Re: More Venting!Why do parents of autistic kids feed them junk...

[Guest guest]

Obviously, you feel strongly about different therapies for autism.

I think we need to be careful though not to judge the actions or perceived lack of action by other parents. Honestly, we really don't know what another parent may have already tried with his or her child. And it's not our business. I think we need to consider that someone else might look at our choices of treatments as poor ones.

I've tried pretty much everything with my son, who will be 10 in 6 weeks. No diet ever made a discernible difference for him. Neither did enzymes. He's not on any special diet now. He eats fairly healthy but he took cheese crackers in for snack today. Does that make me a bad parent? I certainly don't think so.

So I guess vent away here, but I wouldn't be presuming anything where other parents are concerned. We all have extremely tough roads to travel and we do the best we can.

learn in school??? I sub-teach alot in my schools school! I was so upset today..there is a 10yr old autistic boy in the class, this is what he ate, doritos for snack and for lunch frosted flakes and a fruit roll up. So he ran out of the class twice and was defiant all day..hmmm wonder why?? SO I wrote a note to the parents that I felt his behavior was linked to the poor food choices he had today!!AM I really off here? How can a kid learn when they are fed JUNK?Do schools ever suggest special diets to parents who don't get it??or is that crossing the line??Thanks for letting me vent!!! Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

[Guest guest]

FWIW, , there is nothing easy about my life. I have been actively treating my son for EIGHT YEARS with biomedical treatments...and yet, he's still here, dealing with his disability. To imply that there are kids out there still living with autism because their parents didn't try hard enough is insulting. Many of us continue to try and plow through and live on the planet with hope in spite of people like you.

For some people it would seem that living with a life time of autism is easier that treating it. Its not a decision I can relate to, but there it is.Its a bit like a lot of people know that smoking will cause them harm, but they still do it. People get addicted to smoking. I'm sure a lot of people are addicted to their current way of life and find the concept of change just too difficult.Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

[Guest guest]

I've heard Dr McCandless won't take a new patient unless they've been

strict GFCF.

I think that's fair enough.

I know there is a lot of anecdotal reports from people saying this or

that didn't help. Fair enough. Maybe it didn't. But if I was the

parent I'd want to work out WHY it didn't work.

When there is hardcore scientific evidence as to how the body works

even beyond clinical trials, I don't blame a doctor for being hard core

on it.

Just because you can't notice a reaction, doesn't mean a reaction is

not taking place.

Trish64@... wrote:

Obviously, you feel strongly about different therapies for

autism.

I think we need to be careful though not to judge the actions or

perceived lack of action by other parents. Honestly, we really don't

know what another parent may have already tried with his or her child.

And it's not our business. I think we need to consider that someone

else might look at our choices of treatments as poor ones.

I've tried pretty much everything with my son, who will be 10 in

6 weeks. No diet ever made a discernible difference for him. Neither

did enzymes. He's not on any special diet now. He eats fairly healthy

but he took cheese crackers in for snack today. Does that make me a

bad parent? I certainly don't think so.

So I guess vent away here, but I wouldn't be presuming anything

where other parents are concerned. We all have extremely tough roads

to travel and we do the best we can.

In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight Time,

pudgeo9999 writes:

learn in school??? I sub-teach alot in my schools school! I was

so

upset today..there is a 10yr old autistic boy in the class, this is

what he ate, doritos for snack and for lunch frosted flakes and a fruit

roll up. So he ran out of the class twice and was defiant all day..hmmm

wonder why?? SO I wrote a note to the parents that I felt his behavior

was linked to the poor food choices he had today!!AM I really off here?

How can a kid learn when they are fed JUNK?

Do schools ever suggest special diets to parents who don't get it??

or is that crossing the line??

Thanks for letting me vent!!!

Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

[Guest guest]

I'd like to add that to anyone else, my son's lunch may not look like it's the healthiest but I do everything I can to create a nutritious lunch that he will actually eat.  Todays lunch was homemade pizza with cauliflower baked in the crust, spinach,white beans and butternut squash in the sauce, a chocolate cupcake with spinach and blueberries in it and chocolate icing (made from avocado), pretzels, an apple and chocolate dari free (chocolate syrup, not the chocolate flavored dari free - I think the chocolate flavored dari free has too much sugar and chocolate).  When I make things from scratch I try to make it sugar free and I *always* add veggies in there somehow.  I do what I can with what he will eat to make it healthier and more nutritious.  I even add veggies to box mixes.  At least when he eats a cupcake he also eats a serving of veggies which he won't touch with a ten foot pole.  So you never know what people are actually giving their children.You're right, many parents do feed their kids horrible things but really, you don't know what's going on in their house, what they've done, what they haven't done, etc.  Don't judge them if you don't want to be judged for what you do or don't do.  CherylObviously, you feel strongly about different therapies for autism.   I think we need to be careful though not to judge the actions or perceived lack of action by other parents.  Honestly, we really don't know what another parent may have already tried with his or her child.  And it's not our business.  I think we need to consider that someone else might look at our choices of treatments as poor ones. I've tried pretty much everything with my son, who will be 10 in 6 weeks.  No diet ever made a discernible difference for him.  Neither did enzymes.  He's not on any special diet now.  He eats fairly healthy but he took cheese crackers in for snack today.  Does that make me a bad parent?  I certainly don't think so. So I guess vent away here, but I wouldn't be presuming anything where other parents are concerned.  We all have extremely tough roads to travel and we do the best we can.  In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight Time, pudgeo9999 writes:learn in school??? I sub-teach alot in my schools school! I was so upset today..there is a 10yr old autistic boy in the class, this is what he ate, doritos for snack and for lunch frosted flakes and a fruit roll up. So he ran out of the class twice and was defiant all day..hmmm wonder why?? SO I wrote a note to the parents that I felt his behavior was linked to the poor food choices he had today!!AM I really off here? How can a kid learn when they are fed JUNK?Do schools ever suggest special diets to parents who don't get it??or is that crossing the line??Thanks for letting me vent!!! Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

[Guest guest]

I feed my grandson cereal w/banana on the

rare occasion for supper when the cupboard is bare or I don’t have time

to cook something special for him….(now I feel guilty) shhh… don’t

tell anyone but sometimes when no one is looking I eat ice cream for lunch!

On ice cream days I pick fights with my co-workers and run around the parking

lot a couple of times but no one seems to notice….or suggest the salad

would have been a better choice.

If you were only subbing and not even this

child’s regular teacher I would be highly offended if you had sent that

note home…..….it is crossing the line IMHO

Chris

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Trish64@...

Sent: Monday, April 21, 2008 9:01

PM

To: mb12 valtrex

Subject: Re: More

Venting!Why do parents of autistic kids feed them junk...

Obviously, you feel strongly about

different therapies for autism.

I think we need to be careful

though not to judge the actions or perceived lack of action by other parents.

Honestly, we really don't know what another parent may have already tried with

his or her child. And it's not our business. I think we need to

consider that someone else might look at our choices of treatments as poor

ones.

I've tried pretty much everything with my

son, who will be 10 in 6 weeks. No diet ever made a discernible

difference for him. Neither did enzymes. He's not on any special

diet now. He eats fairly healthy but he took cheese crackers in for snack

today. Does that make me a bad parent? I certainly don't think so.

So I guess vent away here, but I wouldn't

be presuming anything where other parents are concerned. We all have

extremely tough roads to travel and we do the best we can.

In a message dated 4/21/2008 9:54:34 P.M.

Eastern Daylight Time, pudgeo9999 writes:

learn in school??? I

sub-teach alot in my schools school! I was so

upset today..there is a 10yr old autistic boy in the class, this is

what he ate, doritos for snack and for lunch frosted flakes and a fruit

roll up. So he ran out of the class twice and was defiant all day..hmmm

wonder why?? SO I wrote a note to the parents that I felt his behavior

was linked to the poor food choices he had today!!AM I really off here?

How can a kid learn when they are fed JUNK?

Do schools ever suggest special diets to parents who don't get it??

or is that crossing the line??

Thanks for letting me vent!!!

Need a new ride? Check out the largest

site for U.S.

used car listings at AOL Autos.

[Guest guest]

----- Original Message -----

From: Reynolds

I've heard Dr McCandless won't take a new patient unless they've been strict GFCF.I think that's fair enough.

====>No, not if your child is one of the very few who actually got worse on the diet, then it's harmful. This is a cookie cutter approach that is not helpful.

It didn't work here because she had no allergy or intolerance or peptides to milk and was so low in cysteine and methionine (that milk provides) that she lost language (I consider this very serious) and weight, got huge dark circles under her eyes and had frequent weeping episodes (low tryptophan).

Nothing, absolutely nothing is true for all of our kids and this attitude was not helpful for us as many dans! followed it and we got kicked out of our dans! practice because we failed to follow the gf/cf diet.

I'm not angry, but this is a sore point with me, she wasn't an anecdote, she was a real live kid who deserved individual attention for the $750 an hour we were paying.

Trish64aol wrote:

Obviously, you feel strongly about different therapies for autism.

I think we need to be careful though not to judge the actions or perceived lack of action by other parents. Honestly, we really don't know what another parent may have already tried with his or her child. And it's not our business. I think we need to consider that someone else might look at our choices of treatments as poor ones.

I've tried pretty much everything with my son, who will be 10 in 6 weeks. No diet ever made a discernible difference for him. Neither did enzymes. He's not on any special diet now. He eats fairly healthy but he took cheese crackers in for snack today. Does that make me a bad parent? I certainly don't think so.

So I guess vent away here, but I wouldn't be presuming anything where other parents are concerned. We all have extremely tough roads to travel and we do the best we can.

In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight Time, pudgeo9999 writes:

learn in school??? I sub-teach alot in my schools school! I was so upset today..there is a 10yr old autistic boy in the class, this is what he ate, doritos for snack and for lunch frosted flakes and a fruit roll up. So he ran out of the class twice and was defiant all day..hmmm wonder why?? SO I wrote a note to the parents that I felt his behavior was linked to the poor food choices he had today!!AM I really off here? How can a kid learn when they are fed JUNK?Do schools ever suggest special diets to parents who don't get it??or is that crossing the line??Thanks for letting me vent!!!

Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

[Guest guest]

Sure you have to customise your treatment for every child. That is

paramount I agree.

But there's also a lot of evidence that wheat and milk aren't very good

for anyone. We are the only species on the planet to drink the milk of

another species. There are plenty of cultures that survived without

cows milk.

wrote:

-----

Original Message -----

From:

Reynolds

I've heard Dr McCandless won't take a new patient unless they've

been strict GFCF.

I think that's fair enough.

====>No, not if your child is one of the very few who

actually got worse on the diet, then it's harmful. This is a cookie

cutter approach that is not helpful.

It didn't work here because she had no allergy or intolerance or

peptides to milk and was so low in cysteine and methionine (that milk

provides) that she lost language (I consider this very serious) and

weight, got huge dark circles under her eyes and had frequent weeping

episodes (low tryptophan).

Nothing, absolutely nothing is true for all of our kids and this

attitude was not helpful for us as many dans! followed it and we got

kicked out of our dans! practice because we failed to follow the gf/cf

diet.

I'm not angry, but this is a sore point with me, she wasn't an

anecdote, she was a real live kid who deserved individual attention for

the $750 an hour we were paying.

Trish64aol wrote:

Obviously, you feel strongly about different therapies for

autism.

I think we need to be careful though not to judge the

actions or perceived lack of action by other parents. Honestly, we

really don't know what another parent may have already tried with his

or her child. And it's not our business. I think we need to consider

that someone else might look at our choices of treatments as poor ones.

I've tried pretty much everything with my son, who will be

10 in 6 weeks. No diet ever made a discernible difference for him.

Neither did enzymes. He's not on any special diet now. He eats fairly

healthy but he took cheese crackers in for snack today. Does that make

me a bad parent? I certainly don't think so.

So I guess vent away here, but I wouldn't be presuming

anything where other parents are concerned. We all have extremely

tough roads to travel and we do the best we can.

In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

Time, pudgeo9999 writes:

learn in school??? I sub-teach alot in my schools school! I

was so

upset today..there is a 10yr old autistic boy in the class, this is

what he ate, doritos for snack and for lunch frosted flakes and a fruit

roll up. So he ran out of the class twice and was defiant all day..hmmm

wonder why?? SO I wrote a note to the parents that I felt his behavior

was linked to the poor food choices he had today!!AM I really off here?

How can a kid learn when they are fed JUNK?

Do schools ever suggest special diets to parents who don't get it??

or is that crossing the line??

Thanks for letting me vent!!!

Need a new ride? Check out the largest site for U.S. used

car listings at AOL Autos.

[Guest guest]

Sure you have to customise your treatment for every child. That is

paramount I agree.

But there's also a lot of evidence that wheat and milk aren't very good

for anyone. We are the only species on the planet to drink the milk of

another species. There are plenty of cultures that survived without

cows milk.

wrote:

-----

Original Message -----

From:

Reynolds

I've heard Dr McCandless won't take a new patient unless they've

been strict GFCF.

I think that's fair enough.

====>No, not if your child is one of the very few who

actually got worse on the diet, then it's harmful. This is a cookie

cutter approach that is not helpful.

It didn't work here because she had no allergy or intolerance or

peptides to milk and was so low in cysteine and methionine (that milk

provides) that she lost language (I consider this very serious) and

weight, got huge dark circles under her eyes and had frequent weeping

episodes (low tryptophan).

Nothing, absolutely nothing is true for all of our kids and this

attitude was not helpful for us as many dans! followed it and we got

kicked out of our dans! practice because we failed to follow the gf/cf

diet.

I'm not angry, but this is a sore point with me, she wasn't an

anecdote, she was a real live kid who deserved individual attention for

the $750 an hour we were paying.

Trish64aol wrote:

Obviously, you feel strongly about different therapies for

autism.

I think we need to be careful though not to judge the

actions or perceived lack of action by other parents. Honestly, we

really don't know what another parent may have already tried with his

or her child. And it's not our business. I think we need to consider

that someone else might look at our choices of treatments as poor ones.

I've tried pretty much everything with my son, who will be

10 in 6 weeks. No diet ever made a discernible difference for him.

Neither did enzymes. He's not on any special diet now. He eats fairly

healthy but he took cheese crackers in for snack today. Does that make

me a bad parent? I certainly don't think so.

So I guess vent away here, but I wouldn't be presuming

anything where other parents are concerned. We all have extremely

tough roads to travel and we do the best we can.

In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

Time, pudgeo9999 writes:

learn in school??? I sub-teach alot in my schools school! I

was so

upset today..there is a 10yr old autistic boy in the class, this is

what he ate, doritos for snack and for lunch frosted flakes and a fruit

roll up. So he ran out of the class twice and was defiant all day..hmmm

wonder why?? SO I wrote a note to the parents that I felt his behavior

was linked to the poor food choices he had today!!AM I really off here?

How can a kid learn when they are fed JUNK?

Do schools ever suggest special diets to parents who don't get it??

or is that crossing the line??

Thanks for letting me vent!!!

Need a new ride? Check out the largest site for U.S. used

car listings at AOL Autos.

[Guest guest]

Hey take it easy. Did I single you out? Maybe you are trying your

best for your child. How the hell would I know?

Just because YOU try doesn't mean everyone else does.

There's a lot of parents that don't because its not convenient for them.

I know about this first hand because I come from parents who put

themselves and their own comfort before all other things, including

their own children.

If your not that sort of parent, then thats good for your child.

Trish64@... wrote:

FWIW, , there is nothing easy about my life. I have been

actively treating my son for EIGHT YEARS with biomedical treatments...and

yet, he's still here, dealing with his disability. To imply that there

are kids out there still living with autism because their parents

didn't try hard enough is insulting. Many of us continue to try and

plow through and live on the planet with hope in spite of people like

you.

In a message dated 4/21/2008 11:12:25 P.M. Eastern Daylight

Time, peteralkamy writes:

For some people it would seem that living with a life time of

autism is easier that treating it. Its not a decision I can relate to,

but there it is.

Its a bit like a lot of people know that smoking will cause them harm,

but they still do it. People get addicted to smoking. I'm sure a lot

of people are addicted to their current way of life and find the

concept of change just too difficult.

Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

[Guest guest]

Hey take it easy. Did I single you out? Maybe you are trying your

best for your child. How the hell would I know?

Just because YOU try doesn't mean everyone else does.

There's a lot of parents that don't because its not convenient for them.

I know about this first hand because I come from parents who put

themselves and their own comfort before all other things, including

their own children.

If your not that sort of parent, then thats good for your child.

Trish64@... wrote:

FWIW, , there is nothing easy about my life. I have been

actively treating my son for EIGHT YEARS with biomedical treatments...and

yet, he's still here, dealing with his disability. To imply that there

are kids out there still living with autism because their parents

didn't try hard enough is insulting. Many of us continue to try and

plow through and live on the planet with hope in spite of people like

you.

In a message dated 4/21/2008 11:12:25 P.M. Eastern Daylight

Time, peteralkamy writes:

For some people it would seem that living with a life time of

autism is easier that treating it. Its not a decision I can relate to,

but there it is.

Its a bit like a lot of people know that smoking will cause them harm,

but they still do it. People get addicted to smoking. I'm sure a lot

of people are addicted to their current way of life and find the

concept of change just too difficult.

Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

[Guest guest]

I have definitely been enlightened by the replys. I really care about

the kid and it broke my heart to see him eating such crummy food! I

will be careful to not offend the parents.

I really want him to do well in school & be happy!!

> >

> > FWIW, , there is nothing easy about my life. I have been

> > actively treating my son for EIGHT YEARS with biomedical

> > treatments...and yet, he's still here, dealing with his

disability.

> > To imply that there are kids out there still living with autism

> > because their parents didn't try hard enough is insulting. Many

of us

> > continue to try and plow through and live on the planet with hope

in

> > spite of people like you.

> >

> > In a message dated 4/21/2008 11:12:25 P.M. Eastern Daylight Time,

> > peter@... writes:

> >

> > For some people it would seem that living with a life time of

> > autism is easier that treating it. Its not a decision I can

> > relate to, but there it is.

> >

> > Its a bit like a lot of people know that smoking will cause

them

> > harm, but they still do it. People get addicted to smoking.

I'm

> > sure a lot of people are addicted to their current way of

life and

> > find the concept of change just too difficult.

> >

> >

> >

> >

> > ------------------------------------------------------------------

------

> > Need a new ride? Check out the largest site for U.S. used car

listings

> > at AOL Autos <http://autos.aol.com/used?

NCID=aolcmp00300000002851>.

> >

>

[Guest guest]

I have definitely been enlightened by the replys. I really care about

the kid and it broke my heart to see him eating such crummy food! I

will be careful to not offend the parents.

I really want him to do well in school & be happy!!

> >

> > FWIW, , there is nothing easy about my life. I have been

> > actively treating my son for EIGHT YEARS with biomedical

> > treatments...and yet, he's still here, dealing with his

disability.

> > To imply that there are kids out there still living with autism

> > because their parents didn't try hard enough is insulting. Many

of us

> > continue to try and plow through and live on the planet with hope

in

> > spite of people like you.

> >

> > In a message dated 4/21/2008 11:12:25 P.M. Eastern Daylight Time,

> > peter@... writes:

> >

> > For some people it would seem that living with a life time of

> > autism is easier that treating it. Its not a decision I can

> > relate to, but there it is.

> >

> > Its a bit like a lot of people know that smoking will cause

them

> > harm, but they still do it. People get addicted to smoking.

I'm

> > sure a lot of people are addicted to their current way of

life and

> > find the concept of change just too difficult.

> >

> >

> >

> >

> > ------------------------------------------------------------------

------

> > Need a new ride? Check out the largest site for U.S. used car

listings

> > at AOL Autos <http://autos.aol.com/used?

NCID=aolcmp00300000002851>.

> >

>

[Guest guest]

I have definitely been enlightened by the replys. I really care about

the kid and it broke my heart to see him eating such crummy food! I

will be careful to not offend the parents.

I really want him to do well in school & be happy!!

> >

> > FWIW, , there is nothing easy about my life. I have been

> > actively treating my son for EIGHT YEARS with biomedical

> > treatments...and yet, he's still here, dealing with his

disability.

> > To imply that there are kids out there still living with autism

> > because their parents didn't try hard enough is insulting. Many

of us

> > continue to try and plow through and live on the planet with hope

in

> > spite of people like you.

> >

> > In a message dated 4/21/2008 11:12:25 P.M. Eastern Daylight Time,

> > peter@... writes:

> >

> > For some people it would seem that living with a life time of

> > autism is easier that treating it. Its not a decision I can

> > relate to, but there it is.

> >

> > Its a bit like a lot of people know that smoking will cause

them

> > harm, but they still do it. People get addicted to smoking.

I'm

> > sure a lot of people are addicted to their current way of

life and

> > find the concept of change just too difficult.

> >

> >

> >

> >

> > ------------------------------------------------------------------

------

> > Need a new ride? Check out the largest site for U.S. used car

listings

> > at AOL Autos <http://autos.aol.com/used?

NCID=aolcmp00300000002851>.

> >

>

[Guest guest]

----- Original Message -----

From: Reynolds

But there's also a lot of evidence that wheat and milk aren't very good for anyone. We are the only species on the planet to drink the milk of another species. There are plenty of cultures that survived without cows milk.

====>Did you read what I wrote? I don't think you heard me, but you did hit on another pet peeve I have about food and diets. Can't eat it? Then decide noone should ever eat the food under any circumstances, sour grapes.

Experts disagree, however there is just as much evidence that it's pretty near impossible to replace the nutrients in milk, ever read realmilk.com? And milk and wheat have sustained entire countries for generations, I can find evidence that any food, particularly meat, any meat, is bad for everyone.

I don't know if milk is good or bad for any/everyone, it WAS good/necessary for her and I'm asking that this fact be respected.

I'm happy to report she recovered, with the milk and wheat, but the point here is to make the best food choices for your particular child and leave the choices for other children to their parents, without the negative hyperbole and judging and deciding that a food group is bad for everyone, not true.

wrote:

----- Original Message -----

From: Reynolds

I've heard Dr McCandless won't take a new patient unless they've been strict GFCF.I think that's fair enough.

====>No, not if your child is one of the very few who actually got worse on the diet, then it's harmful. This is a cookie cutter approach that is not helpful.

It didn't work here because she had no allergy or intolerance or peptides to milk and was so low in cysteine and methionine (that milk provides) that she lost language (I consider this very serious) and weight, got huge dark circles under her eyes and had frequent weeping episodes (low tryptophan).

Nothing, absolutely nothing is true for all of our kids and this attitude was not helpful for us as many dans! followed it and we got kicked out of our dans! practice because we failed to follow the gf/cf diet.

I'm not angry, but this is a sore point with me, she wasn't an anecdote, she was a real live kid who deserved individual attention for the $750 an hour we were paying.

Trish64aol wrote:

Obviously, you feel strongly about different therapies for autism.

I think we need to be careful though not to judge the actions or perceived lack of action by other parents. Honestly, we really don't know what another parent may have already tried with his or her child. And it's not our business. I think we need to consider that someone else might look at our choices of treatments as poor ones.

I've tried pretty much everything with my son, who will be 10 in 6 weeks. No diet ever made a discernible difference for him. Neither did enzymes. He's not on any special diet now. He eats fairly healthy but he took cheese crackers in for snack today. Does that make me a bad parent? I certainly don't think so.

So I guess vent away here, but I wouldn't be presuming anything where other parents are concerned. We all have extremely tough roads to travel and we do the best we can.

In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight Time, pudgeo9999 writes:

learn in school??? I sub-teach alot in my schools school! I was so upset today..there is a 10yr old autistic boy in the class, this is what he ate, doritos for snack and for lunch frosted flakes and a fruit roll up. So he ran out of the class twice and was defiant all day..hmmm wonder why?? SO I wrote a note to the parents that I felt his behavior was linked to the poor food choices he had today!!AM I really off here? How can a kid learn when they are fed JUNK?Do schools ever suggest special diets to parents who don't get it??or is that crossing the line??Thanks for letting me vent!!!

Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

[Guest guest]

>

> I don't think anyone should judge another parent. This battle we

are facing is difficult enough and some of us didn't stumble onto

this sight until our children were much older (10, 11, 12). It is so

much easier to deal with a younger child and sometimes maybe it isn't

but when they have been eating a certain way for such a long time it

is much harder to break habits.

Dianne

>

> In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

Time, pudgeo9999@... writes:

> learn in school??? I sub-teach alot in my schools school!

I was so

> upset today..there is a 10yr old autistic boy in the

class, this is

> what he ate, doritos for snack and for lunch frosted

flakes and a fruit

> roll up. So he ran out of the class twice and was defiant

all day..hmmm

> wonder why?? SO I wrote a note to the parents that I felt

his behavior

> was linked to the poor food choices he had today!!AM I

really off here?

> How can a kid learn when they are fed JUNK?

> Do schools ever suggest special diets to parents who

don't get it??

> or is that crossing the line??

> Thanks for letting me vent!!!

>

>

>

>

>

>

>

>

>

> --------------------------------------------------------------------

----

> Need a new ride? Check out the largest site for U.S. used

car listings at AOL Autos.

>

[Guest guest]

I agree.I also want to add my son is on the diet and we have been doing bio med 5 years now.I know alot of children with autism.Many are NOT on the diet and our doing WAY better than my son.So again,our children are so different.Two of these kids' are recovered.My son is NO where near recovered.didilund wrote: > > I don't think anyone should judge another parent. This battle we are facing is difficult enough and some of us didn't stumble onto this sight until our children were much older (10, 11,

12). It is so much easier to deal with a younger child and sometimes maybe it isn't but when they have been eating a certain way for such a long time it is much harder to break habits.Dianne> > > learn in school??? I sub-teach alot in my schools school! I was so > upset today..there is a 10yr old autistic boy in the class, this is > what he ate, doritos for snack and for lunch frosted flakes and a fruit > roll up. So he ran out of the class twice and was defiant all day..hmmm > wonder why?? SO I wrote a note to the parents that I felt his behavior > was linked to the poor food choices he had today!!AM I really off here? > How can a kid learn when they are fed JUNK?> Do schools ever suggest special diets to parents who don't get it??> or is that crossing the

line??> Thanks for letting me vent!!! > > > > > > > > > > --------------------------------------------------------------> Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.> "To accomplish great things, we must not only act, wemust dream; not only plan but also believe."

Instant message from any web browser! Try the new Yahoo! Canada Messenger for the Web BETA

[Guest guest]

Don't judge...but DO offer support, friendshp and HOPE. That

examples of recovered kids are inspiring. The other day I was a bit

bummed that Matt's recovery is taking so long and his gut issues are

so tricky...I said to my friend whose child is years older than

Matt. " I think that Stan just hit the lotto. Three weeks and such

GAINS! Why is this So hard with Matt? " Instead of jumping on my

bitch and moan wagon she said...and GOOD FOR HER for saying it to

me.... " Thank God he hit the lotto. Three weeks is totally jaw

dropping and that video made us go SCD and changed our whole

perspective on Adam's condition. Thank god somebody turned this

thing around FAST bc it shows that it can be done. It has taken us

years to figure out Adam , but if we had nto seen somebody do it in

just a few weeks, would we have tried? " Now that is a great attitude

and she is right of course. The Stan video compells bc that

recovery, at least the part that he shares, seems so lightening

fast...by the time you really grasp that he had his own struggles and

hurdles with his kid...you are lareay in and seeing your OWN gains

with yours...and their is no turning back. NEVER ASSUME that parents

to older kids do not want those kids back or have done certian things

bc they have chosen not too...they may have defaulted for lack of

info...very few have ever heard of the comprehensive approach or know

that older kids have benefited from it as well as diet changes too.

IT is never cool to judge but it is always the right thing to do to

offer help, info, SUPPORT. Di

>

> >

> > I don't think anyone should judge another parent. This battle

we

> are facing is difficult enough and some of us didn't stumble onto

> this sight until our children were much older (10, 11, 12). It is

so

> much easier to deal with a younger child and sometimes maybe it

isn't

> but when they have been eating a certain way for such a long time

it

> is much harder to break habits.

> Dianne

> >

> > In a message dated 4/21/2008 9:54:34 P.M. Eastern

Daylight

> Time, pudgeo9999@ writes:

> > learn in school??? I sub-teach alot in my schools

school!

> I was so

> > upset today..there is a 10yr old autistic boy in the

> class, this is

> > what he ate, doritos for snack and for lunch frosted

> flakes and a fruit

> > roll up. So he ran out of the class twice and was

defiant

> all day..hmmm

> > wonder why?? SO I wrote a note to the parents that I

felt

> his behavior

> > was linked to the poor food choices he had today!!AM I

> really off here?

> > How can a kid learn when they are fed JUNK?

> > Do schools ever suggest special diets to parents who

> don't get it??

> > or is that crossing the line??

> > Thanks for letting me vent!!!

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > ------------------------------------------------------------------

--

> ----

> > Need a new ride? Check out the largest site for U.S. used

> car listings at AOL Autos.

> >

>

[Guest guest]

No actually I don't think you read my reply, the first line of

which was:

"Sure you have to customise your treatment for every child. That is

paramount I agree."

There are other alternatives to milk. If you want to believe you only

had the one option then I can't change that.

The only concern I would have is the fact is most ASD kids need

specific nutritional intervention (I would argue most of the population

would benefit from this as well.)

I agree that raw milk is better than the refined, processes and

poisoned milk that most people drink. But please refer me to the

independent scientific evidence that any milk is necessary?

I've read a LOT about milk. The only evidence I've ever seen about it

being irreplaceable and critical has come from the dairy industry, and

it was propoganda, not science. The whole 5 food groups pyramid that

has been pushed and taught in schools is from the industry and was not

based on anything scientific.

So if you could point me in the direction of independent scientific

evidence that milk is critical and irreplaceable, then that would be

refreshing and a relief.

And the only reason I have made any comment about what children eat, is

I am concerned about the numbers of ASD kids that may never get better,

because I know what a hard life it is. So thanks a bunch for assuming

I can't eat it, and I have sour grapes. My only motivation is to help

people, not to judge them. But if people like you want to tell people

like me to "piss off, I'll do what I like", then eventually people like

me will tire from trying to help people an we will piss off. In fact I

can do that right now if you like?

If you want to ask me to never contribute here again, I'll do it in a

heartbeat. Just ask and I will happily comply.

No sour grapes... just genuine concern for all the little people on

this planet, that were born into a word controlled by industries that

will poison people for profit.

wrote:

-----

Original Message -----

From:

Reynolds

But there's also a lot of evidence that wheat and milk aren't very good

for anyone. We are the only species on the planet to drink the milk of

another species. There are plenty of cultures that survived without

cows milk.

====>Did you read what I wrote? I don't think you heard me,

but you did hit on another pet peeve I have about food and diets. Can't

eat it? Then decide noone should ever eat the food under any

circumstances, sour grapes.

Experts disagree, however there is just as much evidence that

it's pretty near impossible to replace the nutrients in milk, ever read

realmilk.com? And milk and wheat have sustained entire countries for

generations, I can find evidence that any food, particularly meat, any

meat, is bad for everyone.

I don't know if milk is good or bad for any/everyone, it WAS

good/necessary for her and I'm asking that this fact be respected.

I'm happy to report she recovered, with the milk and wheat, but

the point here is to make the best food choices for your particular

child and leave the choices for other children to their parents,

without the negative hyperbole and judging and deciding that a food

group is bad for everyone, not true.

wrote:

-----

Original Message -----

From:

Reynolds

I've heard Dr McCandless won't take a new patient unless

they've been strict GFCF.

I think that's fair enough.

====>No, not if your child is one of the very few who

actually got worse on the diet, then it's harmful. This is a cookie

cutter approach that is not helpful.

It didn't work here because she had no allergy or

intolerance or peptides to milk and was so low in cysteine and

methionine (that milk provides) that she lost language (I consider this

very serious) and weight, got huge dark circles under her eyes and had

frequent weeping episodes (low tryptophan).

Nothing, absolutely nothing is true for all of our kids and

this attitude was not helpful for us as many dans! followed it and we

got kicked out of our dans! practice because we failed to follow the

gf/cf diet.

I'm not angry, but this is a sore point with me, she wasn't

an anecdote, she was a real live kid who deserved individual attention

for the $750 an hour we were paying.

Trish64aol

wrote:

Obviously, you feel strongly about different therapies

for autism.

I think we need to be careful though not to judge the

actions or perceived lack of action by other parents. Honestly, we

really don't know what another parent may have already tried with his

or her child. And it's not our business. I think we need to consider

that someone else might look at our choices of treatments as poor ones.

I've tried pretty much everything with my son, who will

be 10 in 6 weeks. No diet ever made a discernible difference for him.

Neither did enzymes. He's not on any special diet now. He eats fairly

healthy but he took cheese crackers in for snack today. Does that make

me a bad parent? I certainly don't think so.

So I guess vent away here, but I wouldn't be presuming

anything where other parents are concerned. We all have extremely

tough roads to travel and we do the best we can.

In a message dated 4/21/2008 9:54:34 P.M. Eastern

Daylight Time, pudgeo9999 writes:

learn in school??? I sub-teach alot in my schools

school! I was so

upset today..there is a 10yr old autistic boy in the class, this is

what he ate, doritos for snack and for lunch frosted flakes and a fruit

roll up. So he ran out of the class twice and was defiant all day..hmmm

wonder why?? SO I wrote a note to the parents that I felt his behavior

was linked to the poor food choices he had today!!AM I really off here?

How can a kid learn when they are fed JUNK?

Do schools ever suggest special diets to parents who don't get it??

or is that crossing the line??

Thanks for letting me vent!!!

Need a new ride? Check out the largest site for U.S.

used car listings at AOL Autos.

[Guest guest]

----- Original Message -----

From: Reynolds

Hi ,

No, I don't want you to stop posting but I do feel like we are two people from totally different planets, trying to communicate.

YOU SAID: It's fair for drs to exclude people from their practice if they won't go cf and that if the diet didn't work parents should know why.

I SAID: Not only did ours not benefit from the cf diet, she got worse, told you why, but you're still insisting we forego milk.

I SAID: Experts disagree about the value of milk, I don't know about the value of milk for anyone but DO know about the value of milk, for her.

YOU SAID: Prove milk is valuable.

YOU SAID: You're getting tired of telling people like me to forego milk.

I SAID: She recovered *with* milk. She has no dx, no learning disabilities and is in a regular first grade, in a regular public school, with no aide The only difference between her and the other kids in her class is she is able to do work 4 grade levels above the first grade. Honestly, doesn't appear the milk hurt her or is poison.

Let's just agree to disagree, kay, but can you see why I have trouble following this?

wrote:

----- Original Message -----

From: Reynolds

But there's also a lot of evidence that wheat and milk aren't very good for anyone. We are the only species on the planet to drink the milk of another species. There are plenty of cultures that survived without cows milk.

====>Did you read what I wrote? I don't think you heard me, but you did hit on another pet peeve I have about food and diets. Can't eat it? Then decide noone should ever eat the food under any circumstances, sour grapes.

Experts disagree, however there is just as much evidence that it's pretty near impossible to replace the nutrients in milk, ever read realmilk.com? And milk and wheat have sustained entire countries for generations, I can find evidence that any food, particularly meat, any meat, is bad for everyone.

I don't know if milk is good or bad for any/everyone, it WAS good/necessary for her and I'm asking that this fact be respected.

I'm happy to report she recovered, with the milk and wheat, but the point here is to make the best food choices for your particular child and leave the choices for other children to their parents, without the negative hyperbole and judging and deciding that a food group is bad for everyone, not true.

wrote:

----- Original Message -----

From: Reynolds

I've heard Dr McCandless won't take a new patient unless they've been strict GFCF.I think that's fair enough.

====>No, not if your child is one of the very few who actually got worse on the diet, then it's harmful. This is a cookie cutter approach that is not helpful.

It didn't work here because she had no allergy or intolerance or peptides to milk and was so low in cysteine and methionine (that milk provides) that she lost language (I consider this very serious) and weight, got huge dark circles under her eyes and had frequent weeping episodes (low tryptophan).

Nothing, absolutely nothing is true for all of our kids and this attitude was not helpful for us as many dans! followed it and we got kicked out of our dans! practice because we failed to follow the gf/cf diet.

I'm not angry, but this is a sore point with me, she wasn't an anecdote, she was a real live kid who deserved individual attention for the $750 an hour we were paying.

Trish64aol wrote:

Obviously, you feel strongly about different therapies for autism.

I think we need to be careful though not to judge the actions or perceived lack of action by other parents. Honestly, we really don't know what another parent may have already tried with his or her child. And it's not our business. I think we need to consider that someone else might look at our choices of treatments as poor ones.

I've tried pretty much everything with my son, who will be 10 in 6 weeks. No diet ever made a discernible difference for him. Neither did enzymes. He's not on any special diet now. He eats fairly healthy but he took cheese crackers in for snack today. Does that make me a bad parent? I certainly don't think so.

So I guess vent away here, but I wouldn't be presuming anything where other parents are concerned. We all have extremely tough roads to travel and we do the best we can.

In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight Time, pudgeo9999 writes:

learn in school??? I sub-teach alot in my schools school! I was so upset today..there is a 10yr old autistic boy in the class, this is what he ate, doritos for snack and for lunch frosted flakes and a fruit roll up. So he ran out of the class twice and was defiant all day..hmmm wonder why?? SO I wrote a note to the parents that I felt his behavior was linked to the poor food choices he had today!!AM I really off here? How can a kid learn when they are fed JUNK?Do schools ever suggest special diets to parents who don't get it??or is that crossing the line??Thanks for letting me vent!!!

Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

[Guest guest]

I agree too... our kids are all so diff.

Each to their own, that is for the parents to decide for their own

child.

My son has been GFCF since 21 months old !!! for over 5 yrs... &

although he has improved a lot coz of many other interventions as

well..we are still struggling with ASD big time... still GFCF but it

does make me go hmmm sometimes coz I know another child who only

ever ate 2 foods & both were wheat & dairy!! ( plain cheese pizza &

roti made with wheat flour, were the only 2 foods she ate) she was

totally non verbal & used to head bang quite severely at age 5 1/2...

96% recovered now & eats a better variety of food ( after

recovering).No biomed either, all the pediat gave her was iron

supplements ! .I also know another child that was GFCF & non verbal..

then went off the diet & started using words as soon as they went

off the diet ( go figure!!) & I am a GFCF mom myself but also realise

that the " one way or the highway " does not work coz each child is

so diff.These are 2 kids I SEE.. so I SAW the difference.

There was even a child on one of the groups that was allergic to rice

& potatoes & not to wheat/ gluten etc & sadly they didn't realise

until many yrs of being GFCF.

Same with SCD.. maybe good for many... but for kids with mito

issues, that makes them worse, many true mito kids NEED the high

carb meals & at frequent intervals.I know a child who needs to be

high carb. low fat coz of his mito disorder that causes his autism or

he regresses & gets worse.

So my 2 cents is that we are here to " share " information, make a

suggestion..but not police/dictate it .. I guess yahoo groups

are " support " groups, so we really should try & support other.

It is hard though coz when something works for your child u want to

scream from the mountain tops coz it is the " best thing in the world

in YOUR eyes " ...but we forget to realise that it doesn't necssarily

mean it's gonna be the best thing for every child with autism.

I also read a study where NT kids & ASD kids were tested for gluten/

casein peptides they had the same numbers as ASD kids...but we

already know autism is not just about the diet.

xena

>

> > I don't think anyone should judge another parent. This battle we

> are facing is difficult enough and some of us didn't stumble onto

> this sight until our children were much older (10, 11, 12). It is

so

> much easier to deal with a younger child and sometimes maybe it

isn't

> but when they have been eating a certain way for such a long time

it

> is much harder to break habits.

> Dianne

> >

> > In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

> Time, pudgeo9999@ writes:

> > learn in school??? I sub-teach alot in my schools school!

> I was so

> > upset today..there is a 10yr old autistic boy in the

> class, this is

> > what he ate, doritos for snack and for lunch frosted

> flakes and a fruit

> > roll up. So he ran out of the class twice and was defiant

> all day..hmmm

> > wonder why?? SO I wrote a note to the parents that I felt

> his behavior

> > was linked to the poor food choices he had today!!AM I

> really off here?

> > How can a kid learn when they are fed JUNK?

> > Do schools ever suggest special diets to parents who

> don't get it??

> > or is that crossing the line??

> > Thanks for letting me vent!!!

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > ----------------------------------------------------------

> ----

> > Need a new ride? Check out the largest site for U.S. used

> car listings at AOL Autos.

> >

>

>

>

>

>

>

>

> " To accomplish great things, we must not only act, we

> must dream; not only plan but also believe. "

>

>

>

>

> ---------------------------------

> Instant message from any web browser! Try the new Yahoo! Canada

Messenger for the Web BETA

>

[Guest guest]

PS.. me again.. just to say,I am very much into bio med..done

everything from chelation to HBOT, to anti virals & anti fungals &

the diet/s & a gazillion supps.. but my point earlier is just coz we

do.. we can't expect everyone to... can only suggest it & then leave

it up to them.

X

>

> > > I don't think anyone should judge another parent. This battle

we

> > are facing is difficult enough and some of us didn't stumble onto

> > this sight until our children were much older (10, 11, 12). It is

> so

> > much easier to deal with a younger child and sometimes maybe it

> isn't

> > but when they have been eating a certain way for such a long time

> it

> > is much harder to break habits.

> > Dianne

> > >

> > > In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

> > Time, pudgeo9999@ writes:

> > > learn in school??? I sub-teach alot in my schools school!

> > I was so

> > > upset today..there is a 10yr old autistic boy in the

> > class, this is

> > > what he ate, doritos for snack and for lunch frosted

> > flakes and a fruit

> > > roll up. So he ran out of the class twice and was defiant

> > all day..hmmm

> > > wonder why?? SO I wrote a note to the parents that I felt

> > his behavior

> > > was linked to the poor food choices he had today!!AM I

> > really off here?

> > > How can a kid learn when they are fed JUNK?

> > > Do schools ever suggest special diets to parents who

> > don't get it??

> > > or is that crossing the line??

> > > Thanks for letting me vent!!!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ----------------------------------------------------------

> > ----

> > > Need a new ride? Check out the largest site for U.S. used

> > car listings at AOL Autos.

> > >

> >

> >

> >

> >

> >

> >

> >

> > " To accomplish great things, we must not only act, we

> > must dream; not only plan but also believe. "

> >

> >

> >

> >

> > ---------------------------------

> > Instant message from any web browser! Try the new Yahoo! Canada

> Messenger for the Web BETA

> >

>

[Guest guest]

----- Original Message -----

From: Xena

but we already know autism is not just about the diet.

====>We have been around for 4 years (recovered for almost 2 years) and although this is getting better, for many, that autism is ALL about the diet. And that may very well be what they see as their child's biggest battle, but certainly is not what we saw here.

In Syd Baker's last book he did concede that not every ASD child had a problemw with milk and/or wheat and he does say that whatever they tolerate is fine, that's different than the militant gf/cf.

Since we all see autism through our own child, or the few other children we know of which are usually like our child, we are all slightly myopic. Or like the three blind mice who are all trying to describe the elephant but *seeing* different parts and coming to totally different conclusions.

With rare exceptions, we have never felt supported around the issue of diet.

xena > > > I don't think anyone should judge another parent. This battle we > are facing is difficult enough and some of us didn't stumble onto > this sight until our children were much older (10, 11, 12). It is so > much easier to deal with a younger child and sometimes maybe it isn't > but when they have been eating a certain way for such a long time it > is much harder to break habits.> Dianne> > > > In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight > Time, pudgeo9999@ writes:> > learn in school??? I sub-teach alot in my schools school! > I was so > > upset today..there is a 10yr old autistic boy in the > class, this is > > what he ate, doritos for snack and for lunch frosted > flakes and a fruit > > roll up. So he ran out of the class twice and was defiant > all day..hmmm > > wonder why?? SO I wrote a note to the parents that I felt > his behavior > > was linked to the poor food choices he had today!!AM I > really off here? > > How can a kid learn when they are fed JUNK?> > Do schools ever suggest special diets to parents who > don't get it??> > or is that crossing the line??> > Thanks for letting me vent!!! > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> ----> > Need a new ride? Check out the largest site for U.S. used > car listings at AOL Autos.> >> > > > > > > > "To accomplish great things, we must not only act, we> must dream; not only plan but also believe."> > > > > ---------------------------------> Instant message from any web browser! Try the new Yahoo! Canada Messenger for the Web BETA>

[Guest guest]

I've been reading this post on the sidelines - hope you don't mind if I say a few things. I'm finding that I'm agreeing with all of you! It's a complicated set of emotions that I get when I see kids eating crap foods. For me, it's more than just those on the spectrum...I feel sick to my stomach when I go to school and see what most kids are eating. I can't imagine what their bodies are going through to process that stuff. We have had 3 kids die in our elementary school in the last few years from Leukemia. That's scary!

It has taken me a while to not judge parents for feeding kids this junk. I realized that I used to be just like them before I was forced to see the other side of nutrition. Most people think that they can trust our government, schools and corporations to provide healthy, safe foods. They really have no idea how horrible these foods are. I also think that to admit that our food supply/diet is not healthy puts a lot of guilt on parents. If a parent is ready to accept their responsibility in feeding junk, then they are ready to hear what good nutrition actually is. Most parents (I think) do not want to hear that the artificial food they have been feeding their kids for years was actually harming them. God knows I felt guilty when I realized all of this. All those times I was angry at my son for his ADD/ADHD when it was mostly caused by the foods I was feeding him...

I guess all we can do is be a good example and find a way to promote healthy eating in more of a general way so parents don't feel cornered. See if your school could hold an information night where someone who really knows nutrition can talk about how foods affect behaviors and abilities. I tried that at my school, and the county wouldn't let me. But, I've heard that many school systems do allow it. The Feingold organization can usually provide a speaker, and they are experts on how foods can affect you.

You are all so awesome! And, your kids are lucky to have you!!!

Jenn

Re: Re: More Venting!Why do parents of autistic kids feed them junk...

----- Original Message -----

From: Xena

but we already know autism is not just about the diet.

====>We have been around for 4 years (recovered for almost 2 years) and although this is getting better, for many, that autism is ALL about the diet. And that may very well be what they see as their child's biggest battle, but certainly is not what we saw here.

In Syd Baker's last book he did concede that not every ASD child had a problemw with milk and/or wheat and he does say that whatever they tolerate is fine, that's different than the militant gf/cf.

Since we all see autism through our own child, or the few other children we know of which are usually like our child, we are all slightly myopic. Or like the three blind mice who are all trying to describe the elephant but *seeing* different parts and coming to totally different conclusions.

With rare exceptions, we have never felt supported around the issue of diet.

xena > > > I don't think anyone should judge another parent. This battle we > are facing is difficult enough and some of us didn't stumble onto > this sight until our children were much older (10, 11, 12). It is so > much easier to deal with a younger child and sometimes maybe it isn't >

but when they have been eating a certain way for such a long time it > is much harder to break habits.> Dianne> > > > In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight > Time, pudgeo9999@ writes:> > learn in school??? I sub-teach alot in my schools school! > I was so > > upset today..there is a 10yr old autistic boy in the > class, this is > > what he ate, doritos for snack and for lunch frosted > flakes and a fruit > > roll up. So he ran out of the class twice and was defiant > all day..hmmm > > wonder why?? SO I wrote a note to the parents that I felt > his behavior > > was linked to the poor food choices he had today!!AM I > really off here? > > How can a kid learn when they are fed JUNK?> > Do schools ever suggest special diets to parents who > don't get it??>

> or is that crossing the line??> > Thanks for letting me vent!!! > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> ----> > Need a new ride? Check out the largest site for U.S. used > car listings at AOL Autos.> >> > > > > > > > "To accomplish great things, we must not only act, we> must dream; not only plan but also believe."> > > > > ------------ --------- --------- ---> Instant message from any web browser! Try the new Yahoo! Canada Messenger for the Web BETA>

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Some kids spontaneously heal, it is true, but I would not want to

hope for that...how was the mito issues diagnosed/figured out? >

> > > I don't think anyone should judge another parent. This battle

we

> > are facing is difficult enough and some of us didn't stumble onto

> > this sight until our children were much older (10, 11, 12). It is

> so

> > much easier to deal with a younger child and sometimes maybe it

> isn't

> > but when they have been eating a certain way for such a long time

> it

> > is much harder to break habits.

> > Dianne

> > >

> > > In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

> > Time, pudgeo9999@ writes:

> > > learn in school??? I sub-teach alot in my schools school!

> > I was so

> > > upset today..there is a 10yr old autistic boy in the

> > class, this is

> > > what he ate, doritos for snack and for lunch frosted

> > flakes and a fruit

> > > roll up. So he ran out of the class twice and was defiant

> > all day..hmmm

> > > wonder why?? SO I wrote a note to the parents that I felt

> > his behavior

> > > was linked to the poor food choices he had today!!AM I

> > really off here?

> > > How can a kid learn when they are fed JUNK?

> > > Do schools ever suggest special diets to parents who

> > don't get it??

> > > or is that crossing the line??

> > > Thanks for letting me vent!!!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ----------------------------------------------------------

> > ----

> > > Need a new ride? Check out the largest site for U.S. used

> > car listings at AOL Autos.

> > >

> >

> >

> >

> >

> >

> >

> >

> > " To accomplish great things, we must not only act, we

> > must dream; not only plan but also believe. "

> >

> >

> >

> >

> > ---------------------------------

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> >

>

[Guest guest]

Oh...one thing though...as an encouragement, not as a discouragement

I hope....if you are still presenting with huge ASD issues then

whatever you are eating, something you are eating is undoing your

kids healing. I believe that 100 percent, and figuring our what it

is gives you back your kid....pulling green beans recently with Matt

brought spontaneous language. Go figure. He cannot handle them yet

and anything you feed that HARMS makes healing not possible...the

other therapoes and strategies cannot work if something in the diet

is undermining it all. We do not do SCD either, but by limiting him

to whole foods legal to it, even very limited for now-two things - we

got language and SO many gains...when we figure out the gut puzzle we

will get him back as the other strategies will finally work as

meant...diet focus is worth all the hassle. That is what parents

should be supported in...taking all the crap out initially is ALWATS

good advice and can only move a kid to recovery...there cannot be

long term good health on doritos and coke, you could trade autism for

another awful disease down the road I guess, maybe...I have not met

any parents with kids recovered on junk food. ANd my heart breaks

for the searing horrible pain that kid endured when she was screaming

and head banging...recovered or not. How absolutely awful for her -

ouch. >

> > > I don't think anyone should judge another parent. This battle

we

> > are facing is difficult enough and some of us didn't stumble onto

> > this sight until our children were much older (10, 11, 12). It is

> so

> > much easier to deal with a younger child and sometimes maybe it

> isn't

> > but when they have been eating a certain way for such a long time

> it

> > is much harder to break habits.

> > Dianne

> > >

> > > In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

> > Time, pudgeo9999@ writes:

> > > learn in school??? I sub-teach alot in my schools school!

> > I was so

> > > upset today..there is a 10yr old autistic boy in the

> > class, this is

> > > what he ate, doritos for snack and for lunch frosted

> > flakes and a fruit

> > > roll up. So he ran out of the class twice and was defiant

> > all day..hmmm

> > > wonder why?? SO I wrote a note to the parents that I felt

> > his behavior

> > > was linked to the poor food choices he had today!!AM I

> > really off here?

> > > How can a kid learn when they are fed JUNK?

> > > Do schools ever suggest special diets to parents who

> > don't get it??

> > > or is that crossing the line??

> > > Thanks for letting me vent!!!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ----------------------------------------------------------

> > ----

> > > Need a new ride? Check out the largest site for U.S. used

> > car listings at AOL Autos.

> > >

> >

> >

> >

> >

> >

> >

> >

> > " To accomplish great things, we must not only act, we

> > must dream; not only plan but also believe. "

> >

> >

> >

> >

> > ---------------------------------

> > Instant message from any web browser! Try the new Yahoo! Canada

> Messenger for the Web BETA

> >

>