yellow stuff on top of the pg ulcer

[Guest guest]

hi colleen,

you had asked about the yellow, i think you said fat looking stuff on

your pg. that is something called " nercrotic tissue " . it is

old " sloff " if you will and has accumulated. you prolly notice a

rather pungent odor, especially when the pg is in an inflamed or

ulcerating condition. there is no way to describe that oder unless

you smell if for yourself. the nercrotic tissue contributes to this.

does not really hurt anything but my derm docs always wanted it

cleaned off. using whirlpool, dressings that help remove this

(certain ointments), lavage treatments, etc. help remove it. being

clean and well dressed and often is important.....learned this in

wound care. i think wound care is key in getting pg to clear up.

jeff

[Guest guest]

Jeff, I keep my PG wound undressed most of the time. I found that dressing it makes the wound stick to the dressing making it painful to remove. Do you know what the disadvantages/advantages to this could be?

Stay in the know. Pulse on the new Yahoo.com. Check it out.

[Guest guest]

Hey Jeff,

I do have some " nercrotic tissue " but then I also have pieces of fat

come out that's why I was wondering if you actually had pieces of fat.

The more reading I do and the more pictures I look at the more I am

wondering if I do truly have PG or is it something else…

~Colleen

[Guest guest]

hi radio (what's your name?),

i think the thing to do is to put either an anitbacterial ointment

under the dressing or if you are using an immunomodulator, and you

probably should be, like fk-47, keep this under the dressing. the

derm had me keep fk-47 under the dressing all throughout the healing

process.

jeff

>

> Jeff, I keep my PG wound undressed most of the time. I found that

dressing it makes the wound stick to the dressing making it painful to

remove. Do you know what the disadvantages/advantages to this could be?

>

>

> ---------------------------------

> Stay in the know. Pulse on the new Yahoo.com. Check it out.

>

[Guest guest]

hey colleen,

i think it is pg. it looks like it anyway. has all the features of

it. you had biopsies as well. it really is not fat, although it

appears like it. it is nercrotic tissue, a normal part of what

happens with pg after the ulceration stops.

jeff

>

> Hey Jeff,

> I do have some " nercrotic tissue " but then I also have pieces of fat

> come out that's why I was wondering if you actually had pieces of

fat.

> The more reading I do and the more pictures I look at the more I am

> wondering if I do truly have PG or is it something else…

>

> ~Colleen

>

[Guest guest]

Jeff

If you say so I will take your word but all the doctors tell me that

some of it is fat. It comes out in about 2-5mm wide pieces and can go

as long as 2 cm. Hopefully the Dr. at Mt. Sinai will have an opening

sometime in the next few weeks so that I can see him instead of my GP

in hopes of avoiding Pred.

~Colleen

[Guest guest]

colleen,

well, it could be, just that i have never heard of it.

jeff

>

> Jeff

> If you say so I will take your word but all the doctors tell me that

> some of it is fat. It comes out in about 2-5mm wide pieces and can

go

> as long as 2 cm. Hopefully the Dr. at Mt. Sinai will have an opening

> sometime in the next few weeks so that I can see him instead of my

GP

> in hopes of avoiding Pred.

> ~Colleen

>

[Guest guest]

Jeff~

For some reason I trust you right now more then the doctors I have.

I was just asking because from all of this I have learned it never

hurts to ask.

~Colleen

> >

> > Jeff

> > If you say so I will take your word but all the doctors tell me

that

> > some of it is fat. It comes out in about 2-5mm wide pieces and

can

> go

> > as long as 2 cm. Hopefully the Dr. at Mt. Sinai will have an

opening

> > sometime in the next few weeks so that I can see him instead of

my

> GP

> > in hopes of avoiding Pred.

> > ~Colleen

> >

>

[Guest guest]

colleen,

i understand.

i come here with the following knowledge base:

1. as a patient, deeply involved in his disease. i know what pg,

cd,aied, episcleritis and joint pain are.

2. i ask questions and read and research.

3. i have a deep conviction that others in similar situations don't

suffer needlessly like i did....mainly due to lack of knowledge.

you won't see an " MD " title in here anywhere. so as long as you

understand where i come from it's okay. i appreciate your

compliments. i know i don't know it all, but i try!

jeff

> >

> > colleen,

> >

> > well, it could be, just that i have never heard of it.

> >

> > jeff

[Guest guest]

Hey Jeff,

You have more knoledge then the doctors who are treating me now have

so until I see a doctor who has treated more people with PG I listen

to you more then them. I am working on my powerpoint right now in

hopes of being able to gain a deeper understanding of PG so when I

go see the Dr. at Mt. Sinai I will be able to ask more educated

questions.

Quick question. Do you mind if I use the picture or two of your leg

from this site in my presentation?

~Colleen

> > >

> > > colleen,

> > >

> > > well, it could be, just that i have never heard of it.

> > >

> > > jeff

>

[Guest guest]

you may use any of the pics you wish.

jeff

>

> Hey Jeff,

> You have more knoledge then the doctors who are treating me now have

> so until I see a doctor who has treated more people with PG I listen

> to you more then them. I am working on my powerpoint right now in

> hopes of being able to gain a deeper understanding of PG so when I

> go see the Dr. at Mt. Sinai I will be able to ask more educated

> questions.

> Quick question. Do you mind if I use the picture or two of your leg

> from this site in my presentation?

> ~Colleen

[Guest guest]

Hey Jeff,

I just posted a picture with the start of my PG pocket (day 2 today).

I have an appoitment set up with the Doctor at Mt. Sinai on the 25th

at 7:20 in the morning (mornings + college student=bad mix). Due to

the fact that I don't know what my leg will look like at that point in

time I will most likely be taking pictures every other day to track

the progress to show this new doctor and I will post more pictures as

they are taken if you want.

~Colleen

[Guest guest]

colleen,

so happy you got in to mt sinai so fast (must be nice having a doc for

a dad, eh? hee, hee). you will get much help there, i am confident.

i think this was the right move.

yes, keep taking pics, i did this also, but could of taken more as it

healed. some day i will take a pic of the scar this thing

left....looks ugly...of course, all the subconanious tissue was all

ulcerated away so it left primarily skin and bone........no nerves,

they were distroyed! this is why getting after this is so dang

important!

love,

jeff

>

> Hey Jeff,

> I just posted a picture with the start of my PG pocket (day 2

today).

> I have an appoitment set up with the Doctor at Mt. Sinai on the 25th

> at 7:20 in the morning (mornings + college student=bad mix). Due to

> the fact that I don't know what my leg will look like at that point

in

> time I will most likely be taking pictures every other day to track

> the progress to show this new doctor and I will post more pictures

as

> they are taken if you want.

> ~Colleen

>

[Guest guest]

Jeff,

I got into Mt. Sinai all by myself that fast. I called to make an appt

and the guy said it would be a few weeks before I could get in and I

was like the sooner the better and he asked why and I said that I have

PG and heard that the dr. had a sizeable practice and as soon as I did

that he shifted modes and was like oh in that case how about the 25th.

My dad is going to come get me from college Tuesday night and we will

spend the night at my grandparents so that he doesnt have to come get

me in the morning and we will leave their house at 6 because of lovely

NYC traffic.

I can't take any more pics for this pocket because it burst today due

to the fact that I had been on my leg all day and since it was such a

short time since my last pocket the skin was really weak. I will try

and track the progress with the next pocket if I think of it.

~Colleen