Guest guest Posted April 27, 2005 Report Share Posted April 27, 2005 Dear Group, Please join me in welcoming our newest member, Colleen Whittaker who is our second PG member to join today. I have added your Case History to our " Member Medical History " Files on the Group site and posted it below. You now have full EN Group privileges. You are set to get all our EN Group emails, and since we are an active group, you may wish to have the email stop and read or post from the group site: http://health.groups.yahoo.com/group/erythema_nodosum_Group/ just type in your Yahoo ID:tempest 128 and secret password. Please avail yourself of our PG Forum in our Files Section. It is a collection of some of our PG Members conversations that you may find quite informative. Your description of PG's pain is so very vivid. I do believe agony is an apt description. I am sure you will find both information and support here. Welcome! Colleen Whittaker's Case History 4/27/05 1. Your name and age: Colleen Whittaker 51 years old 2. Your location Hamilton Ontario Canada 3. Your email address: tempest128@... 4. Your Yahoo ID tempest 128 5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. There is a 15 centimetre ulcer on lower left leg, it has spread to the to various sized ulcers all over the left foot. The only clear areas of the left foot are the ball of the foot and arch as a blood blister that I had on my heel is now pyoderma gangreneosum. Before the diagnosis I was in agony I have never experienced that level of pain before in my life. It felt like being branded all over the left leg below the knee constantly, there were also constant " lightning bolts " that is the only way I can explain it where even areas unaffected seemed to be on fire constantly. I also have cellulitis that further seemed to complicate the issue. Since the punch biopsies and the diagnosis at least the pain is at a manageable level, however it is spreading. I want to be able to get information and givr and get support from others who understand what this feels like and share the ups and downs with others. I feel we need all the support we can get. 6. List any other health conditions.hypertension, Hepatitis B and C, and artiosclarosis(poor blood circulation to the leg, a cataract on my right eye that I see the cataract surgeon May 8th 2005. I have on and off IBS, and vasculitis. Just diagnosed with either Rhuematoid or Ostioarthritis....there is some debate currently over which one it is....as Hepatitis C can cause a false positive result in the blood test for RA. 7. State what medications or treatments you take for EN, and their effectiveness: Currently they are using insite gel, mepital and mesorb and gauze dressing to hold it in place with a mesh stocking. The,mesorb is changed daily, irrigation with sterile water as I cannot stand the saline, gentle wiping, a reapplication of insite gel and then it is rebandaged. The mepatil is changed every 4 to 7 days, originally it was changed daily. Of course I try to stay off it. Currently my life is going to the wound clinic and not much else. The Drug Protocol is as follows: Daily : Apo Prednisone 5mg take 7 pills all at once with food. Altace 10 mg one capsule twice daily(hypertension) Ratio- Diltiazem CD take one capsule twice daily ( hypertension) Apo Ciproflox 500 mg take one tablet twice daily. ( pyoderma gangreneosum) Novo Cloxin 500 mg take one capsule four times daily ( pyoderma gangreneosum) Novo Hydrazide 25 mg take one tablet a day( hypertension) Apo Hydroxyquine 200 mg take one table a day ( arthritis) Amitriptiyline take two tablets 2 hours before bedtime. ( pyoderma gangreneosum) Ratio Oxycocet take four tablets daily as needed for break through pain. (pyoderma gangreneosum) pain management. Oxycontin 10 mg take one tablet twice daily (pyoderma gangreneosum) pain mangement. Ratio Ranitidine take one tablet twice daily Calcium and low dose aspirin also once a day. I take a multivitamin for seniors, Vitamin D, flax oil, Vitamin E, and B complex 8. When did you first get erythema nodosum or PG? It started as a small sore in late December 2004 9. How long have you had erythema nodosum or PG? Since late December 2004 was diagnosed in mid March 1005 10. Do you agree to treat all EN members with respect? Yes 11.Do you agree to post NO advertisements for any products or services? Yes 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) Yahoo Treat people as if they were what they ought to be and you will help them become what they are capable of becoming Johann Wolfgang Von Goethe Quote Link to comment Share on other sites More sharing options...
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