Guest guest Posted June 18, 1999 Report Share Posted June 18, 1999 UNSUBSCRIBE ME PLEASE THANK YOU AND BEST WISHES TO ALL OF YOU ---------- > From: Autti@... > To: PedPIDonelist > Subject: Re: Atlanta/Egleston > Date: Thursday, June 24, 1999 3:21 PM > > From: Autti@... > > Ursula, > > Good luck tomorrow...I will be thinking good thoughts for you and Macey. > Hope she is feeling better ) > > Autumn mom to Mark Cd5-Cd19 PID/ GED, A1A, Samter's syndrome > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 Ursula, Good luck with the Endo appt!!!! Things are awfully quiet here in TX. The only thing flaring right now is Cassie's asthma and her tummy has been bothering her. We took in a sample today for culture. Let us know how everything checks out. Belinda Rose, mom to Cassie, igg immunodefficient, asthma, chronic sinusitis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 Ursula, Good luck tomorrow...I will be thinking good thoughts for you and Macey. Hope she is feeling better ) Autumn mom to Mark Cd5-Cd19 PID/ GED, A1A, Samter's syndrome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 Well we're headed off to Egleston in Atlanta tomorrow for the Endo consult. Hopefully they were able to go ahead and schedule any tests needed. we went ahead and sent back in the patient info and history sheets and all the test results that were done here. Maybe that way they could go ahead and determine what might need to be done there. If they do the fluid deprivation test then we will stay overnight and start it Friday morning. So our appt is at 9am Thursday which means a whole day in town with nothing in-between. Macey was started back on Albuterol today with Nalex DH added. She has a cough and since we're going out of town and into a clinic at a large hospital I wanted to jump right on it. I'm not sure what brought on the cough, it rained here today so it could be the change in the barometric pressure. Or it could be that I actually took this child to a $1 kiddie matinee yesterday and there were wall to wall daycare kids there. I figured if she's going to school in the fall then we've got to start somewhere. Go figure. Ursula Holleman Macey's mom (4 yr. old with CVID, asthma, GERD, sinus disease, grade I left kidney reflux, Sensory Integration Disorder) ICQ # 28592349 http://www.icq.com PedPID email list archives http://www.netpage.org/PedPID/_PedPID/ PedPID email list introductions http://www.netpage.org/PedPID/_PedPID/introduction.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 Urusla, Good luck at he appt tomorrow. Let us know. God Bless === and (neutropenic and immune deficent) mom to Evan 6, 4 and Abby Rose (almost 2) _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 Ursula, Which hospital will you be going to? We'll be at ish Rite encology/hemotology office in the Dr.'s building. Zach's infusion is at 9:30 and we're usually there til 2 or so. I can't meet you Thursday, sorry, Tom's out of town & I'm trying my best to keep Zach somewhat isolated, only taking him places that are absolutely necessary (and he loves it...He HATES running around, he would stay home 24/7 if I let him) until our vacation next Fri....I know you understand. But call me & we can chat..., leave a message cuz we're usually outside and we rarely ans. the phone. Have a safe trip Wife to Tom, Mom to 6 yr Zach, ???(don't know the specific type) PID, GERD, chronic sinusitis, IVIG, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 OOPS I left out 1 important detail....Zach's infusion is on Fri. At 12:08 AM 6/25/99 -0400, you wrote: > > >Ursula, > >Which hospital will you be going to? We'll be at ish Rite >encology/hemotology office in the Dr.'s building. Zach's infusion is at >9:30 and we're usually there til 2 or so. I can't meet you Thursday, sorry, >Tom's out of town & I'm trying my best to keep Zach somewhat isolated, only >taking him places that are absolutely necessary (and he loves it...He HATES >running around, he would stay home 24/7 if I let him) until our vacation >next Fri....I know you understand. But call me & we can >chat..., leave a message cuz we're usually outside and we rarely >ans. the phone. > >Have a safe trip > > >Wife to Tom, Mom to 6 yr Zach, ???(don't know the specific type) PID, GERD, >chronic sinusitis, IVIG, > > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
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