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Re: FW: IgA Deficiency

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Hi Sue

I know exactly how you feel. It seems like one medication after another or

one doctor after another. It's funny when you go in and you can tell the

doctor what your kid has and needs and then they confirm your right. And the

cost believe me I know that one, we don't have insurance and we also have 2

that are getting IVIG and a different prescription it seems every week. Wish

I could give you some suggestions but I can't, they only thing I can do is

relate to what your going through.

Good Luck & Take Care

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Sue..

Before my son (12) was diagnosed at age 5, we had

one year that our medical expenses were in excess of

$100,000.00. Medication was 400.00 per month and we had

8 doctors.

Now we have two doctors and IVIG.

Don't give up and know you are not alone.

Everyone here is so supportive and you will learn

so much from being here.

Thanks for joining us..

Michele - mother to (12) IgG def, asthma, migraines,

bowel infections

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Sue,

Just a comment on the amount of money spent on prescriptions. In one year

we spent almost 8,000.00 on copayments and over the counter meds. We would

never have realized this if our tax preparer had not added it up and informed

us that we could get a credit for this.

Donna & Walt-asthma-ulcer-reflux-iga absent(maybe)

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