Re: alopecia

[Guest guest]

I had Alopecia Nervosa as a child. Mine came out in round circles. The dermatologist said that stress had a great deal to so with the hair loss. My family had a lot going on when I was 13. Kids show stress in many ways. That was mine. I was not a great communicator. I internalized everything. Mine all grew back. I went from a straight haired kiddo to a Shirley Temple look a like in just a year. You also have to remember that heredity plays apart in all of this too. Everyone is always so quick to say it's a "DS thing". Does everyone in your immediate family have healthy thick hair?

nnaMommy to Freddie 6 yrs Full Inclusion Summer School (K/1st) The Will of God will never take you where the Grace of God will not protect you.

Subject: [DownSyndromeInfoExchange] alopeciaTo: DownSyndromeInfoExchange Cc: IDSFparents , "'Down Syndrome'" Date: Tuesday, July 1, 2008, 7:18 AM

Passing this on for a friend…any information?

************ ********* ********* ********* ********* ********* *****

Would you mind sending this out to the other groups you have. started loosing hair over the winter, back of his neck and I thought it was from his coat collar rubbing. He also lost/pulled his right eyebrow last fall - this has grown back. At that time we retested his thyroid and upped his dosage to 75 mcg from 50. This did not help the back of his head/neck and we started noticing some other spots on his head. At first we thought maybe it was still the thyroid and switched him from a suspenstion to pills to ensure he got the full dose each day. Then when we didn't see any change but more areas of loss, we thought it might be ring worm (yuck!) and treated him for a month with an antibiotic (something that started with a g). Well now things are still the same or worse and we did hair samples yesterday that will be cultured to see if there is any fungus. These tests will take between

10 days and 4 weeks. I believe we will also check the thyroid again - I have a call in to the doctor about this. If there is no fungus then the thought is that it is alopecia areata which is an autoimmune thing. I don't mean to sound vain about the whole thing, but doesn't need anything else to physically distinquish him from the rest of us! I asked the dr if this was a 'downs" thing and he said he didn't think so, which I didn't really think either. Hopefully, someone out there has some ideas. Thanks.

[Guest guest]

That is what happened to Amber.

She went from straight to curly.

she looses here and there. But has not had total hair loss except for one time.

That is when it came back curly.

Usually it is one spot at a time.

Carol P

From: Kathy Ratkiewicz <Kathy_Rcomcast (DOT) net>Subject: [DownSyndromeInfoEx change] alopeciaTo: DownSyndromeInfoExc hange@yahoogroup s.comCc: IDSFparents@ yahoogroups. com, "'Down Syndrome'" <DOWN-SYNLISTSERV (DOT) NODAK.EDU>Date: Tuesday, July 1, 2008, 7:18 AM

Passing this on for a friend…any information?

************ ********* ********* ********* ********* ********* *****

Would you mind sending this out to the other groups you have. started loosing hair over the winter, back of his neck and I thought it was from his coat collar rubbing. He also lost/pulled his right eyebrow last fall - this has grown back. At that time we retested his thyroid and upped his dosage to 75 mcg from 50. This did not help the back of his head/neck and we started noticing some other spots on his head. At first we thought maybe it was still the thyroid and switched him from a suspenstion to pills to ensure he got the full dose each day. Then when we didn't see any change but more areas of loss, we thought it might be ring worm (yuck!) and treated him for a month with an antibiotic (something that started with a g). Well now things are still the same or worse and we did hair samples yesterday that will be cultured to see if there is any fungus. These tests will take between

10 days and 4 weeks. I believe we will also check the thyroid again - I have a call in to the doctor about this. If there is no fungus then the thought is that it is alopecia areata which is an autoimmune thing. I don't mean to sound vain about the whole thing, but doesn't need anything else to physically distinquish him from the rest of us! I asked the dr if this was a 'downs" thing and he said he didn't think so, which I didn't really think either. Hopefully, someone out there has some ideas. Thanks.