but i guess if when i get to the 7mg and if i do feel the flares coming back i will ask to go. i guess my biggest frustration is the bills coming in, and really no more answers than before i went to madison. i was so happy to go up there, and i really liked my first appt, but my second one blew it for me.

thanks for listening!

i will not give up!

julie t