Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 from Autumn (mom to Mark Cd5-Cd19 PID/ A1A, GERD, Samter's syndrome) Just to let you all know, did fine with his surgery/procedure today. GI showed us several pictures of 's esophagus....very inflamed and streaked with inflammation/disease from the reflux-GERD. The biopsies will be back by the 28th. They also checked him for bacteria overgrowth since he is an antibiotics all the time and has chronic belly pain. There was talk of the Nisson again, not a pleasant conversation. GI decided that they want to do another pH Probe this time while on medications to see if he still refluxes as bad as the last time the probe was done. We are to schedule it for midsummer. ENT told us that there was a lot of pus, a lot of scar tissue and a lot of swelling. They did not do as much as they wanted to because they felt that the scar tissue would get worse. 's scar tissue is from a combination of sinus disease and previous surgeries. 's breathing held out fine...they did have to give him some extra medication, however. Thanks to all those who have called or sent email. I will try to get back with all of you as soon as things are more settled...which should be tomorrow ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 We actually scheduled down-time into Louie's home schedule. We told him that it was a time for him to pursue his own interests (newspapers, tv, almanacs, maps) in his own room. We also told him that we would alert him 10 minutes from the end of down-time so that he could put the things away that he had gotten out. Louie has always been expected to keep his things in order. Not that he always *has*, you understand, but it's always been *expected* that he do so. Sometimes he needs help, more so when he was younger. The scheduling with a definite start/stop and an alert for clean-up worked well for us for years. Hope this helps! Annie, who loves ya annie@... -- Everyone thinks of changing the world, but no one thinks of changing himself. -- Leo Tolstoy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 That's great, Annie - I know personally how much Aspies benefit from clear schedules AND from down-time. Whenever possible, we try to let our son (both kids really) know exactly what is coming up for the day, and how likely some elements are to change. I get my down-time after everyone else has gone to bed; he doesn't have a regular time during the year, but during summer vacation, my wife usually assigns them 30 minutes a day to go to their rooms and just read. Actually, I have even more down-time since I started biking and riding the bus to work rather than driving. I bike to the transfer center, put the bike on the bus' bike rack, then get off wherever I like before work. I get a great combination of exercise (anywhere from 3 to 8 miles a day, depending on my mood) and quiet time to read, etc. > >Reply-To: autism-aspergers >To: autism-aspergers >Subject: Re: (no subject) >Date: Sun, 24 Jun 2001 08:21:56 -0600 > >We actually scheduled down-time into Louie's home schedule. We told >him that it was a time for him to pursue his own interests (newspapers, >tv, almanacs, maps) in his own room. We also told him that we would >alert him 10 minutes from the end of down-time so that he could put the >things away that he had gotten out. Louie has always been expected to >keep his things in order. Not that he always *has*, you understand, but >it's always been *expected* that he do so. Sometimes he needs help, >more so when he was younger. The scheduling with a definite start/stop >and an alert for clean-up worked well for us for years. > >Hope this helps! > >Annie, who loves ya >annie@... >-- >Everyone thinks of changing the world, but no one thinks of changing >himself. -- Leo Tolstoy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Unfortunately my experience getting a para was also unsuccessful, even though it was recommended by Emory Autism resource Center. Grayson was in the ready program here( similar to Head Start) when he turned 3 and stayed in it until he started Kindergarten. At that time he was doing so well in that envirionment (very controlled) that they discontinued services to him. I think that looking back this was a huge mistake because it was midway through the first grade before he actually began to receive services again(He had to fail first). This was terrible for his self-esteem and the services he did receive were not implemented properly. (his resource teacher said that since social problems were inherent with Apsies that there was no point in even attempting to teach). We go to private social skills therapy at Beyond Words in Atlanta and have for over a year. Between all this ant the other problems we had with public school (PE especially), we decided to try private school. That also didn't work out and now we are homeschooling (which i said never do). I think that schools tend to think high functioning kids like ours are lazy and don't really need services at least that was the response I got. Have you considered getting a lawyer? If you want to fight them you might have to consider this. Good Luck --- Kim Maag wrote: > I was at an IEP training last night put on by the > parent advocacy group > in our state. She said our school's have to provide > a FAPE--free and > appropriate public education; not necessarily the > best education. Of > course it is our jobs as parents to want the best > education for our > kids, but the school doesn't necessarily have to > provide it. I can't > say that I agree with her, but it is what the law > says. > > I'm preparing myself to " do battle " . My 5 y.o. with > high functioning > autism, ADHD, and allergies/asthma (particularly > mold) is due for an IEP > review in about a week. Since the IEP was written > last spring, we have > " independent evaluation results " that have not been > discussed as a > team. These results speak to his need for a > one-on-one teaching > assistant (para) and intensive speech and language > therapy, neither of > which the school thinks he needs. This year he is > in Head Start in the > morning with one-on-one support that I provided > through his waiver, and > attends ECSE in the afternoon (5 kids, 2 adults--all > kids on IEP's, > which they claim meets his need for socialization > with typically > developing peers--another story and why he is in > Head Start.) Any way, > when the school sees him in the setting they see him > in, they do not see > the need for these services. Thing is, he'll go to > kindergarten next > spring. > > This is where it gets complicated. We live in a > very small town which > has a very small school district with very old--and > moldy--schools. I > take my kids to a bigger neighboring town, partly > because of the mold > issues, partly because that's where I work and > related transportation > issues. If I would send him to the school district > we reside in, he > would probably get the para, but would be going to > school in a building > that would make him sick (not to mention the > transportation > inconveniences it would cause). If I keep him in > the school he is in, > they do not see the need for him to have these > services. At the IEP > meeting shortly before the outside eval they had cut > his speech from 45 > minutes a week to 10 minutes a month because " speech > is provided > everyday in the ECSE setting by the teacher and her > assistants " . But > next year he won't have an assistant and schools do > not like to give > services back. > > At the training I mentioned above, I asked questions > pertaining to this > and she said that he has to go into the setting and > fail, then I can go > back and ask for a para. We know this child has a > disability, he > experiences failure daily without being set up for > it. > > What is everybody else's experience on getting > one-on-one para's for > their child at school? Any advice? > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 LOL loved it, thanks. Cat > THINGS TO PONDER > > Can you cry under water? > > When I was young we used to go " skinny dipping, " now I just > " chunkydunk. " > > How important does a person have to be before they are considered > assassinated instead of just murdered? > > If money doesn't grow on trees then why do banks have branches? > > Since bread is square, then why is sandwich meat round? > > Why do you have to " put your two cents in " ...but it's only a " penny for > your > thoughts " ? Where's that extra penny going to? Taxes? > > Once you're in heaven, do you get stuck wearing the clothes you were > buried in for eternity? > > Why does a round pizza come in a square box? > > How is it that we put man on the moon before we figured out it would be > a good idea to put wheels on luggage? > > Why is it that people say they " slept like a baby " when babies wake up > like every two hours? > > If a deaf person has to go to court, is it still called a hearing? > > If you drink Pepsi at work in the Coke factory, will they fire you? > > Why are you IN a movie, but you are ON TV? > > Why do people pay to go up tall buildings and then put money in > binoculars to look at things on the ground? > > How come we choose from just two people for President and fifty for > Miss America? > > Why do doctors leave the room while you change? They're going to see > you naked anyway. > > If a 911 operator has a heart attack, whom does he/she call? > > I signed up for an exercise class and was told to wear loose- fitting > clothing. If I HAD any loose-fitting clothing, I wouldn't have signed > up in the first place! > > Wouldn't it be nice if whenever we messed up our life we could simply > press Ctrl Alt Delete' and start all over? > > Stress is when you wake up screaming and then you realize you haven't > fallen asleep yet. > > If raising children was going to be easy, it never would have started > with something called labor! > > > Living on earth is expensive, but it does included a round trip around the > sun. > > Eddie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 http://www.e-exercise.ws/ Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
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