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My son is 11months and constantly cranky. He prefers not to be moved and PT is

almost impossible. He has been through so much this past month. He just

started the ketogenic formula diet and it is helping his seizures. He is on

many meds and starting to come off some. He is on pheno, klonopin, trileptal,

topomax, B6 and prilosec. He has an NG tube and will probably get a permanent

tube next month. In addition, he should get teeth any minute. There is so much

going on I can't tell what is bothering him so much. I hate to see him so

unhappy. Is it teething, the tube, reflux or effects of the meds? He has been

sleepy and fighting the sleep during the morning. He has been sleeping 10-14

hrs a day. I don't think it is enough, so I have been trying to encourage him

to sleep more. Getting him in a routine has been hard due to all the time in

the hospital this past month. He sleeps well at night (usually 10-7), but every

night he wakes up at 4 and wants to sleep with me. I am having a hard time

breaking this habit. He screams so loud that he wakes up my other son, so it

has become easier just to go with it.

Any input will be appreciated.

Thanks, Julissa

Sent from my iPad

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