Re: QUESTIONS FROM A 53 YEAR SURVIVOR????

[Guest guest]

Glen, I don't have any information to offer as far as symptoms go, but I just

want to give you a standing ovation. Thank you for all your hard work. It

would be a great honor to meet you someday (I think we live fairly nearby).

> Hi everyone,

>

> I'm Glen B Schallman, new to the group and a 53 year survivor of PMG and a

HYPOTHALAMIC HAMARTOMA which is inoperable....looks like I'm the oldest living

survivor. do any of the children and young adults that have PMG experience the

symptoms that I have??? tingling on right side of head/face, TIA's, numbness

hands and feet, headaches, and chronic cough????? I live in the Seattle area and

can be contacted at or cell . and by the way I am

involved with the NBTS (NATIONAL BRAIN TUMOR SOCIETY), the ABTA (AMERICAN BRAIN

TUMOR ASSOCIATION and HOPEFORHH.ORG . I for 6 days have been in Washington D.C.

participation in the RACE FOR HOPE and have been on Capital Hill talking,

advocating to congress about brain tumors, brain deformities, conditions (PMG)

and I think they are going to start recognizing us all now!!! WOW!!!! gave them

our site www.pmgawareness.org<http://www.pmgawareness.org/> so let us see what

happen here on Capital Hill in the near future. I do travel the U.S. meeting

brain tumor survivors for HOPEFORHH.ORG and would like to meet PMG survivors.

plus I participate in the epilepsy walks, and brain tumor walks.. I am

participating in 13 walks this year. you can follow me on facebook or email me

at turtlebrain@...

>

> GLEN B SCHALLMAN

> 53 YEAR SURVIVOR OF PMG and a HYPOTHALAMIC HAMARTOMA.

>

>

[Guest guest]

Glen, you are such an amazing person! We are so happy to have found you! Keep

up the amazing work you are doing!

From: polymicrogyria [mailto:polymicrogyria ] On

Behalf Of Wilbur

Sent: Wednesday, May 09, 2012 4:07 AM

To: polymicrogyria

Subject: Re: QUESTIONS FROM A 53 YEAR SURVIVOR????

Glen, I don't have any information to offer as far as symptoms go, but I just

want to give you a standing ovation. Thank you for all your hard work. It would

be a great honor to meet you someday (I think we live fairly nearby).

On May 8, 2012, at 4:13 PM, " GLEN SCHALLMAN " <turtlebrain@...

<mailto:turtlebrain%40msn.com> > wrote:

> Hi everyone,

>

> I'm Glen B Schallman, new to the group and a 53 year survivor of PMG and a

HYPOTHALAMIC HAMARTOMA which is inoperable....looks like I'm the oldest living

survivor. do any of the children and young adults that have PMG experience the

symptoms that I have??? tingling on right side of head/face, TIA's, numbness

hands and feet, headaches, and chronic cough????? I live in the Seattle area and

can be contacted at or cell . and by the way I am

involved with the NBTS (NATIONAL BRAIN TUMOR SOCIETY), the ABTA (AMERICAN BRAIN

TUMOR ASSOCIATION and HOPEFORHH.ORG . I for 6 days have been in Washington D.C.

participation in the RACE FOR HOPE and have been on Capital Hill talking,

advocating to congress about brain tumors, brain deformities, conditions (PMG)

and I think they are going to start recognizing us all now!!! WOW!!!! gave them

our site www.pmgawareness.org<http://www.pmgawareness.org/> so let us see what

happen here on Capital Hill in the near future. I do travel the U.S. meeting

brain tumor survivors for HOPEFORHH.ORG and would like to meet PMG survivors.

plus I participate in the epilepsy walks, and brain tumor walks.. I am

participating in 13 walks this year. you can follow me on facebook or email me

at turtlebrain@... <mailto:turtlebrain%40msn.com>

<mailto:turtlebrain@... <mailto:turtlebrain%40msn.com> >

>

> GLEN B SCHALLMAN

> 53 YEAR SURVIVOR OF PMG and a HYPOTHALAMIC HAMARTOMA.

>

>

[Guest guest]

hey ,

where are you located?

Re: QUESTIONS FROM A 53 YEAR SURVIVOR????

Glen, I don't have any information to offer as far as symptoms go, but I just

want to give you a standing ovation. Thank you for all your hard work. It would

be a great honor to meet you someday (I think we live fairly nearby).

On May 8, 2012, at 4:13 PM, " GLEN SCHALLMAN "

> wrote:

> Hi everyone,

>

> I'm Glen B Schallman, new to the group and a 53 year survivor of PMG and a

HYPOTHALAMIC HAMARTOMA which is inoperable....looks like I'm the oldest living

survivor. do any of the children and young adults that have PMG experience the

symptoms that I have??? tingling on right side of head/face, TIA's, numbness

hands and feet, headaches, and chronic cough????? I live in the Seattle area and

can be contacted at or cell . and by the way I am

involved with the NBTS (NATIONAL BRAIN TUMOR SOCIETY), the ABTA (AMERICAN BRAIN

TUMOR ASSOCIATION and HOPEFORHH.ORG . I for 6 days have been in Washington D.C.

participation in the RACE FOR HOPE and have been on Capital Hill talking,

advocating to congress about brain tumors, brain deformities, conditions (PMG)

and I think they are going to start recognizing us all now!!! WOW!!!! gave them

our site

www.pmgawareness.org<http://www.pmgawareness.org/<http://www.pmgawareness.org/>>

so let us see what happen here on Capital Hill in the near future. I do travel

the U.S. meeting brain tumor survivors for HOPEFORHH.ORG and would like to meet

PMG survivors. plus I participate in the epilepsy walks, and brain tumor walks..

I am participating in 13 walks this year. you can follow me on facebook or email

me at

turtlebrain@...<mailto:turtlebrain%40msn.com><mailto:turtlebrain@...<mai\

lto:turtlebrain%40msn.com>>

>

> GLEN B SCHALLMAN

> 53 YEAR SURVIVOR OF PMG and a HYPOTHALAMIC HAMARTOMA.

>

>