Re: quick question

[Guest guest]

Joanne,

I wish you Brie the best of luck! i too had plastic surgery when I was 4

yeras old due to a scar. At 4, I was hit on the side of the face with a

falling cinder block (the kind they build basements with!!) My nose was

wiped to the side of my face and I received 176 stitches to close everything

up. I looked horrible for about a year. I went through 3 plastic surgeries

to minimize the scar and to this day, everyone I tell the story to is amazed

that all I have left is a 6 inch scar on the side of my nose. They actually

get right up to my face to look at it.

Thanks for you help with my question...I'll let you know today what happens.

Sue G. - Mom to M & M

Re: Quick Question

>From: JCMPelican@...

>

>Sue - I know some antibiotics do yellow the teeth but haven't heard

>specifically about grey. As to the feet not growing, I haven't heard about

>that. Has Mackenzie been on lots of Prelone? Maybe it is perfectly

normal

>and that she will just be a more petite person???? Our little

>granddaughter, na has also been congested lately and we've had to

start

>nebbing her again. She will be having plastic surgery in October for a

kind

>of deep, jagged scar on her upper check and we can't take any chances even

>tho her asthma tends to be mild. Brie is the 3 yr. old sister of our

>grandson, Curt (one of our grandsons with the " rare " immune deficiency of

low

>IgG-1 and IgG-3 before age 10). Brie, however, does not have an immune

>deficiency even tho the doctors said she would have the same deficiency as

>her brother. As to the plastic surgery, she was bitten savagely (sp?) by

a

>German-shepherd mix dog last October. She tried to kiss him!! It was the

>neighbor's dog. As terrible as the bites were (she had 12 stitches around

>one of her eyes and very bad infection which had to be tended to both by

her

>primary doctor and the plastic surgeon), she still looks absolutely

>adorable!! They will only be " minimizing " her most prominent scar and

they

>will wait until she is older to tackle the scars above and immediately

below

>her eye. We thank God every time we look at her that she didn't lose her

>eye or her life.........

>

>I know you will let the group know what you learn re concerns about

>Mackenzie. Sure hope her problems aren't long-lasting.

>

>I am embarrassed to say that I meant to write to parents of, I think,

,

>who will be having surgery on the 19th. I will say a prayer for all of

>you.......

>

>Take care everyone - Joanne

>

>---------------------------

[Guest guest]

Sue - if you get an answer about feet, could you let me know please.

Madeleine is 3 years and two months and is STILL in a size 4 toddler shoe.

When she started walking at 8 and a half months she was a size 2

(impossible to buy where we live) - so she has grown a bit in the two and a

half years she has been walking, but not much.

Kimberley

Mum to Madeleine IgG deficient and Beth (looking increasingly suspect)

[Guest guest]

Dear Helen,

My son was on prednisone for years. One of his side effects was a

drastic change in personality. He had a great deal of difficulty contolling

his temper and was constantly into everything. Hang in there.

Lee

[Guest guest]

Helen, i do know that prednisone will cause an highened sense of well

being.....could be thats it? Becky quick question

> From: HBDOEM@...

>

> Helen Mom to Matt(CVID)13yo

> Ok. Its been a while. Does prendisone have the affect (possible of course)

of

> winding kids up? It is that or Matt is found my last nerve. Yes he has

> started prendisone and it has been so long. 5 Day course to see if this

gets

> his coughing under control.

> Ursula, no he has not restarted IVIG yet. Thought was that since his

trough

> was drawn at 2 mos. it was not conclusive. That we need a clearer clinical

> picture (as we may be getting). We see the ENT on 29th and I am going to

ask

> that he write a letter to Matts insurance for Rinoflow machine. Last I

knew

> they do not cover it. Matt will go on prophylaxis after he finishes this

> course of cefzil, flagyl, prendisone and if there is a break through on

> prophylaxis he will restart on IVIG. I am ok with that. I expected an

> infection upon return to school - thats normal. I expect one more around

> winter. Anything else is over my tolerance of normal.

>

> So, just curious about the prendisone.

>

> Sorry if I have missed something big with all of you. I got too far behind

on

> my mail and breezed through.

>

> Update on me. Pernicious Anemia. Seems my body has antibodies to intrisic

> factor. One of those pesky autoimmune buggers. Guess I'll get friendly

with

> those syringes afterall.

>

> Helen

>

> > This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

[Guest guest]

Dear Helen: When my daughter takes a burst of prednisone. We have miss

jeckyl and hyde and such mood swings that you could put her up for the

shizophrenic awards. We just go with the flow and wait it out and make her

aware of what the drug is causing and that has helped. I hope he is doing

better and his chest has openend up!

in our prayers,

annette and alissa

>From: HBDOEM@...

>Reply-To: PedPIDonelist

>To: PEDPIDonelist

>Subject: quick question

>Date: Sun, 26 Sep 1999 20:18:00 EDT

>

>From: HBDOEM@...

>

>Helen Mom to Matt(CVID)13yo

>Ok. Its been a while. Does prendisone have the affect (possible of course)

>of

>winding kids up? It is that or Matt is found my last nerve. Yes he has

>started prendisone and it has been so long. 5 Day course to see if this

>gets

>his coughing under control.

>Ursula, no he has not restarted IVIG yet. Thought was that since his trough

>was drawn at 2 mos. it was not conclusive. That we need a clearer clinical

>picture (as we may be getting). We see the ENT on 29th and I am going to

>ask

>that he write a letter to Matts insurance for Rinoflow machine. Last I knew

>they do not cover it. Matt will go on prophylaxis after he finishes this

>course of cefzil, flagyl, prendisone and if there is a break through on

>prophylaxis he will restart on IVIG. I am ok with that. I expected an

>infection upon return to school - thats normal. I expect one more around

>winter. Anything else is over my tolerance of normal.

>

>So, just curious about the prendisone.

>

>Sorry if I have missed something big with all of you. I got too far behind

>on

>my mail and breezed through.

>

>Update on me. Pernicious Anemia. Seems my body has antibodies to intrisic

>factor. One of those pesky autoimmune buggers. Guess I'll get friendly with

>those syringes afterall.

>

>Helen

>

>>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

[Guest guest]

HI Helen,

Our Pediatrition told me that it does have the effect of " waking " kids up a

bit. So no, I think its the med that is on your last nerve ;o) not Matt.

P.S. " I have one psycotic nerve left and your on it " is my favorite quote

the past 2 months, haha!

quick question

>From: HBDOEM@...

>

>Helen Mom to Matt(CVID)13yo

>Ok. Its been a while. Does prendisone have the affect (possible of course)

of

>winding kids up? It is that or Matt is found my last nerve. Yes he has

>started prendisone and it has been so long. 5 Day course to see if this

gets

>his coughing under control.

>Ursula, no he has not restarted IVIG yet. Thought was that since his trough

>was drawn at 2 mos. it was not conclusive. That we need a clearer clinical

>picture (as we may be getting). We see the ENT on 29th and I am going to

ask

>that he write a letter to Matts insurance for Rinoflow machine. Last I knew

>they do not cover it. Matt will go on prophylaxis after he finishes this

>course of cefzil, flagyl, prendisone and if there is a break through on

>prophylaxis he will restart on IVIG. I am ok with that. I expected an

>infection upon return to school - thats normal. I expect one more around

>winter. Anything else is over my tolerance of normal.

>

>So, just curious about the prendisone.

>

>Sorry if I have missed something big with all of you. I got too far behind

on

>my mail and breezed through.

>

>Update on me. Pernicious Anemia. Seems my body has antibodies to intrisic

>factor. One of those pesky autoimmune buggers. Guess I'll get friendly with

>those syringes afterall.

>

>Helen

>

>>This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

[Guest guest]

Ditto here . Thank you. That is helpful. 2 more days. Is he

appreciably better. No.

Helen

[Guest guest]

Helen,

From MY experience w/ Zach on prendisone, Yes, indeed. It makes him bounce

off the wall, sleep little & eat tons. I always have to reduce Zach's

dosages, or else he makes me crazy.

Hope this helps,

[Guest guest]

Helen,

When Zach's on the demon drug...I try to do things outside the house. Keep

him as active as possible. And to reduce stress on myself, I put things

off, don't get all worked up about " stuff " , and know that there's an end in

sight. Hope this doesn't burst your bubble, but it takes a couple of weeks

off before we're back to normal. Hang tight....Just think what's it's like

to be in his body....

good luck,

[Guest guest]

Hi all,

Cassie went for her infusion today and we saw the pulmunologist. Well, after

3 weeks of Augmentin, for a sinus infection, he has put her on another round

of antibiotics. Now it is Zithromax. He said she has a major ear infection

now. He was very suprised she has not fussed about it, or ran any fever.

Well, then she got ready to be infused and they could not find a vein. They

finally called the dr. back in and he suggested we really consider putting in

a port so it won't be so much trouble any more. This is getting ridiculous.

She is getting poked so much and it is just so hard on all of us. Now, here

is my question: Is the port really worth all the trouble? I know we have

discussed it before, but now I think I am really going to push the

immunologist. He has never liked the idea because of the risk of

infection/sugery. But, I cannot handle seeing her go through so much stress

every time we go in for the infusion. The EMLA has helped some, but only

when we are lucky enough to put it where they access the vein. I know this

is long for just such a quick question. Sorry. But again, any input you all

have would be greatly appreciated. Also, for those who have gone through the

surgery, what exactly is to be expected and how long before they are able to

access the port.

Belinda Rose,

mom to Cassie, igg immunodefficient, asthma, chronic sinusitis

[Guest guest]

I do not think a port is a good idea. Numbe one, ports are notorious for

infections, and septic infections at that which can lead to long term

disabilities, Number two, placement of ports can lead to blood clots, which

never go away and that means blood thinners. Ports are generally put in for

nursing convenience.

Try warming up the child's arm with warm cloths, or put a blood pressure cuff

on and pump it up a litter to get the vein to come up closer to the surface

of the skin.

I had a bowl of presents wrapped in bright tissue paper, and when the boys

held still and helped the nurses they got to pick from the bowl and get a

treat from the vending machines or buy a wrestling guy to play with for our

four hour ride home from clinic.

They are 10 and 12 now and we have lots of wrestling guys.

Think long and hard about a port, if your immunologist is against it I would

not do it. Port infectons are the number one reason for hospitalizations in

cancer patients who are immunosuppressed.

Tragically, my friend lost her son to a line infection. He had a BMT and was

grafting but the line got infected with aspergillus and they could not save

him.

Good luck with your decision. and take care.

Lynne

[Guest guest]

Belinda,

I know that you were out of the loop for a bit....so everyoneone else, bear

w/me for repeating.

We had similar problems w/Zach. Our Immuno had said if we didn't get

access, she would give us no choice & have to put in a port. Well here's

what we do....1st, we put Emla from elbow to wrist on both arms, we wrap it

w/saran wrap (the nurses call him Emla boy). 2nd we make sure that Zach's

well hydrated & make him drink tons of water on the way to the hospital.

3rd, 24 hrs before infusion we give no antihistimines or Tylenol (these

drugs sometimes constrict the veins), we don't premedicate for IVIg until

after he's accessed. 4th & most successfully, instead of the nurse using a

turniquite, we use a ped blood pressure cuff. This holds tighter & makes

the veins much chunkier. Since we've used the blood pressure cuff we have

literally accessed in one poke! This was a reccomendation of the Amer Red

Cross(and it works!)

And we use the cuff for all blood draws too. Belive me, I didn't want to

have to mess w/a port either.

Hope this helps,

Wife to Tom, Mom to 6 1/2 yr Zach, ???(don't know the specific type) PID, GERD,

chronic sinusitis, IVIG

[Guest guest]

Belinda - Macey had a port last year and it was wonderful. She lost her

port after two Staph infections but only had those because she was taken off

IVIG for a trial. But I was still told that it is probably not the reason.

Macey just seems to be prone to line infections. Both her PICC lines and

the port became infected. Anything plastic in her (urine catheters

included) tend to start infections. We are discussing at the next infusion

whether to do another port, it will depend on whether we take her off in the

spring to retest her levels. But even then we will watch her alot closer

since we know it could happen again. She did well with her port surgery and

her ped surgeon said it could be accessed right away. But when we had to go

to the local hospital the next day for a blood draw they would not access.

They said we needed to wait a week or two. So different places say different

things. Macey's port was in her left upper chest and just protruded

alittle. The Huber needle stick was alot easier and by the last months of

having it Macey was helping us flush her own access.

Good luck and I think another key thing is to get a surgeon who does alot of

peds, even does mostly chemo kids (ours commented how nice it was to

actually assess a patient in the office and not having us already sick in

the hospital needing him.)

Let us know what they say.

Ursula - & Macey (4 yr old w/CVID) mom

[Guest guest]

Ursula or anyone that has experienced older child with self-esteem problem,

Alissa told her psychologist yesterday that she was suicidal and did not

want to live anymore with her problem or deal with all the meds and garbage

she has to take to say alive, the psychologist feels she needs and

anti-depressant and is calling the immuno today to see what will not react

with all of her other drugs. I feel like a bad mom today because I have

done everything to try and have her lead as normal a live as possible. I

realize that it is also the start of puberty for her but boy I am open for

any suggestions on this on!! Thanks for listening as always,

regards,

annette and alissa

>From: LMSIDFFL@...

>Reply-To: PedPIDonelist

>To: PedPIDonelist

>Subject: Re: Quick question

>Date: Mon, 11 Oct 1999 22:58:59 EDT

>

>I do not think a port is a good idea. Numbe one, ports are notorious for

>infections, and septic infections at that which can lead to long term

>disabilities, Number two, placement of ports can lead to blood clots, which

>never go away and that means blood thinners. Ports are generally put in

>for

>nursing convenience.

>

>Try warming up the child's arm with warm cloths, or put a blood pressure

>cuff

>on and pump it up a litter to get the vein to come up closer to the surface

>of the skin.

>

>I had a bowl of presents wrapped in bright tissue paper, and when the boys

>held still and helped the nurses they got to pick from the bowl and get a

>treat from the vending machines or buy a wrestling guy to play with for our

>four hour ride home from clinic.

>

>They are 10 and 12 now and we have lots of wrestling guys.

>

>Think long and hard about a port, if your immunologist is against it I

>would

>not do it. Port infectons are the number one reason for hospitalizations in

>cancer patients who are immunosuppressed.

>

>Tragically, my friend lost her son to a line infection. He had a BMT and

>was

>grafting but the line got infected with aspergillus and they could not save

>him.

>

>Good luck with your decision. and take care.

>

>Lynne

>

>

>------------------------------------------------------------------------

>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

><< text3.html >>

[Guest guest]

Dear : What are the signs of lidacaine toxicity occurring? I had not

heard of this before? thanks for also sharing about the port,

annette and alissa

>

>Reply-To: PedPIDonelist

>To: PedPIDonelist

>Subject: Re: Quick question

>Date: Mon, 11 Oct 1999 23:32:28 +0000

>

>,

>

>Interesting, we learned recently that when people use EMLA in large

>doses, some kids get toxic effects of lidocaine being absorbed through

>the skin. Not that you shouldn't do it that way, but I would just keep

>an eye out to make sure Zach's behavior stays normal while you've got

>all that EMLA on.

>

>Just thought I'd pass on what I'd heard...

>Glad the accesses are so easy, though!

>Take care,

>

>

>------------------------------------------------------------------------

>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

><< text3.html >>

[Guest guest]

Urs,

Sorry, I forgot to respond to one part of your question. In general,

they don't like to use the same vein twice. If they can get far away

from the original insertion point, they will do it, but things like port

cathethers, etc., interrupt the integrity of the vein. That's why they

went to the other side for me. I do think they can take a port out of

the same incision they put it in, but as for putting another in, that's

a bit " iffy. " I know the jugulars, in particular, are particularly

prone to damage and once you've hit one once, they are hard to ever make

work again. I had an Internal Jugular central line (just regular kind -

not permanent - when I was in the ICU a few years ago). They wanted to

use it for this last port, but they did the doppler and found out it had

closed down from the first line. For some reason the jugulars are prone

to doing that. So they used the External Jugular for me this time,

instead. So I have scars galore... guess I'll have quite the job

picking a wedding dress someday, huh? :-)

Take care,

[Guest guest]

BELINDA

HI, I WAS TOLD REPEATEDLY BY TONYS IMMUNOLOGIST AND HIS HEM/ONC THAT THE

PORT WAS A VERY RISKY THING WITH THE INFECTION RATE BEING SO HIGH FOR

THEM.THEY SAID ABSOLUTLY NOT..THIS AFTER A YEAR OF ARGUING WITH HIS LOCAL

PED..HE WANTED IT..I SAID NO AND THAT WENT ON FOR A YEAR..FINALLY I HAD HIS

IMM. WRITE A LETTER TO HIS PED.. TO OUTLINE THE REASON THE PORT WASN'T A

GOOD I DEA FOR TONY...JUST THOUGHT I'D LET YA KNOW..

KAREN W. mom to tony cvid,chronic neutropenia, chronic sinusitis

Re: Quick question

>From: ALLYSCASSI@...

>

>Hi all,

>

>Cassie went for her infusion today and we saw the pulmunologist. Well,

after

>3 weeks of Augmentin, for a sinus infection, he has put her on another

round

>of antibiotics. Now it is Zithromax. He said she has a major ear

infection

>now. He was very suprised she has not fussed about it, or ran any fever.

>

>Well, then she got ready to be infused and they could not find a vein.

They

>finally called the dr. back in and he suggested we really consider putting

in

>a port so it won't be so much trouble any more. This is getting

ridiculous.

>She is getting poked so much and it is just so hard on all of us. Now,

here

>is my question: Is the port really worth all the trouble? I know we have

>discussed it before, but now I think I am really going to push the

>immunologist. He has never liked the idea because of the risk of

>infection/sugery. But, I cannot handle seeing her go through so much

stress

>every time we go in for the infusion. The EMLA has helped some, but only

>when we are lucky enough to put it where they access the vein. I know this

>is long for just such a quick question. Sorry. But again, any input you

all

>have would be greatly appreciated. Also, for those who have gone through

the

>surgery, what exactly is to be expected and how long before they are able

to

>access the port.

>

>Belinda Rose,

>mom to Cassie, igg immunodefficient, asthma, chronic sinusitis

>

>>This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

[Guest guest]

Annette-

YOU are a GReAT mom!!! Remember that. Our kids have

to go through sooooo much in there short life spans.

I know that I get really depressed at times. I think

we have all been there. is young yet, but she

already has said she doesn want the neupogen any more.

The anti-depressant is a good idea. Is there maybe a

support group through the Children hosp. for kids with

Chronic life threatening illness This group is great

for us adults. If Alissa can meet with other kids and

share there stories it may help. Give her someone to

confide in. I know that even has told me she

will be ok. Sometimes kids dont' want to get us

parents upset. Kinda like they are sheltering us like

we try to do for them. Not sure this has helped.

keep your chin up, ou are doing a GREAT job.

=====

and

(congential neutropenia, hypogammaglobulinemia, chronic sinusitis and

leukopenia)

mom to Evan 6, 4 and Abby Rose 2

[Guest guest]

,

Please explain what toxic symptoms might be.....The last time we went for

infusion, I mentioned to the nurse (since the cuff was working for easy

access) that I was only going to put the Emla on one arm & she told me

no....that there was no harm in doing both. I'm a firm believer of being a

minimalist when it comes to drugs and this was a concern of mine. I would

love to hear what you know about this....ps oru infusion is on Thurs.

Thanks ,

Chrsitne

[Guest guest]

,

Thanks so much for hunting down & sharing the info. I will do just one arm

from now on. Like I said, since we've been using the cuff, access has been

much better. They get it in one stick, but the veins still do tend to roll

a bit, so they're sometimes fishing around before actually " getting blood " .

PS are wedding bells in the near future? Funny cuz we had our immuno appt

today & she just got engaged (to an orthopedic surgeon of course). She's

just on a cloud....all smiles...

Thanks again,

[Guest guest]

Dear Ursula: Is this a safe site to contact? I forwarded the letter to

kimberly that they sent to me!

annette and alissa

>

>Reply-To: PedPIDonelist

>To: <PedPIDonelist>

>Subject: RE: Quick question

>Date: Wed, 13 Oct 1999 13:25:02 -0400

>

>I want to make sure that everyone understands that the organization at this

>site, The Children's Immune Deficiency Foundation, is in no way affiliated

>with the IDF. Several weeks ago certain PID sites were contacted regarding

>input on this site but it looked alittle like they were riding on the IDF's

>name recognition. So I contacted the IDF national office and they were

>going to have the California chapter check into it. But again this is not

>an IDF affiliate.

>

>Ursula Holleman

>Macey's mom (4 yr. old with CVID, asthma, GERD, sinus disease, grade I left

>kidney reflux, Sensory Integration Disorder, Diabetes Insipidus)

>ICQ # 28592349

>http://www.icq.com

>

>PedPID email list archives

>http://www.netpage.org/PedPID/_PedPID/

>

>PedPID email list introductions

>http://www.netpage.org/PedPID/_PedPID/introduction.htm

>

>

>

> Re: Quick question

>

>

>

>Dear : Thanks for the support and advice, there was an email or

>website

>that was sent to me yesterday that was wonderful and I have not heard back

>from them yet this morning, it is www.healingkids.org and it is a website

>where children with pid can write to eachother it is suppose to be up and

>running by october 15th. I am seeing alissa's peds this morning and I am

>going to ask about a childs support group,since she is not aloud to visit

>our adult group at the base anymore. HOpe the kids are doing better, God

>Bless,

>annette and alissa

>

>

>------------------------------------------------------------------------

>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

><< text3.html >>

[Guest guest]

I want to make sure that everyone understands that the organization at this

site, The Children's Immune Deficiency Foundation, is in no way affiliated

with the IDF. Several weeks ago certain PID sites were contacted regarding

input on this site but it looked alittle like they were riding on the IDF's

name recognition. So I contacted the IDF national office and they were

going to have the California chapter check into it. But again this is not

an IDF affiliate.

Ursula Holleman

Macey's mom (4 yr. old with CVID, asthma, GERD, sinus disease, grade I left

kidney reflux, Sensory Integration Disorder, Diabetes Insipidus)

ICQ # 28592349

http://www.icq.com

PedPID email list archives

http://www.netpage.org/PedPID/_PedPID/

PedPID email list introductions

http://www.netpage.org/PedPID/_PedPID/introduction.htm

Re: Quick question

Dear : Thanks for the support and advice, there was an email or website

that was sent to me yesterday that was wonderful and I have not heard back

from them yet this morning, it is www.healingkids.org and it is a website

where children with pid can write to eachother it is suppose to be up and

running by october 15th. I am seeing alissa's peds this morning and I am

going to ask about a childs support group,since she is not aloud to visit

our adult group at the base anymore. HOpe the kids are doing better, God

Bless,

annette and alissa

[Guest guest]

Dear Annette,

I had very similar problems with when he was in his preteen years. I

know that no two people have the exact same experiences in life, but I do

recall that time very clearly and feeling awful during it. I remember

feeling like a horrible mother because mother's are supposed to fix

everything, right? Now not only couldn't I fix my son's physical illnesses,

but I could not fix his psychological ones either. Then I realized that I

could get him the best help possible for his emotional health, just as I had

always done for his physical health and that's what I did. I don't know

exactly what all to tell you, but if you think that I can help you, please

don't hesitate to ask me. I'll do all that I can. One thing I can tell you

is that you are a good mom and things will get better. Take care.

Lee

[Guest guest]

Dear : Thanks for the support! you are truly right about treating the

mind with the best psychologist! We will continue to see one every week

until we get through this. and yes it is an illness but unfortunately it

affect both the mind and body! Did you get your auth through for the ivig?

and did you find a contact point at your insurance so you will not have to

go through this again? HOpe you are both doing well and take care,

annette and alissa

>From: Kmeyer1020@...

>Reply-To: PedPIDonelist

>To: PedPIDonelist

>Subject: Re: Quick question

>Date: Wed, 13 Oct 1999 22:54:42 EDT

>

>Dear Annette,

>

>I had very similar problems with when he was in his preteen years. I

>know that no two people have the exact same experiences in life, but I do

>recall that time very clearly and feeling awful during it. I remember

>feeling like a horrible mother because mother's are supposed to fix

>everything, right? Now not only couldn't I fix my son's physical

>illnesses,

>but I could not fix his psychological ones either. Then I realized that I

>could get him the best help possible for his emotional health, just as I

>had

>always done for his physical health and that's what I did. I don't know

>exactly what all to tell you, but if you think that I can help you, please

>don't hesitate to ask me. I'll do all that I can. One thing I can tell

>you

>is that you are a good mom and things will get better. Take care.

>

>Lee

>

>------------------------------------------------------------------------

>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

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