Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 I would totally agree with what has said about nicely informing the previous doctors about your new diagnosis. I've had 13 knee surgeries but many orthopods said there was nothing wrong, nothing they could do, etc. I wrote them nice letters and just told them about the tests, surgeries, etc so that another person can be helped from my misdiagnosis. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Hi Christy: It sounds like your parents are very concerned about you and the fact that your case has not been well-diagnosed while time just ticks away. Since they are older than you, of course they are much more aware of the passage of time and the fact that misdiagnoses can cause life-altering complications in some instances. I know it is probably scary to you to tell a doctor that a more accurate diagnosis has been made than the one they gave you, but if a doctor is never made aware of their errors they will continue believing that they are diagnosing correctly. So then their future patients suffer because the doctor continues doing the wrong things. That isn't to say that the doctor is a meanie who is arbitrarily misdiagnosing - rather, the doctor may not have time to keep current with the medical literature and research so he goes by older theories that may no longer pertain. I don't think it is rubbing a doctor's face in anything to let him know where he has misdiagnosed - it is important that he knows this so that he doesn't continue to make the same errors in the future. For the sake of patients that come after you, it is important that the doctor know that he has been pursuing an incorrect course. Doctors are human beings, too, and should not be feared. They won't bite if they are advised that they have been off the mark. I was misdiagnosed for 12 years and because of that I now have some serious medical problems that resulted from that misdiagnosis. In my case, there were nine doctors involved who failed to do the right tests and ask the questions that needed asking. I did get in touch with as many of these doctors as I was able to, and as far as I know none of them went to pieces because they were so advised. My most fervent hope is that they approached their other patients differently, and were more thorough in their approach rather than continually try to dispense anti-depressants. After being made to try nine different anti-depressants with all sorts of bad reactions happening, I think the case has been made that my pituitary failure caused my symptoms, not my mind. It is a normal human reaction to feel angry when one is misdiagnosed for a period of time. It usually means that one has had to go through that period with all the frightening symptoms and pain with no answers forthcoming. I was angry for a long time and still do feel some anger but I have a great therapist who has helped me channel that anger into more productive paths. I now do as much as possible in the area of chronic pain patient advocacy and feel very rewarded by my involvement. I hope you can see a bit of your parents side in this - if they didn't care so much about you, they wouldn't be as concerned about these issues as they presently are. Take care! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Exactly! She can never be the one who was wrong or out of line. Then she would be the bad guy and her poor me act she likes to use to get pity would be ruined. If she thinks the card will make it all better, she is wrong. I am not even going to acknowledge it! > I just need to vent. You guys will be the only ones who will > understand! The last time I spoke to my nada is when she showed up > uninvited to my graduation in Dec. It was under the guise that she > was proud and wanted to be there with the family. Whatever, I told > her to get a hotel and gave her a ticket. Sometimes, its better not > to argue. Well, of course she goes into her rage and tried to ruin > the day because my step-mother was also there and " how dare I invite > her and then how dare I talk to her, blah blah blah. " She left town > in a rage calling me every name she could and telling me never to > talk to her again. I was happy because I didn't want to ever talk to > her again. > > K, well today is my birthday and I get a card from her. It > says, " Since you didn't get me anything for mother's day, I wasn't > going to get you anything either but I wanted to be the better > person so I at least got you a card. " WHAT! She told me never to > talk to her again. I was doing what she wanted. The card was sappy > and signed Love forever. I just don't get it. > > > > > Send questions and/or concerns to ModOasis-owner > " Stop Walking on Eggshells, " a primer for non-BPs, can be ordered via 1-888-35-SHELL () and for the table of contents, go to: > http://www.BPDCentral.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I dont' know if anything will help but it sure is a great title. I may check it out just for the humor of it and see what happens! > I have a book, " GET OUT OF MY LIFE but first could you drive me and > Cheryl to the mall? (A Parent's Guide to the New Teenager) " by > E. Wolf. Evidently, your nada is a teenager. Maybe this > book would help you deal with her. > > - Dan Quote Link to comment Share on other sites More sharing options...
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