Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Hello I have had the pain in the ankles and the swelling also pain in my foot and also the knees I do suffer from athritis as well but usually get no problem with my ankles unless I have a flare up I just put my feet up and take as much rest as possible and this helps I also use cold compresses on my ankles and that helps with the swelling, I have taken tablets in the past but they have not helped.my doctor just thinks it is part of the en as quite a lot of people with en suffer with the swelling of the ankles and knees whilst having a flare up hope this has been of some help. take care joint pain Does anyone else on the list with EN experience severe joint painwhen the EN flairs? I'm to the point of so much pain in my knees,ankles & wrists I can't sleep without pain meds. My ankles are soswollen & the joint so tight I can hardly walk. And my wrists can'tmove without pain. Anyway else experience this, if so what have yourDr.'s had to say about it?jewell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Joint Pain with EN Joints: Arthralgia occurs in more than 50% of patients and begins during the eruptive phase or precedes the eruption by 2-4 weeks. Erythema, swelling, and tenderness occur over the joint, sometimes with effusions. Joint tenderness and morning stiffness may occur. Any joint may be involved, but the ankles, knees, and wrist are affected most commonly. Synovitis resolves within a few weeks, but joint pain and stiffness may last up to 6 months. No destructive joint changes occur. Synovial fluid is acellular, and the rheumatoid factor is negative.I don't know if joint pain is associated with any particular EN trigger or why some of us (like me) are spared. I have never had joint pain associated with EN--just the lumps and very ocassionally malaise or low grade fever. I have felt the ever so slight labored breathing , which makes me think I am closer to the sarc. trigger than others, but this is purely subjective.I would love to know if joint pain is in any way a clue to which trigger is causing the EN. Maybe it means simply that there IS a trigger as opposed to being "idiopathic" like me. I too would like to know what Members Doctors have to say about joint pains.Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Hi Jewell,I can appreciate your finally finding others with EN after all these years. I had EN for 35 yrs. before I found others.My life with EN Are you getting a lot of rest including bedrest? Often pain is associated with edema and swelling. Leg elevation can help as well as elastic bandages or compression stockings. Although there is more info on the internet than previously, there really hasn't been much original research done. That's why I was so happy to see that Mexican study I quoted earlier.I think we really need to step up the research. We can make it happen when we collect enough money to fund it ourselves. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 > > Does anyone else on the list with EN experience severe joint pain > when the EN flairs? I'm to the point of so much pain in my knees, > ankles & wrists I can't sleep without pain meds. My ankles are so > swollen & the joint so tight I can hardly walk. And my wrists can't > move without pain. Anyway else experience this, if so what have your > Dr.'s had to say about it? > > jewell > Hi!! I have extreme ankle and knee pain. No problems with my wrists though. It gets so bad that walking, as you said, becomes extremely painful. I am only 25 yrs old and at times I am very depressed during a flare up because the simplest things can be so painful. Im hoping we get some kind of a successful treatment soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 When a lump occurs near the joint --in my case the ankle, it can hurt, but I think that is mostly due to edema or swelling in my case. I don't have joint pain like others with EN. Using elastic bandages or compression stockings with leg elevation keeps the edema down for me. A rheumatologist can check out joint pain to see if there is underlying arthritis. There are many forms of arthritis and a rheumy is your best bet to figure out if you have it related to your EN.Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Jewell, Have been so busy trying to keep up with all the E-mails that come in from the group that I havent had time to do my case history yet, hopefully soon! I was diagnosed with EN last October and at that time I only had the bumps around my ankles and lower legs, but around Feb- March of this year I started to have horrible joint pain(went from walking 3 1/2 miles every other day to no walking at all only when I have to as is to painful. I went to the doctor thinking that something was wrong with me worse than the EN. Scared to death as I have always been extremely active. She then informed me it was part of the EN. Huge lifestyle change for me as when it comes to playing with the kids I am generally one of them. My doctor never told me there were other symptoms than just the bumps and having flu like symptoms. I was in the process of starting a childrens hiking club when all of this started. My doctor has since advised me not to as I cannot even hike anymore(very depressing). I work for our family business as the office manager which doesnt require alot of walking but just getting ready for work and getting the kids off is a slower process as I cant move like I used to. The only thing that I have found that helps is rest. My doctor prescribed something called Naproxin which seemed to help a little but I am unsure whether the joint pain is just deciding to calm down a little or whether its the Naproxin. Anyways something to try. Or mabe ask about it as she probably has heard of this. Hope you feel better soon!!!! Sincerely, (Naturegirl) juweell wrote: Does anyone else on the list with EN experience severe joint painwhen the EN flairs? I'm to the point of so much pain in my knees,ankles & wrists I can't sleep without pain meds. My ankles are soswollen & the joint so tight I can hardly walk. And my wrists can'tmove without pain. Anyway else experience this, if so what have yourDr.'s had to say about it?jewell Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Jewell, I am new here but in just the last 2 weeks my right ankle only has swelled so much and the pain in the joint felt like I had been rollerskating for a day. My Dr. really just showed me in his book that pain is treated with Ibuprofen...I take 3 geltabs of 200mg. and it seems to take the edge off. Also, try to elevate is really all i can think of. I did have some knee pain also. I am also wondering if there is something others take. Just didn't want you to think you are alone:-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Thanks. Yeah, elevation usually works, but not lately. Ibuprofen usually works, but not lately. I took 4 and went to bed. It went down a little, but as soon as I started walking around, it swelled back up. I can barely get my shoes on. The ibuprofen does take the edge off, but I can still feel the pressure of the swelling. I'm glad someone else knows what I'm going through. Thanks, Tawnya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 You might want to see if your Dr. will give you a prescription for Relafen it's an (NSAIDs). This worked when the pain was lesser & this in combination with Vicodin worked when it was really severe. jewells -- In erythema_nodosum_Group , " aloe73@... " wrote: > > Thanks. Yeah, elevation usually works, but not lately. Ibuprofen usually works, but not lately. I took 4 and went to bed. It went down a little, but as soon as I started walking around, it swelled back up. I can barely get my shoes on. The ibuprofen does take the edge off, but I can still feel the pressure of the swelling. I'm glad someone else knows what I'm going through. Thanks, Tawnya > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 My ankles get really bad. For example, my left leg was severely swollen for three days. Then the swelling went down but I got up this morning and my ankle was killing me. It went away for awhile, but has now returned. My ankles often hurt after and during an episode but I figured it was just cuz they're getting smushed by the swelling all the time. Sorry you're in pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 My problem is that I'm a legal secretary. I work a lot of hours and it takes a long time to get home. I generally leave the house at 6 a.m. and return around 7 p.m. So with those kind of hours, Monday through Friday, a Vicodin is impossible. However, I'm going to ask about the Relafen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 I was taking the Vicodin when I was off from work, I returned to work this past Monday, so I haven't taken it since. They first had me taking Ibuprofin but the 800mg ones but that just wasn't doing anything, then they gave me the Relafen and that seemed to work better. apparently it's prescribed more for Arthritis, so maybe that's why it worked better than then Ibupropin. The Prednisone they gave me seems to be helping me. I'm on it for another week yet. But the nodules have all gone down, they look bruise like now and the joint pain is way down. Still feeling tired and run down, but over all 100 times better than this time last week before the shot of Arsticort & the Prednisone. jewells > > My problem is that I'm a legal secretary. I work a lot of hours and it takes a long time to get home. I generally leave the house at 6 a.m. and return around 7 p.m. So with those kind of hours, Monday through Friday, a Vicodin is impossible. However, I'm going to ask about the Relafen. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2006 Report Share Posted June 4, 2006 I take Plaquenil(Hydrochloroquin) 200 mg twice a day plus Imuran 100mg a day. I take this for my Sarcoidosis. Sharon kcgirlleo wrote: Does anyone know much about Plaquenil? My joint pain became severe after I stopped my initial taper of Prednisone so they started me back up on Prednisone and added Plaquenil. They want me to taper off the prednisone in about 12 weeks when the Plaquenil will for sure be working because it takes 4-12 weeks to kick in. Then if I have the joint pain again it's back to square one. Anyone have any knowledge about this? I am one of those idiopathic EN people (no diagnosis yet anyways and negative tests so far).Thanks,> >> > --I had the same probelm after going off the Prenisone.The joint > pain> > disappeared after the Prednisone kicked in but after the 16 day > course> > was finished the joint pain reappeared, It seems to affect my > ankles> > the most and my feet & ankles swell. In the mornings I cna hardly> > walk. I've had to start taking the Relafin & Vicodin again. I > stopped> > taking them while on the Pred, because the joint pain wasn't that> > severe. I'm debating returning to the Dr. I have enough Relafin & > > Vicodin probably to last about 2 months. Not sure what to do. > > Anyway so to hear you're suffering with the joint pain too. That> > seems to be the worst part to me. When I had this about 24yrs ago > it> > seem attack my left wrist joint the most. This time around it's my> > ankles & feet. The later being much harder to deal with. When it > was> > my wrist I just used one of the braces people wear for carple > tunnel> > and took over the counter pain meds.Walking walking with this pain > is> > a little hardr to handle> Quote Link to comment Share on other sites More sharing options...
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