Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 Why don't you ask your family and friends for a small donation. If they don't know what you are dealing with then they are not friends or you need to educate them more on what PMG is. It's so hard being a parent and dealing with this. We bought our son one and he can barely use it now and he is 7. Maybe it will help in the future. In anycase this is not a forum for others to feel bad for each other and donate or suggest how to figure out how you should get an ipad or money to travel somewhere. I want my public school to buy an ipad for communication help but I'm not asking how do get funds here. Sorry to vent but tired of reading these emails lately! Sent from my Verizon Wireless BlackBerry $200 Gift Card! =) I don't think there are any rules against posting this here, but if so please just let me know. As I have been trying so hard to apply for grants and help to get my daughter an Ipad for a communication and learning device I have had no luck, I started venturing out and finding other giveaways from blogs and such, entering as many as possible. As we all know, any kind of help is worth trying for right? I just entered to win a $200 Amazon Gift Card, and to earn an extra entry it asked me to share it with a community such as facebook, or anything else. So I immediately thought of everyone here first. I would much rather share this with all of you than anyone else as I know it would greatly help any of you just as much as it would us. Here is the link to the giveaway, http://www.momtobedby8.com/2012/06/200-amazon-gift-certificate-giveaway.html I am in no way affiliated with this website, it is not a scam, I just wanted to share the opportunity with my fellow PMG families. And if anyone else knows of any other opportunities like this I would love to hear about them, you can send me an email at geminilove913@yahoo Thank you. =) And good luck if you decide to enter! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 I think that the reply you just gave was horrible. If you didn't like it then don't respond at all. That is plain mean. Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 I personally have never met another parent with a child with PMG face to face and this group is a source of tremendous support, knowledge, and inspiration. I don't think anyone would intentionally offend anyone else, I think we're all just grasping at whatever straws we can to get that next ray of hope (or help) for our children. Please remember this and try to refrain from judging. We are all in the same boat...a boat that none of us chose to be in, but are in nonetheless. Showing compassion for one another will make all of our journeys more bearable. > > Why don't you ask your family and friends for a small donation. If > they don't know what you are dealing with then they are not friends or > you need to educate them more on what PMG is. It's so hard being a > parent and dealing with this. > > We bought our son one and he can barely use it now and he is 7. Maybe > it will help in the future. In anycase this is not a forum for others > to feel bad for each other and donate or suggest how to figure out how > you should get an ipad or money to travel somewhere. I want my public > school to buy an ipad for communication help but I'm not asking how do > get funds here. > > Sorry to vent but tired of reading these emails lately! > > > > > Sent from my Verizon Wireless BlackBerry > > $200 Gift Card! =) > > I don't think there are any rules against posting this here, but if so > please just let me know. As I have been trying so hard to apply for > grants and help to get my daughter an Ipad for a communication and > learning device I have had no luck, I started venturing out and > finding other giveaways from blogs and such, entering as many as > possible. As we all know, any kind of help is worth trying for right? > I just entered to win a $200 Amazon Gift Card, and to earn an extra > entry it asked me to share it with a community such as facebook, or > anything else. So I immediately thought of everyone here first. I > would much rather share this with all of you than anyone else as I > know it would greatly help any of you just as much as it would us. > > Here is the link to the giveaway, > http://www.momtobedby8.com/2012/06/200-amazon-gift-certificate-giveaway.html > > I am in no way affiliated with this website, it is not a scam, I just > wanted to share the opportunity with my fellow PMG families. And if > anyone else knows of any other opportunities like this I would love to > hear about them, you can send me an email at geminilove913@yahoo > > Thank you. =) And good luck if you decide to enter! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 I think some parents/loved ones have been dealing with PMG for a long time, others for a period and still others are newly inducted members to a club nobody ever asked to join. Let's be kind. Let's be a place where nobody has to worry about saying something " wrong " . I know that I often feel " wrong " or " inadequate "  in a world where I have to be my kid's constant advocate without be too strident or too bitchy, where others have no idea what it takes to navigate the terrifying journey that faces parents and caregivers and loved ones of kids with PMG. PMG stinks. And perhaps nobody gets that better than all of us. If we don't like somebody asking for money, then, let's just ignore. I know we are all in different financial situations. If you can give..give. If you can't, don't. If you need to ask, do. I say let's do that for one another. But if you disagree, that's okay too. Just delete this post...delete....it's such a great button.  karen ________________________________ To: polymicrogyria Sent: Saturday, June 16, 2012 3:26 PM Subject: Re: $200 Gift Card! =)  Why don't you ask your family and friends for a small donation. If they don't know what you are dealing with then they are not friends or you need to educate them more on what PMG is. It's so hard being a parent and dealing with this. We bought our son one and he can barely use it now and he is 7. Maybe it will help in the future. In anycase this is not a forum for others to feel bad for each other and donate or suggest how to figure out how you should get an ipad or money to travel somewhere. I want my public school to buy an ipad for communication help but I'm not asking how do get funds here. Sorry to vent but tired of reading these emails lately! Sent from my Verizon Wireless BlackBerry $200 Gift Card! =) I don't think there are any rules against posting this here, but if so please just let me know. As I have been trying so hard to apply for grants and help to get my daughter an Ipad for a communication and learning device I have had no luck, I started venturing out and finding other giveaways from blogs and such, entering as many as possible. As we all know, any kind of help is worth trying for right? I just entered to win a $200 Amazon Gift Card, and to earn an extra entry it asked me to share it with a community such as facebook, or anything else. So I immediately thought of everyone here first. I would much rather share this with all of you than anyone else as I know it would greatly help any of you just as much as it would us. Here is the link to the giveaway, http://www.momtobedby8.com/2012/06/200-amazon-gift-certificate-giveaway.html I am in no way affiliated with this website, it is not a scam, I just wanted to share the opportunity with my fellow PMG families. And if anyone else knows of any other opportunities like this I would love to hear about them, you can send me an email at geminilove913@yahoo Thank you. =) And good luck if you decide to enter! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2012 Report Share Posted June 17, 2012 Maybe my original post was a bit confusing? I was not asking anybody for money or donations, I was simply trying to share the opportunity I had found to give anyone else interested a chance to win the $200 as well. It does not help my chances what so ever if anyone enters or not, I just thought all of you could surely use an extra $200 just as much as my family could. > > I don't think there are any rules against posting this here, but if so please just let me know. As I have been trying so hard to apply for grants and help to get my daughter an Ipad for a communication and learning device I have had no luck, I started venturing out and finding other giveaways from blogs and such, entering as many as possible. As we all know, any kind of help is worth trying for right? I just entered to win a $200 Amazon Gift Card, and to earn an extra entry it asked me to share it with a community such as facebook, or anything else. So I immediately thought of everyone here first. I would much rather share this with all of you than anyone else as I know it would greatly help any of you just as much as it would us. > > Here is the link to the giveaway, http://www.momtobedby8.com/2012/06/200-amazon-gift-certificate-giveaway.html > > I am in no way affiliated with this website, it is not a scam, I just wanted to share the opportunity with my fellow PMG families. And if anyone else knows of any other opportunities like this I would love to hear about them, you can send me an email at geminilove913@yahoo > > Thank you. =) And good luck if you decide to enter! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2012 Report Share Posted June 17, 2012 I think the post was fine to share - just be cautious of these types of promotions - you don't know who you are sharing your information with. This particular promotion has no privacy policy on it at all so who knows what they are doing with your info. Information is worth a lot of $$ to some and can be resold. Nothing's ever free. : ) Sent from FirstClass with my iPhone polymicrogyria writes: > > > >Maybe my original post was a bit confusing? I was not asking anybody for money >or donations, I was simply trying to share the opportunity I had found to give >anyone else interested a chance to win the $200 as well. It does not help my >chances what so ever if anyone enters or not, I just thought all of you could >surely use an extra $200 just as much as my family could. > > >> >> I don't think there are any rules against posting this here, but if so >please just let me know. As I have been trying so hard to apply for grants and >help to get my daughter an Ipad for a communication and learning device I have >had no luck, I started venturing out and finding other giveaways from blogs >and such, entering as many as possible. As we all know, any kind of help is >worth trying for right? I just entered to win a $200 Amazon Gift Card, and to >earn an extra entry it asked me to share it with a community such as facebook, >or anything else. So I immediately thought of everyone here first. I would >much rather share this with all of you than anyone else as I know it would >greatly help any of you just as much as it would us. >> >> Here is the link to the giveaway, [ >http://www.momtobedby8.com/2012/06/200-amazon-gift-certificate-giveaway.html >]http://www.momtobedby8.com/2012/06/200-amazon-gift-certificate-giveaway.html >> >> I am in no way affiliated with this website, it is not a scam, I just wanted >to share the opportunity with my fellow PMG families. And if anyone else knows >of any other opportunities like this I would love to hear about them, you can >send me an email at geminilove913@yahoo >> >> Thank you. =) And good luck if you decide to enter! >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2012 Report Share Posted June 17, 2012 We need to support each other emotionally to keep going.  Just ignore $$$$ stuff if you don't want anything to do with it. We all have alot of needs and just try to find answers. ________________________________ To: " polymicrogyria " <polymicrogyria > Sent: Saturday, June 16, 2012 10:11 PM Subject: Re: $200 Gift Card! =)  I think some parents/loved ones have been dealing with PMG for a long time, others for a period and still others are newly inducted members to a club nobody ever asked to join. Let's be kind. Let's be a place where nobody has to worry about saying something " wrong " . I know that I often feel " wrong " or " inadequate "  in a world where I have to be my kid's constant advocate without be too strident or too bitchy, where others have no idea what it takes to navigate the terrifying journey that faces parents and caregivers and loved ones of kids with PMG. PMG stinks. And perhaps nobody gets that better than all of us. If we don't like somebody asking for money, then, let's just ignore. I know we are all in different financial situations. If you can give..give. If you can't, don't. If you need to ask, do. I say let's do that for one another. But if you disagree, that's okay too. Just delete this post...delete....it's such a great button.  karen ________________________________ From: " mailto:ajh282001%40yahoo.com " <mailto:ajh282001%40yahoo.com> To: mailto:polymicrogyria%40yahoogroups.com Sent: Saturday, June 16, 2012 3:26 PM Subject: Re: $200 Gift Card! =)  Why don't you ask your family and friends for a small donation. If they don't know what you are dealing with then they are not friends or you need to educate them more on what PMG is. It's so hard being a parent and dealing with this. We bought our son one and he can barely use it now and he is 7. Maybe it will help in the future. In anycase this is not a forum for others to feel bad for each other and donate or suggest how to figure out how you should get an ipad or money to travel somewhere. I want my public school to buy an ipad for communication help but I'm not asking how do get funds here. Sorry to vent but tired of reading these emails lately! Sent from my Verizon Wireless BlackBerry $200 Gift Card! =) I don't think there are any rules against posting this here, but if so please just let me know. As I have been trying so hard to apply for grants and help to get my daughter an Ipad for a communication and learning device I have had no luck, I started venturing out and finding other giveaways from blogs and such, entering as many as possible. As we all know, any kind of help is worth trying for right? I just entered to win a $200 Amazon Gift Card, and to earn an extra entry it asked me to share it with a community such as facebook, or anything else. So I immediately thought of everyone here first. I would much rather share this with all of you than anyone else as I know it would greatly help any of you just as much as it would us. Here is the link to the giveaway, http://www.momtobedby8.com/2012/06/200-amazon-gift-certificate-giveaway.html I am in no way affiliated with this website, it is not a scam, I just wanted to share the opportunity with my fellow PMG families. And if anyone else knows of any other opportunities like this I would love to hear about them, you can send me an email at geminilove913@yahoo Thank you. =) And good luck if you decide to enter! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2012 Report Share Posted June 17, 2012 Why do I get some emails, but not others? Sent from my iPhone > We need to support each other emotionally to keep going. Just ignore $$$$ stuff if you don't want anything to do with it. We all have alot of needs and just try to find answers. > > ________________________________ > > To: " polymicrogyria " <polymicrogyria > > Sent: Saturday, June 16, 2012 10:11 PM > Subject: Re: $200 Gift Card! =) > > > > > I think some parents/loved ones have been dealing with PMG for a long time, others for a period and still others are newly inducted members to a club nobody ever asked to join. Let's be kind. Let's be a place where nobody has to worry about saying something " wrong " . I know that I often feel " wrong " or " inadequate " in a world where I have to be my kid's constant advocate without be too strident or too bitchy, where others have no idea what it takes to navigate the terrifying journey that faces parents and caregivers and loved ones of kids with PMG. PMG stinks. And perhaps nobody gets that better than all of us. If we don't like somebody asking for money, then, let's just ignore. I know we are all in different financial situations. If you can give..give. If you can't, don't. If you need to ask, do. I say let's do that for one another. But if you disagree, that's okay too. Just delete this post...delete....it's such a great button. > > karen > > ________________________________ > From: " mailto:ajh282001%40yahoo.com " <mailto:ajh282001%40yahoo.com> > To: mailto:polymicrogyria%40yahoogroups.com > Sent: Saturday, June 16, 2012 3:26 PM > Subject: Re: $200 Gift Card! =) > > > Why don't you ask your family and friends for a small donation. If they don't know what you are dealing with then they are not friends or you need to educate them more on what PMG is. It's so hard being a parent and dealing with this. > > We bought our son one and he can barely use it now and he is 7. Maybe it will help in the future. In anycase this is not a forum for others to feel bad for each other and donate or suggest how to figure out how you should get an ipad or money to travel somewhere. I want my public school to buy an ipad for communication help but I'm not asking how do get funds here. > > Sorry to vent but tired of reading these emails lately! > > Sent from my Verizon Wireless BlackBerry > > $200 Gift Card! =) > > I don't think there are any rules against posting this here, but if so please just let me know. As I have been trying so hard to apply for grants and help to get my daughter an Ipad for a communication and learning device I have had no luck, I started venturing out and finding other giveaways from blogs and such, entering as many as possible. As we all know, any kind of help is worth trying for right? I just entered to win a $200 Amazon Gift Card, and to earn an extra entry it asked me to share it with a community such as facebook, or anything else. So I immediately thought of everyone here first. I would much rather share this with all of you than anyone else as I know it would greatly help any of you just as much as it would us. > > Here is the link to the giveaway, http://www.momtobedby8.com/2012/06/200-amazon-gift-certificate-giveaway.html > > I am in no way affiliated with this website, it is not a scam, I just wanted to share the opportunity with my fellow PMG families. And if anyone else knows of any other opportunities like this I would love to hear about them, you can send me an email at geminilove913@yahoo > > Thank you. =) And good luck if you decide to enter! > > Quote Link to comment Share on other sites More sharing options...
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