Re: going to see Dr. ....need some help

[Guest guest]

I am seeing Dr. this week...I regret that I didn't ask for current bloodwork to be done, but i didn't.

Last time I went in my tsh alarmed them - the pa and Dr. Narla. (Less than 0.002) but my T3 had come down within range..

About 3 months ago, I started taking my armour 30 minutes before breakfast, whereas I had never been too careful about how I have taken it before. I have decided that this is the reason my tsh went down and my T3 went above range.

I have since cut down my thyroid from 3.5 to 3 gr because I was having palpitations and they felt my t3 being so high was not good for my heart. I feel good right now, but do not want to go below 3 gr.

Could taking the meds alone 30 minutes before food have changed my levels that much? I just want to be armed with what I want to say to her when I get there. Im not that concerned aobut my tsh becuase it's always been low since i started armour. I also don't want to change meds. I had thought the armour was causing hives, but they ahve cleared up since I cut back. Guess the hives were bering cuased by being hyper.

any helpp is appreciated.

thanks

steph

Ellis Ecke, LPC, LCDC

Life Transformation Coaching and Counseling

www.stephanieecke.com

"Let the Transformation Begin!"

Re: Questions

hi Bruce,

I was diagnosed hypo when I was 11 years old and took synthroid until I was a junior in high school and the family doctor who diagnosed me moved out of town. As an adult, the doctors I saw brushed off my questions about my thyroid and wouldn't test. In my thirties, a doctor I liked and respected tested me and said my thyroid was "low, but low normal," which does not appear on any test result, but I didn't know that at the time.

Weight gain and depression were my major concerns then. I compensated by running -- running 45-50 miles a week, training for marathons, and never eating more than 1300 calories a day. I was trying to beat my body into submission. I regret that now.

Somewhere in that time period, I developed ringing in my ears. It stayed with me for about two decades. I have to say, in my limited thyroid research at the time, I never saw tinnitus listed as a symptom of low thyroid.

Time passes, exercise no longer helps with the depression, I stop running.

After a couple of years, I am diagnosed, due to experiencing my first migraine, with a brain tumor. As the neurologist and I were planning for the surgery, I mentioned my earlier thyroid issue and he wrote me a prescription for .1 Synthroid in a heartbeat -- I'd never gotten a reaction like from a doctor before.

Turns out, a popular anti-seizure med, prescribed for two years post brain surgery, just beats the devil out of one's thyroid. I took it for two years and gained more weight than I every imagined I could or would. And my head was so foggy I really didn't do my job very well and was happy to be laid off.

The neurologist thought he was helping me but I think the Synthroid lowered my TSH, subsequently lowering the amount of thyroid my own poorly-functioning thyroid produced, and the tinnitus became amazingly loud. And interesting. Sometimes the sound would travel horizontally in my head, from one ear to the other, like a demonstration of stereo headphones.

time passes finally get primary care physician to up my Synthroid a bit but appetite all messed up lots of depression find about.thyroid.com find this site learn more research pub med more luckily find a doctor who prescribes Armour. And Cytomel. Together. I bless him today, even though he's retired and I no longer see him.

And the tinnitus went away.

I play steel drums now, and always wear ear protection. But I don't have tinnitus.

I take what some might consider to be a large of amount of thyroid meds, compouned porcine thyroid and synthetic. I think the exact amount is not necessarily relevant to your needs because I've read a study or two that indicates that hypothyroid people who went without treatment for a long time -- as I did -- may need lots of supplemental thyroid because the thyroid receptors in the cells may not be as capable as those in the cells of someone who has always had sufficient thyroid hormone.

So that's my tinnitus story, with a lots of extra thrown in. I wish you luck at the Mayo Clinic. And with every other doctor you encounter. To me, they are as much adversaries as helpers.

good health,

kidbobo

> > >

> > > Can I ask a couple of questions of you guys?

> > >

> > > How long do I have to take levo before my symptoms get better? I've been

> > taking my increased dose since aug 10.

> > >

> > > If I'm on 37.5 mcg levo and want to get on erfra, how much will I take?

> > >

> > > Does anyone have ears that ring?

> > >

> > > What about joint pain that mimics arthritis medicine pain? I can't take

> > arthritis medicine.

> > >

> > > Were you on levo and switched to the Canadian erfra? Better or worse?

> > >

> > > I'm the one scheduled to go to the mayo clinic Monday. Tired of being

> > tired, laying on the floor.

> > >

> > > Bruce

> > >

> >

> > > >

>

------------------------------------

[Guest guest]

Did you take your Armour the morning of

the blood draw or wait until afterwards?

Kim

From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sle816

Sent: Friday, September 17, 2010

10:19 PM

To: Texas_Thyroid_Groups

Subject: Re:

going to see Dr. ....need some help

I am seeing Dr. this week...I

regret that I didn't ask for current bloodwork to be done, but i didn't.

Last time I went in my tsh alarmed them -

the pa and Dr. Narla. (Less than 0.002) but my T3 had come down

within range..

About 3 months ago, I started taking my

armour 30 minutes before breakfast, whereas I had never been

too careful about how I have taken it before. I have decided

that this is the reason my tsh went down and my T3 went above range.

I have since cut down my thyroid from 3.5

to 3 gr because I was having palpitations and they felt my t3 being so high was

not good for my heart. I feel good right now, but do not want to go below

3 gr.

Could taking the meds alone 30 minutes

before food have changed my levels that much? I just want to be armed

with what I want to say to her when I get there. Im not that concerned

aobut my tsh becuase it's always been low since i started armour. I also

don't want to change meds. I had thought the armour was causing hives,

but they ahve cleared up since I cut back. Guess the hives were

bering cuased by being hyper.

any helpp is appreciated.

thanks

steph

Ellis Ecke, LPC, LCDC

Life Transformation Coaching and Counseling

www.stephanieecke.com

" Let the Transformation Begin! "

-----Original

Message-----

To: Texas_Thyroid_Groups

Sent: Fri, Sep 17, 2010 10:02 pm

Subject: Re: Questions

hi Bruce, I was diagnosed hypo when I was 11 years old and took synthroid until I was a junior in high school and the family doctor who diagnosed me moved out of town. As an adult, the doctors I saw brushed off my questions about my thyroid and wouldn't test. In my thirties, a doctor I liked and respected tested me and said my thyroid was " low, but low normal, " which does not appear on any test result, but I didn't know that at the time. Weight gain and depression were my major concerns then. I compensated by running -- running 45-50 miles a week, training for marathons, and never eating more than 1300 calories a day. I was trying to beat my body into submission. I regret that now. Somewhere in that time period, I developed ringing in my ears. It stayed with me for about two decades. I have to say, in my limited thyroid research at the time, I never saw tinnitus listed as a symptom of low thyroid. Time passes, exercise no longer helps with the depression, I stop running. After a couple of years, I am diagnosed, due to experiencing my first migraine, with a brain tumor. As the neurologist and I were planning for the surgery, I mentioned my earlier thyroid issue and he wrote me a prescription for .1 Synthroid in a heartbeat -- I'd never gotten a reaction like from a doctor before. Turns out, a popular anti-seizure med, prescribed for two years post brain surgery, just beats the devil out of one's thyroid. I took it for two years and gained more weight than I every imagined I could or would. And my head was so foggy I really didn't do my job very well and was happy to be laid off. The neurologist thought he was helping me but I think the Synthroid lowered my TSH, subsequently lowering the amount of thyroid my own poorly-functioning thyroid produced, and the tinnitus became amazingly loud. And interesting. Sometimes the sound would travel horizontally in my head, from one ear to the other, like a demonstration of stereo headphones. time passes finally get primary care physician to up my Synthroid a bit but appetite all messed up lots of depression find about.thyroid.com find this site learn more research pub med more luckily find a doctor who prescribes Armour. And Cytomel. Together. I bless him today, even though he's retired and I no longer see him. And the tinnitus went away. I play steel drums now, and always wear ear protection. But I don't have tinnitus. I take what some might consider to be a large of amount of thyroid meds, compouned porcine thyroid and synthetic. I think the exact amount is not necessarily relevant to your needs because I've read a study or two that indicates that hypothyroid people who went without treatment for a long time -- as I did -- may need lots of supplemental thyroid because the thyroid receptors in the cells may not be as capable as those in the cells of someone who has always had sufficient thyroid hormone. So that's my tinnitus story, with a lots of extra thrown in. I wish you luck at the Mayo Clinic. And with every other doctor you encounter. To me, they are as much adversaries as helpers. good health,kidbobo > > >> > > Can I ask a couple of questions of you guys?> > >> > > How long do I have to take levo before my symptoms get better? I've been> > taking my increased dose since aug 10.> > >> > > If I'm on 37.5 mcg levo and want to get on erfra, how much will I take?> > >> > > Does anyone have ears that ring?> > >> > > What about joint pain that mimics arthritis medicine pain? I can't take> > arthritis medicine.> > >> > > Were you on levo and switched to the Canadian erfra? Better or worse?> > >> > > I'm the one scheduled to go to the mayo clinic Monday. Tired of being> > tired, laying on the floor.> > >> > > Bruce> > >> >> > > >> ------------------------------------

[Guest guest]

no, I always wait until after the blood draw to take meds.. The first blood draw where my T3 was above range, I was not fasting, but o n the second one - a week later, my tsh was still suppressed, but the t3 was in range - although at the top of the range.

thanks,

steph

Re: Questions

hi Bruce, I was diagnosed hypo when I was 11 years old and took synthroid until I was a junior in high school and the family doctor who diagnosed me moved out of town. As an adult, the doctors I saw brushed off my questions about my thyroid and wouldn't test. In my thirties, a doctor I liked and respected tested me and said my thyroid was "low, but low normal," which does not appear on any test result, but I didn't know that at the time. Weight gain and depression were my major concerns then. I compensated by running -- running 45-50 miles a week, training for marathons, and never eating more than 1300 calories a day. I was trying to beat my body into submission. I regret that now. Somewhere in that time period, I developed ringing in my ears. It stayed with me for about two decades. I have to say, in my limited thyroid research at the time, I never saw tinnitus listed as a symptom of low thyroid. Time passes, exercise no longer helps with the depression, I stop running. After a couple of years, I am diagnosed, due to experiencing my first migraine, with a brain tumor. As the neurologist and I were planning for the surgery, I mentioned my earlier thyroid issue and he wrote me a prescription for .1 Synthroid in a heartbeat -- I'd never gotten a reaction like from a doctor before. Turns out, a popular anti-seizure med, prescribed for two years post brain surgery, just beats the devil out of one's thyroid. I took it for two years and gained more weight than I every imagined I could or would. And my head was so foggy I really didn't do my job very well and was happy to be laid off. The neurologist thought he was helping me but I think the Synthroid lowered my TSH, subsequently lowering the amount of thyroid my own poorly-functioning thyroid produced, and the tinnitus became amazingly loud. And interesting. Sometimes the sound would travel horizontally in my head, from one ear to the other, like a demonstration of stereo headphones. time passes finally get primary care physician to up my Synthroid a bit but appetite all messed up lots of depression find about.thyroid.com find this site learn more research pub med more luckily find a doctor who prescribes Armour. And Cytomel. Together. I bless him today, even though he's retired and I no longer see him. And the tinnitus went away. I play steel drums now, and always wear ear protection. But I don't have tinnitus. I take what some might consider to be a large of amount of thyroid meds, compouned porcine thyroid and synthetic. I think the exact amount is not necessarily relevant to your needs because I've read a study or two that indicates that hypothyroid people who went without treatment for a long time -- as I did -- may need lots of supplemental thyroid because the thyroid receptors in the cells may not be as capable as those in the cells of someone who has always had sufficient thyroid hormone. So that's my tinnitus story, with a lots of extra thrown in. I wish you luck at the Mayo Clinic. And with every other doctor you encounter. To me, they are as much adversaries as helpers. good health,kidbobo > > >> > > Can I ask a couple of questions of you guys?> > >> > > How long do I have to take levo before my symptoms get better? I've been> > taking my increased dose since aug 10.> > >> > > If I'm on 37.5 mcg levo and want to get on erfra, how much will I take?> > >> > > Does anyone have ears that ring?> > >> > > What about joint pain that mimics arthritis medicine pain? I can't take> > arthritis medicine.> > >> > > Were you on levo and switched to the Canadian erfra? Better or worse?> > >> > > I'm the one scheduled to go to the mayo clinic Monday. Tired of being> > tired, laying on the floor.> > >> > > Bruce> > >> >> > > >> ------------------------------------