Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Dear Mel, On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added the information to our " Member Medical History " Files on the Group site and posted it below. You now have Full EN Group privileges. You are receiving ALL EN Group emails, and you can also go to the EN Group site whenever you like: http://health.groups.yahoo.com/group/erythema_nodosum_Group/ and logging on with your Yahoo ID and secret password. You do not have to have the group emails delivered to be a member here. You are the second member to join this week who has needed to be hospitalized. I'm so sorry you are having such a rough go. Your case illustrates several points: that even after a long remission EN can come back, and that once steriods are discontinued, the EN often returns. I am hoping the dr.s checked you for the most common EN triggers. Are you taking meds for the polycystic ovaries or any form of hormones? That could very well be what is causing the EN! There are other EN meds to try, but we must find that trigger to stop the EN for good. It's a pleasure to welcome another member from the UK. Love, ***** Mel Waltson's Case History 3/13/06 Name : Mel age 34 Location : Preston in Lancashire, England Email add : mel@... Yahoo id : moosam04 I first had EN about 9 yrs ago but havn't had it for the last 7 yrs. I have now had EN since the begining of Jan and still suffering. This time has been the worst, i was first put on bed rest and painkillers then a course of steriods, i was then put in hospital because the pain was so bad and i had severe joint pain. I couldn't even brush my hair or dress myself. I've had a lot of medication, i'm now on Dapsone but i'm still suffering. Just as one red lump goes another one appears my joints are still very bad to the extent i can hardly walk, i'm in a wheel chair most of the time. I've been told that if i'm not sore then i'm fine to walk around as normal but this just seems to put me back to were i was. Health : polisytic ovaries, depression Medicaton : Ibuprofen - not effective declfenac - not effective paracetemol - not effective trimadol - helps with pain morphine - helps with pain steriods - had a big course for a quite a few wks, this helped but it all flared up when they finished. dapsone - this doesn't seem to be working, this is all i'm on now apart from painkillers first got EN about 1997 i've had it this time since the start of Jan Yes Yes ask jeeves I hope this correct, i'm affraid i'm not very good on computers thanks Mel Quote Link to comment Share on other sites More sharing options...
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