Re: Medications for PMG kids

[Guest guest]

Finlay (10, BPP Microcephaly)

For spasticity : Baclofen

For sleeping & repression of epileptic activity : Frisium (clobazam)

For sleeping : Melatonine

For drooling :

Glycopyrroniumbromide ( we do not think it works very well and are planning

to discuss with doctors to stop it)

Medications for PMG kids

We need your help. If your child is on any medications or supplements, can

you please reply? We will use this information to build a Medications page

at www.pmgawareness.org. Your information will be an invaluable help to all

those who need information about medications and supplements for PMG.

Thanks!

Catrina

[Guest guest]

Maureen took Trileptal, Zonegran, with almost no change to her daily seizures.

Switching to Sabril got them down to about weekly, and adding Topamax to that

got them to about monthly.

Since April of 2011, she has been on the ketogenic diet, and hasn't had a single

seizure!

For constipation, we tried lactulose, with little success.

Now she does a regimen of Miralax, Benefiber, and Culturelle, in with her diet.

We supplement Ca and Vitamin D with her special formula.

To: polymicrogyria

From: catrina1118@...

Date: Mon, 12 Mar 2012 01:44:41 +0000

Subject: Medications for PMG kids

Thank you to all who contributed to our website's page for Medications

related to PMG.

We had a lot of responses, and no surprise that most were related to seizures.

I was surprised not to see any mentions for sleep and very few vitamins, herbal

supplements, or homeopathic supplements.

It's not too late, though. If you want to add more, please feel free!

Thank you all, again, for your support!

Catrina

[Guest guest]

Infantile spasms are a particular kind of seizures that kids with PMG seem to

have (more than the typically developing kids, anyway)

Medications for PMG kids

We need your help. If your child is on any medications or supplements, can you

please reply? We will use this information to build a Medications page at

www.pmgawareness.org. Your information will be an invaluable help to all those

who need information about medications and supplements for PMG.

Thanks!

Catrina