Re: Re: Welcome, New Member /Case History

[Guest guest]

Hello , Welcome to the group. I empathize with your pain and the chronicity of your EN. I too have it almost constantly, and have so for close to 40 years. Some times worse (much worse) then others. I'm wondering if you noticed any difference during and after your pregnancies? For me, I was symptom free when pregnant, and then then a major flare up immediately after giving birth. Hormones, ya think? Diane S. Boston wrote: Thank you for the welcome. I have had this early teenage years. I havent had any sort of luck with any meds of course all the drs I have seen want to prescibe the same things that have already been given to me. I havent been on any sort of birth control at all so I know

that one is not my trigger. I wish I did know thats for sure. My husband doesnt really get it his answer is go to the dr. I find it pointless to go to the Dr when I have to tell them what it is. I think the most irritating part is I cant stand for people to touch my legs and my 2 year old wants to hug them because they are just his size and I have to say no Landon you cant it hurts or if he does I say ow and he says ok mom? You cant really tell a 2 yr old it hurts. My 6 yr old shes better she sees the knots as she calls them and says wow you really do have knots huh. I always feel like a hypochondriac complaining about my legs hurting and swelling. Well I apologize for rambling.Thanks for the welcome. > > Dear , > On behalf of all our

members, welcome to our Erythema Nodosum Group! > > Thanks for sending in your Questionnaire. I have added the information to our "Member Medical History" Files on the Group site and posted it below. > > You now have Full EN Group privileges. > > You are receiving ALL EN Group emails, and you can also go to the EN Group site whenever you like: > > http://health.groups.yahoo.com/group/erythema_nodosum_Group/ > > and logging on with your Yahoo ID and secret password. > > You do not have to have the group emails delivered to be a member here. > > So you've been struggling with

this since about age 14? That makes me wonder if it might be hormonally triggered for you. Are you taking any form of hormonal birth control? I have had EN for 37 years now. Mine started when I was 21, and like yours, it is chronic. Beleive me, it's not just Army dr's who know little about EN. Most of us, in all corners of the world, have that same problem. You will find a huge amount of info at this site. Ask any questions you want to, we're a very friendly group and we know exactly what you are living with. Welcome! > Love, > > > **** > Bernt's Case History > > 1/3/06 > > 1. Your name and age: Bernt, 26 > > 2. Your location Ft Rucker

Alabama > > 3. Your email address: dezzylou_99@y... > > 4. Your Yahoo ID dezzylou_99 > > 5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, > > please explain why you wish to join this group. I have had EN for about 11-12 > > years now. I have chronic flare ups. I have had biopsies confirming my EN. I > > have taken SSKI and Naproxen but have had no luck with them. My first flare up > > was on Christmas years ago and I got to celebrate another Christmas this year > > with it. Of course I was tired and my legs hurt and swelled until they felt as > > if

they were going to pop. And of course nodules that make you want to cry > > everytime something touches them. The funny thing with mine is that even when > > nodules are not elevated you can still feel them and are still painful to the > > touch. It pretty much is a constant thing. My husband is military and with the > > Army system I havent found anyone that knows about it I usually have to tell > > them what it is. > > 6. List any other health conditions. None > > 7. State what medications or treatments you take for EN, and their > > effectiveness: I am not on any at this time. Havent had any success

with any. > > 8. When did you first get erythema nodosum or PG? 11-12 years ago, > > 9. How long have you had erythema nodosum or PG? 11-12 yrs > > 10. Do you agree to treat all EN members with respect?yes > > 11.Do you agree to post NO advertisements for any products or services? yes > > 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral > > from another group or person etc.) yahoo > ******* > > > > > > > > > > > >

> > PS: Please join me in raising money for the > "Erythema Nodosum Research Fund" > > by searching the Internet with GoodSearch: > http://www.goodsearch.com > Thank you! > > > > > > > --------------------------------- > Yahoo! DSL Something to write home about. Just $16.99/mo. or less >

Yahoo! DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

Hello Diane, Thanks. I am fighting to get an appointment here this will be the first time I have been to a Dr here in Alabama. They have no appts and so I am calling everyone to get one. My legs feel like they will burst everytime I stand up! I had mine steadily all through my pregnancies also. I dont think that I get a break for good measure. Today talking to the clinics here I had to tell a few separate people what I had and what it was. That doesnt give me hope for the Drs either. My family medical history is long and includes about anything that you can imagine. So i think that my options for causes is limitless. Diane Shepard wrote: Hello ,Welcome to the group. I empathize with your pain and the chronicity of your EN. I too have it almost constantly, and have so

for close to 40 years. Some times worse (much worse) then others. I'm wondering if you noticed any difference during and after your pregnancies? For me, I was symptom free when pregnant, and then then a major flare up immediately after giving birth. Hormones, ya think?Diane S. Boston wrote: Thank you for the welcome. I have had this early teenage years. I havent had any sort of luck with any meds of course all the drs I have seen want to prescibe the same things that have already been given to me. I havent been on any sort of birth control at all so I know that one is not my trigger. I wish I did know thats for sure. My husband doesnt really get it his answer is go to the dr. I find it pointless to go to the Dr when I have to tell them what it is. I

think the most irritating part is I cant stand for people to touch my legs and my 2 year old wants to hug them because they are just his size and I have to say no Landon you cant it hurts or if he does I say ow and he says ok mom? You cant really tell a 2 yr old it hurts. My 6 yr old shes better she sees the knots as she calls them and says wow you really do have knots huh. I always feel like a hypochondriac complaining about my legs hurting and swelling. Well I apologize for rambling.Thanks for the welcome.>> Dear ,> On behalf of all our members, welcome to our Erythema Nodosum Group!> > Thanks for sending in your Questionnaire. I have added the information to our "Member Medical History" Files on the Group site and

posted it below.> > You now have Full EN Group privileges.> > You are receiving ALL EN Group emails, and you can also go to the EN Group site whenever you like:> > http://health.groups.yahoo.com/group/erythema_nodosum_Group/> > and logging on with your Yahoo ID and secret password.> > You do not have to have the group emails delivered to be a member here.> > So you've been struggling with this since about age 14? That makes me wonder if it might be hormonally triggered for you. Are you taking any form of hormonal birth control? I have had EN for 37 years now. Mine started when I was 21, and like yours, it is chronic. Beleive me, it's not

just Army dr's who know little about EN. Most of us, in all corners of the world, have that same problem. You will find a huge amount of info at this site. Ask any questions you want to, we're a very friendly group and we know exactly what you are living with. Welcome!> Love,> > > ****> Bernt's Case History> > 1/3/06> > 1. Your name and age: Bernt, 26> > 2. Your location Ft Rucker Alabama> > 3. Your email address: dezzylou_99@y...> > 4. Your Yahoo ID dezzylou_99> > 5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, > > please

explain why you wish to join this group. I have had EN for about 11-12 > > years now. I have chronic flare ups. I have had biopsies confirming my EN. I > > have taken SSKI and Naproxen but have had no luck with them. My first flare up > > was on Christmas years ago and I got to celebrate another Christmas this year > > with it. Of course I was tired and my legs hurt and swelled until they felt as > > if they were going to pop. And of course nodules that make you want to cry > > everytime something touches them. The funny thing with mine is that even when > > nodules are not elevated you can still feel them and are still painful to the > > touch. It

pretty much is a constant thing. My husband is military and with the > > Army system I havent found anyone that knows about it I usually have to tell > > them what it is.> > 6. List any other health conditions. None> > 7. State what medications or treatments you take for EN, and their > > effectiveness: I am not on any at this time. Havent had any success with any.> > 8. When did you first get erythema nodosum or PG? 11-12 years ago,> > 9. How long have you had erythema nodosum or PG? 11-12 yrs> > 10. Do you agree to treat all EN members with respect?yes> > 11.Do you agree to post NO advertisements for

any products or services? yes> > 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral > > from another group or person etc.) yahoo> *******> > > > > > > > > > > > > > PS: Please join me in raising money for the > "Erythema Nodosum Research Fund" > > by searching the Internet with GoodSearch:> http://www.goodsearch.com> Thank you!> >

> > > > > ---------------------------------> Yahoo! DSL Something to write home about. Just $16.99/mo. or less> Yahoo! DSL Something to write home about. Just $16.99/mo. or less ~~

Yahoo! DSL Something to write home about. Just $16.99/mo. or less