Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Dear , Thanks for sending in your Questionnaire. I have added the information to our " Member Medical History " Files on the Group site and posted it below. You now have Full EN Group privileges. Remember that you can go to the EN Group site whenever you like by going to : http://health.groups.yahoo.com/group/erythema_nodosum_Group/ and logging on with your Yahoo ID and secret password. You do NOT have to have the group emails delivered to be a member here. I must say that dr's in the UK take EN more seriously than in the US. I have heard of quite a few EN patients going to hospital in the UK for it, but in the USA they usually send you home unless you are at " death's door " . Shabby show America! Love, ********* 1. Your name and age: Pedley, 31. My husband is the EN sufferer. He is 40. 2. Your location Scarborough, North Yorkshire, UK 3. Your email address: bendilina@... 4. Your Yahoo ID Bendilina 5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. Steve first had EN in Feb this year. He was prescribed penicillin and told that people only get this once in their life (!) and that would be that. Then in april he found the lumps in the same place and returned but a lot worse! He was signed off work and ended up in hospital for a week on IV antibiotics. When he came out he was on sticks to aid his walking. He's been off work for six weeks. Todays his first day back. His legs still aren't better. Both legs still have red lumps - all meeting together, you can't differentiate between each nodule. We believe they have started off with a throat infection. Both time's he went to bed with lemsips thinking he was coming down with flu - both times woke up with both his legs swollen and tender. He's back at the doctors tomorrow and we are concerned he'll be signed off again and how he employers will react. We have joined so that we can find out as much as we can - hoping that will help us make informed decisions about his treatment and care. 6. List any other health conditions. Steve was diagnosed with Herpes in Oct 03. That was the only episode of it he's ever had. But with it effecting the immune system, surely there is a possible link? 7. State what medications or treatments you take for EN, and their effectiveness: Steve's been on penicillin, ibuprofen, dihydrochloride, prednisone and paracetamol. He has also tried homeopathy, but as this was taken during a flare up it did not work and the EN came back worse than before. Going to try again when his legs are better. 8. When did you first get erythema nodosum or PG? February 2005 9. How long have you had erythema nodosum or PG? This last flare up has been just over 6 weeks long. The first was two weeks. 10. Do you agree to treat all EN members with respect? Yes 11.Do you agree to post NO advertisements for any products or services? I agree 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) Google search on Tesco website Quote Link to comment Share on other sites More sharing options...
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