RE: Information from the NIH

[Guest guest]

This

may be outdated. Doctors are now calling a remission of more than 6

months a cure.

Fighting

the Dragon

From:

Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of redjaxjm

Sent: Tuesday, March 18, 2008 3:19 PM

To: Hepatitis_C_Central

Subject: Information from the NIH

A friend sent this to me this am and I felt

that I should post this

here.. We all know this info but once again, its good to remember that

even the NIH recognizes that there is no cure.....

There is no cure for hepatitis C.

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Checked by AVG.

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[Guest guest]

If that is true how are some people remissing after a year or more? Matchinsky wrote: This may be outdated. Doctors are now calling a remission of more than 6 months a cure. Fighting the Dragon From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of redjaxjmSent: Tuesday, March 18, 2008 3:19 PMTo: Hepatitis_C_Central Subject: Information from the NIH A friend sent this to me this am and I felt that I should post thishere.. We all know this info but once again, its good to remember thateven the NIH recognizes that there is no cure.....There is no cure for hepatitis C. No virus found in this outgoing message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM

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[Guest guest]

Do

you mean “relapsing?” I’m not sure. Is there

anyone on this list who has relapsed after a year or more? My doctor hems

and haws about it at first, but he has stated that if I remain virus free for 6

months after treatment, I can consider it a cure. I have seen other

reports to this effect as well.

Fighting

the Dragon

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of Sheena

Sent: Tuesday, March 18, 2008 3:48 PM

To: Hepatitis_C_Central

Subject: RE: Information from the NIH

If that is true how are some people remissing after a year

or more?

Matchinsky wrote:

This may be outdated. Doctors are now calling a remission of more than 6

months a cure.

No virus found in this outgoing message.

Checked by AVG.

Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM

[Guest guest]

Relapsing means that after being clear of cirus it comes back,, most ppl relapse after treatment in the first 6 months post tx.. But 'some' docs are calling SVR a cure but its NOT.. Even those who remain SVR for years have hep c still in their body, it hides in scar tissue, in other organs,, its just that our immune systems have been able to keep it from unleashing itself again.. They've found it in autopsies of ppl who have supposedly been svr for years....So,, its that our bodies keep it at bay but its not gone completely.. I've read that they think it cannot replicate if you have less than 50 iu/ml.. once I read it at 650 iu/ml but the last time it was 50iu/ml... the Lowest test they do now is the heptimax that tests down to 2-5 iu/ml... I've been negative with this test since before I finished tx,, but I would never fool myself into believing that Im cured.. As I said, I know a gal who was SVR for 10 years,,, who tested negative every year who relapsed after 10

YEARS because she went on an alcohol bender for 3 or 4 months,,, it was the same genotype etc,, she retreated and has now ben SVR AGAIN for nearly 2 or 3 years... Does that sound like she was cured??? NOPE.... We can do many things to help keep our immune system healthy enough to keep any virus left from reproducing,, but we can also do things to cause it to reproduce too... There is NO cure....I hate saying that,, but it IS the truth! Matchinsky wrote: Do you mean “relapsing?” I’m not sure. Is there anyone on this list who has relapsed after a year or more? My doctor hems and haws about it at first, but he has stated that if I remain virus free for 6 months after treatment, I can consider it a cure. I have seen other reports to this effect as well. Fighting the Dragon From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Sheena Sent: Tuesday, March 18, 2008 3:48 PM To:

Hepatitis_C_Central Subject: RE: Information from the NIH If that is true how are some people remissing after a year or more? Matchinsky <michaelboxernest (DOT) net> wrote: This may be outdated. Doctors are now

calling a remission of more than 6 months a cure. No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM Jackie

[Guest guest]

I also just heard of another gal who was SVR 3 1/2 years who has recently relapsed,, Im waiting to hear from her about it and when I do, Ill share the info here too Matchinsky wrote: Do you mean “relapsing?” I’m not sure. Is there anyone on this list who has relapsed after a year or

more? My doctor hems and haws about it at first, but he has stated that if I remain virus free for 6 months after treatment, I can consider it a cure. I have seen other reports to this effect as well. Fighting the Dragon From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Sheena Sent: Tuesday, March 18, 2008 3:48 PM To: Hepatitis_C_Central Subject: RE: Information from the NIH If that is true how are some people remissing after a

year or more? Matchinsky <michaelboxernest (DOT) net> wrote: This may be outdated. Doctors are now calling a remission of more than 6 months a cure. No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM Jackie

[Guest guest]

I

stand corrected.

Fighting

the Dragon

From:

Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of Jackie

on

Sent: Tuesday, March 18, 2008 4:13 PM

To: Hepatitis_C_Central

Subject: RE: Information from the NIH

Relapsing means that after being clear of cirus it comes back,, most ppl

relapse after treatment in the first 6 months post tx.. But 'some' docs are

calling SVR a cure but its NOT.. Even those who remain SVR for years have hep c

still in their body, it hides in scar tissue, in other organs,, its just that

our immune systems have been able to keep it from unleashing itself

again.. They've found it in autopsies of ppl who have supposedly been svr

for years....So,, its that our bodies keep it at bay but its not gone

completely.. I've read that they think it cannot replicate if you have less

than 50 iu/ml.. once I read it at 650 iu/ml but the last time it was 50iu/ml...

the Lowest test they do now is the heptimax that tests down to 2-5 iu/ml... I've

been negative with this test since before I finished tx,, but I would never

fool myself into believing that Im cured.. As I said, I know a gal who was SVR

for 10 years,,, who tested negative every year who re lapsed after 10 YEARS

because she went on an alcohol bender for 3 or 4 months,,, it was the same

genotype etc,, she retreated and has now ben SVR AGAIN for nearly 2 or 3

years... Does that sound like she was cured??? NOPE....

We can do many things to help keep our immune system healthy enough to keep any

virus left from reproducing,, but we can also do things to cause it to

reproduce too...

There is NO cure....I hate saying that,, but it IS the truth!

Matchinsky wrote:

Do you mean “relapsing?” I’m not sure. Is there

anyone on this list who has relapsed after a yea r or more? My doctor

hems and haws about it at first, but he has stated that if I remain virus free

for 6 months after treatment, I can consider it a cure. I have seen other

reports to this effect as well.

Fighting

the Dragon

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ]

On Behalf Of Sheena

Sent: Tuesday, March 18, 2008 3:48 PM

To: Hepatitis_C_Central

Subject: RE: Information from the NIH

If that is true how are some people remissing after a year

or more?

Matchinsky wrote:

This may be outdated. Doctors are now calling a remission of more than 6

months a cure.

No virus found in this

outgoing message.

Checked by AVG.

Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10

AM

Jackie

No virus found in this incoming message.

Checked by AVG.

Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10

AM

No virus found in this outgoing message.

Checked by AVG.

Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM

[Guest guest]

unfortunately, this is wishful thinking ,, Matchinsky wrote: This may be outdated. Doctors are now calling a remission of more than 6 months a cure. Fighting the Dragon From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of redjaxjm Sent: Tuesday, March 18, 2008 3:19 PM To: Hepatitis_C_Central Subject: Information from the NIH A friend sent this to me this am and I felt that I should post this here.. We all know this info but once again, its good to remember that even the NIH recognizes that there is no cure..... There is no cure for hepatitis C. No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus

Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM Jackie

[Guest guest]

No honey,, you are not being corrected,, its something that 'many' docs are now using in an attempt to get more folks to use these drugs,,, but they are fooling many,, but not all,, Matchinsky wrote: I stand corrected. Fighting the Dragon From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on Sent: Tuesday, March 18, 2008 4:13 PM To: Hepatitis_C_Central Subject: RE: Information from the NIH Relapsing means that after being clear of cirus it comes back,, most ppl relapse after treatment in the first 6 months post tx.. But 'some' docs are calling SVR a cure but its NOT.. Even those who remain SVR for years have hep c still in their body, it hides in scar tissue, in other organs,, its just that our immune systems have been able to keep it from unleashing

itself again.. They've found it in autopsies of ppl who have supposedly been svr for years....So,, its that our bodies keep it at bay but its not gone completely.. I've read that they think it cannot replicate if you have less than 50 iu/ml.. once I read it at 650 iu/ml but the last time it was 50iu/ml... the Lowest test they do now is the heptimax that tests down to 2-5 iu/ml... I've been negative with this test since before I finished tx,, but I would never fool myself into believing that Im cured.. As I said, I know a gal who was SVR for 10 years,,, who tested negative every year who re lapsed after 10 YEARS because she went on an alcohol bender for 3 or 4 months,,, it was the same genotype etc,, she retreated and has now ben SVR AGAIN for nearly 2 or 3 years... Does that sound like she was cured??? NOPE.... We can do many things to help keep our immune system healthy enough to keep any virus left from reproducing,, but we can also do things to

cause it to reproduce too... There is NO cure....I hate saying that,, but it IS the truth! Matchinsky <michaelboxernest (DOT) net> wrote: Do you mean “relapsing?” I’m not sure. Is there anyone on this list who has relapsed after a yea r or more? My doctor hems and haws about it at first, but he has stated that if I remain virus free for 6 months after treatment, I can consider it a cure. I have seen other reports to this effect as well. Fighting the Dragon From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Sheena Sent: Tuesday, March 18, 2008 3:48 PM To: Hepatitis_C_Central Subject: RE: Information from the NIH If that is true how are some people remissing after a year or more?

Matchinsky <michaelboxernest (DOT) net> wrote: This may be outdated. Doctors are now calling a remission of more than 6 months a cure. No virus found in this outgoing message.

Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM Jackie No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM Jackie

[Guest guest]

I

knew the virus could hide in other tissue but did not know about it being found

in autopsies of those who had a SVR. Thanks for the info.

Fighting

the Dragon

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of Jackie

on

Sent: Tuesday, March 18, 2008 4:21 PM

To: Hepatitis_C_Central

Subject: RE: Information from the NIH

No honey,, you are not being corrected,, its something that 'many' docs are

now using in an attempt to get more folks to use these drugs,,, but they are

fooling many,, but not all,,

Matchinsky wrote:

I stand corrected.

No virus found in this outgoing message.

Checked by AVG.

Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM

[Guest guest]

, you're very welcome hon.. Matchinsky wrote: I knew the virus could hide in other tissue but did not know about it being found in autopsies of those who had a SVR. Thanks for the info. Fighting the Dragon From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on Sent: Tuesday, March 18, 2008 4:21 PM To: Hepatitis_C_Central Subject: RE: Information from the NIH No honey,, you are not being corrected,, its something that 'many' docs are now using in an attempt to get more folks to use these drugs,,, but they are fooling many,, but not all,, Matchinsky <michaelboxernest (DOT) net> wrote: I stand corrected. No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM Jackie

[Guest guest]

Yes, indeed, and actually you can count yourself darn lucky after 6 months, and then it is best to continue to take really good care of yourself. Even certain meds can cause a relapse, as of course can alcohol.. I would never fully trust even the best doctor, they may mean well, but tend to be way too busy, keep doing your own research.. Sheena Matchinsky wrote: Do you mean “relapsing?” I’m not sure. Is there anyone on this list who has relapsed after a year or more? My doctor hems and haws about it at first, but he has stated that if I remain virus free for 6 months after treatment, I can consider it a cure. I have seen other reports to this effect as well. Fighting the Dragon From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of SheenaSent: Tuesday,

March 18, 2008 3:48 PMTo: Hepatitis_C_Central Subject: RE: Information from the NIH If that is true how are some people remissing after a year or more? Matchinsky <michaelboxernest (DOT) net> wrote: This may be outdated. Doctors are now calling a remission of more than 6 months a

cure. No virus found in this outgoing message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM

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[Guest guest]

Lee honey,, I hope it IS a cure for you and for all of us.. Im not gonna argue with you on this,,, I hope you're right... I've been SVR for 5 years and I hope I never relapse.. I guess if you're in that 1-3% who do relapse, it has to be almost harder to take than the original diagnosis.. but, just for the record, I know this gal who relapsed after 10 years and alcohol was the ONLY risk factor she had.. she did not use IV drugs, nor snort any drugs, not expose herself to anyone else's blood, nor did she receive blood or have risky sex etc,, she just relapsed... I hope she is just one of the anomoly's out there,, jaxHere's to your SVR for ever hon... Im so happy that you're there!!!Lee wrote: I had to post on this. I know Jackie doesn't agree (We've debated this one before), but I consider myself cured and so does my doctor. First, that article is way outdated. It refers to pegyalated interferon as new. Most studies that I have seen show a relapse rate of 1-3% post SVR, which is pretty good, and then you have to factor in that some of this relapse group is actually reinfection from IV drug use. I'll never find it, but I read a study last year, where they got suspicious when some of the relapsers relapsed with a different genotype. As far as finding trace HVC in autopsies. Just because it is there doen't mean that it is active. If you look hard enough you could find traces of measles and other viruses that people have had

throughout their lives When Jackie's freind went on her binge, who know's what else she could have done to get reinfected. Also, of the very few people who do actually relapse I would like to know what stage of liver damage that they had prior to treatment. If they had a lot of scarring, I could see how the virus could hide in a part of the liver that may have been isolated. I was stage 1, grade 1 before treatment and have reached SVR so I consider it a cure. LEE > Matchinsky wrote: > Do you mean "relapsing?" I'm not sure. Is there anyone on this list who has relapsed after a year or more? My doctor hems and haws about it at first, but he has stated that if I remain virus free for 6 months after treatment, I can consider it a cure. I have seen other reports to this effect as well. > > >

> > Fighting the Dragon > > > From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Sheena > Sent: Tuesday, March 18, 2008 3:48 PM > To: Hepatitis_C_Central > Subject: RE: Information from the NIH > > > > If that is true how are some people remissing after a year or more? > > > > > > > > Matchinsky wrote: > > This may be outdated. Doctors are now calling a remission of more than 6 months a

cure. > > > > > > > > > > > > > No virus found in this outgoing message. > Checked by AVG. > Version: 7.5.519 / Virus Database: 269.21.7/1333 - Release Date: 3/18/2008 8:10 AM > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > Jackie