Welcome, New Member La Beau/Case History

[Guest guest]

Dear ,

On behalf of all our members, welcome to our Erythema Nodosum Group!

Thanks for sending in your Questionnaire. I have added the information

to our " Member Medical History " Files on the Group site and posted it

below.

You now have Full EN Group privileges.

You are receiving ALL EN Group emails, and you can also go to the EN

Group site whenever you like:

http://health.groups.yahoo.com/group/erythema_nodosum_Group/

and logging on with your Yahoo ID and secret password.

You do not have to have the group emails delivered to be a member here.

I had my first EN bout at age 21 and was told I had phlebitis too

[after the first dr. said it was bug bites]. I have also noticed that

bumping the leg could start a flare up. I get mine only one or two

lumps in the inner left lower leg, and mine also seems to move up the

leg. From my reading this is a variation of EN called " EN Migrans " . It

is less painful than the classic case, yet plenty painful to me at times.

I also agree that leg elevation works best, and I can turn around a

flare quite quickly if I get bedrest. I have never used meds., and it

took me 5 yrs. to get properly diagnosed. ,

I live near you--I'm in Westminster CA in Orange County. Small world, huh?

I'm 58 now, so I've lived with EN for 37 yrs now. I am now in a longer

remission. I hope I am growing out of it. I am finally going into

menopause, so maybe that is part of it. Have you gone through it yet?

Sorry to bombard you with so many questions, I'm usually the one with

the answers due to all my research, but we don't have many older

members that have EN Migrans type to compare notes with. [as it is

quite rare]. I'm thrilled to have someone who has so much in common

with me join us!

Welcome to our friendly group!

Love,

*****

La Beau's Case History

slabeau@...

Date: Thu, 13 Apr 2006 23:51:05 -0700

1. Your name and age: 44

2. Your location: Whittier, CA

3. Your email address: slabeau@...

4. Your Yahoo ID bluuiezzz

5. Describe your erythema nodosum/PG symptoms or, if you do not have

EN or PG, please explain why you wish to join this group.

I had symptoms starting at age 16; I no longer have them as of maybe 3

years ago. My first time was when I was hit in the leg with a hockey

stick. I went to my Dr. when the red bump seemed to be moving up my

leg towards my knee. He said it was probably a new bump, then that

bump finally went away. The following year, when I was 17, I was hit

in the leg with a softball. One lump turned into two. I went to the

Dr. again and he again said it was just a new bump. Within weeks, my

legs were covered with lumps and I started walking with crutches

because my legs hurt so badly. I went to my Dr. and this time he

panicked, he admitted me to the hospital right away and they kept me

there for a week. They thought I might have phlebitis (spelling?),

they told me about some actress that had phlebitis and she let it go

too long without treatment and had to have her leg amputated. (What a

nice thing to tell a 17 year old). They made me stay in the hospital

bed for 1 whole week; I couldn't get up at all. They wrapped my legs

with gauze up to my thighs. They put a bar over the foot of my bed so

my sheets and blanket would not touch my legs. They gave me heparin

shots in my abdomen every morning. They also gave me pills everyday

but I can not recall now what they were, maybe codeine. After the end

of the week, all of my lumps were gone. They finally let me get out of

bed to go to the bathroom. But as I was getting out of bed, I hit my

leg on the bed railing (I forgot to mention they had bed railings on

both sides of me as if I were a small child that may fall out of bed)

and I immediately got a new bump. Shortly after they released me from

the hospital, I was sent to an allergist who determined that I had EN

and I was allergic to hormonal changes. He said it's different with

different people. Afterwards, I just dealt with it the best I could

with elevation. I would get lumps when I hit my leg or when I was

pregnant or they would just show up. The older I got, the longer the

bruises would stay. Sometimes the bruising was visible up to a year

after the lump went away. But for the past few years, I haven't been

getting them anymore. I hope I'm done.

6. List any other health conditions. Restless legs syndrome

7. State what medications or treatments you take for EN and their

effectiveness: elevation (works the best)

8. When did you first get erythema nodosum or PG? When I was 16

9. How long have you had erythema nodosum or PG? 28 years

10. Do you agree to treat all EN members with respect? Yes, of course

11. Do you agree to post NO advertisements for any products or

services? I agree

12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search,

referral from another group or person etc.) Google

[Guest guest]

Hi ,

I'm thrilled too that, for one, to find this site, and secondly, to hear from

someone that has what I have. I wish I had this technology when I was first

diagnosed. I'm happy to hear you are in remission and hope it stays that way. I

believe I am completely in remission since I've never gone this long without a

reoccurance. I am not going through menopuase yet but I'm getting close since I

rarely have a menstrual cycle. Do you think it's the age thing that causes

people to go into remission or are you thinking it may have something to do with

menopause?