Re: Need A Little Expertise

[Guest guest]

has ever been tested for bacterial overgrowth? This is where the

good bacteria in the stomach is overrun by bad bacteria? Macey had it last

year and had similar symptoms. Or, I'm afraid to say it, alot of the

parents I've heard from have mentioned this. It seems to just come with the

territory. Good luck with the testing. If the ped is hesitant ask for a

referral to a ped GI.

Ursula Holleman

Macey's mom (4 yr. old with CVID, asthma, GERD, sinus disease, grade I

left kidney reflux, Sensory Integration Disorder)

ICQ # 28592349

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[Guest guest]

Dear Sue: My daughter suffered from stomach pains for three months till our

primary care sent her to gastrenterologist and she had bleeding peptic

ulcer. They did a simple blood test to look for certain bacteria and she

was positive. Simple antibiotic and prilosec acid inhibitor has helped to

heal the ulcer. Good Luck

annette; mom of cvid, chronic asthma , sinusitis, peptic ulcer

>

>Reply-To: PedPIDonelist

>To: " PedPID " <PedPIDonelist>

>Subject: Need A Little Expertise

>Date: Wed, 5 May 1999 10:46:50 -0400

>

>Hi!

>

>I have a situation with , that I'm not sure what to do.

>

>For about 3 weeks now, he has been experiencing stomach pains, above and

>below the navel. Back in December, we had him in Emergency, thinking it

>was appendicitis. Wrong. He had an obstructed bowel, which took a long

>time to cure. Now, with these recent stomach pains, it's not the same.

>The pain fluctuates too much. It's not to the point of writhing pain, but

>I don't want it to get that far!

>

>Has anyone dealt with anything like this? As you all know, my pediatrician

>needs a little push in the right direction, so anything you can suggest, I

>will take to him.

>

>I'm calling in the morning for an appointment, and hopefully pushing for

>tests this time.

>

>Thanks for your help on this one. Another thanks for your help with our

> " skin bumps " . I'm taking the Elocan name to the doctor and see if this can

>work.

>

>Sue G. - Mom to M & M

> 6 1/2 (IgA & IgG Deficient)

>Mackenzie 18 months (IgA Deficient)

>

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[Guest guest]

Sue,

Could be bacteria overgrowth of the gut. It would certainly cause the type

of pain that you describe. GI overgrowth of the gut can be very common in

PIDs.

Autumn mom to Mark Cd5-Cd19 PID/ Samters syndrome, GERD, A1A

[Guest guest]

Dear Sue,

My daughter is ten. They prescribed prilosec 10 mg at bedtime for her. It

works alot better for her than zantac. Thanks for answering back. It makes

my day alot better. I wish I had known about this group ten years ago. It

helps with the isolation issue. God bless.

annette(mom of alissa cvid chronic asthma

P.s. Good luck with and Jake ! I hope their stomachaches go away.

>From: MEACH9960@...

>Reply-To: PedPIDonelist

>To: PedPIDonelist

>Subject: Re: Need A Little Expertise

>Date: Thu, 6 May 1999 15:29:22 EDT

>

>From: MEACH9960@...

>

>Dear Annette,

>

>If you don't mind my asking, how old is your daughter? I use Prilosec

>myself

>and think it is a wonderful drug and have often wondered about giving it to

>my boys. They both take Zantac. My little guy always has a stomach ache

>and

>so I was wondering if it would be a good choice for him.

>

>Thanks for you help

>

>Sue W Mom to and Jake---CVID, reflux, asthma, failure to thrive

>

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>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

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[Guest guest]

Dear Annette,

If you don't mind my asking, how old is your daughter? I use Prilosec myself

and think it is a wonderful drug and have often wondered about giving it to

my boys. They both take Zantac. My little guy always has a stomach ache and

so I was wondering if it would be a good choice for him.

Thanks for you help

Sue W Mom to and Jake---CVID, reflux, asthma, failure to thrive

[Guest guest]

Dear Annette,

Thanks for answering so quickly. I actually have a 10 year old son too.

Jake is 10. is 6. I too wish I had a group like this from the

start. It has been a long journey. I have been blessed with some very

supportive friends that seem to drop in and out when things get bad. I hope

Alissa is doing well right now. We have had a very long winter, but things

seem to be turning around.......YEA. We have a treatment tomorrow. The boys

get one every 2 weeks. They are going to increase Jake to 13.5 grams. We

have slowly titrating his amount since Sept. He has had some really bad

reactions. I hope all goes well for us this weekend.......

Thanks again and it is great to talk to you.

Sue W Mom to Jake (10) and (6)...CVID, reflux, asthma, lots of

sinus surgeries

[Guest guest]

Dear Sue: I hope the boys treatment goes well. I hope you all have a

wonderful Mother's Day and remember how special you are to take care of two

of them. God Bless

annette mom of cvid asthma

>From: MEACH9960@...

>Reply-To: PedPIDonelist

>To: PedPIDonelist

>Subject: Re: Need A Little Expertise

>Date: Thu, 6 May 1999 19:42:33 EDT

>

>From: MEACH9960@...

>

>Dear Annette,

>

>Thanks for answering so quickly. I actually have a 10 year old son too.

>Jake is 10. is 6. I too wish I had a group like this from the

>start. It has been a long journey. I have been blessed with some very

>supportive friends that seem to drop in and out when things get bad. I

>hope

>Alissa is doing well right now. We have had a very long winter, but things

>seem to be turning around.......YEA. We have a treatment tomorrow. The

>boys

>get one every 2 weeks. They are going to increase Jake to 13.5 grams. We

>have slowly titrating his amount since Sept. He has had some really bad

>reactions. I hope all goes well for us this weekend.......

>

>Thanks again and it is great to talk to you.

>

>Sue W Mom to Jake (10) and (6)...CVID, reflux, asthma, lots of

>sinus surgeries

>

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>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

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[Guest guest]

Sue G...

My (12) has many bowel problems. He has bleeding and pain

but oddly enough it is not every day. He will have pain around

his navel area as you described in sometimes labor-like pains and

then some bleeding and then he usually passes a large stool and

then the pain seems to subside a few hours later. He has been

tested for every bacteria known to man and he has had colonoscopies,

many many exams and still no diagnosis. This has been going on

for about 5 years but not constant or steady.

The only thing that seems to help is a course of antibiotics but

the doctors still arent sure why. We recently decided to try

diet changes and increasing fluids (not a bad idea even if it

doesnt help) and for this past month we have had no problems.

Pediatrician felt he was becoming impacted but shouldnt be bleeding

in his stools. The immunologist is the one who suggested trying

the diet changes and the only other thing she suggested was to

make him have a regular bathroom (bowel movement) time every day.

This doesnt explain the bleeding but there appears to not be an

answer at this time.

I'll be listening for anyone else with bowel-pain-bleeding problems

to offer some suggestions..

Michele Johonson--mother to (12) IGG def., selective antibody

disease, asthma, migraines, bowel problems