RE: [DSALF] The Positives of Parenting - Ages 8-25

[Guest guest]

Passing this on from another listserv:

From:

DSALF [mailto:DSALF ] On Behalf Of HEATHER

TRAMMELL

Sent: Thursday, April 17, 2008 2:50 PM

To: DSALF

Subject: [DSALF] The Positives of Parenting - Ages 8-25

Dear Friends,

I was made aware of

this survey recently and wanted to bring it to your attention to share with

your association members. They are looking for parents whose children

with DS are between 8 and 25 years old.

A. Trammell

Education Committee

Co-Chair

DSANV

**************************************************************

Dear Parent,

We invite you to

participate in an online survey about the positive side of parenting a child

with a disability. The study is being conducted by Ulman, M.S., as a

dissertation project under the direction of Dr. beth Dykens, Ph.D. through

the Vanderbilt Kennedy Center. Eligibility requirements are as follows:

· The parent must be

18 years or older

· The parent must

have a child between the ages of 8 and 25 with a diagnosis of one (and only

one) of the following: Angelman syndrome, autism, Down syndrome, Prader-Willi

syndrome, or syndrome.

We know parenting a

child with a disability is hard. But many people find that the experience has

led to personal growth in unexpected ways. Surprisingly there are almost no

studies that look at the ways the experience can strengthen people, while there

is plenty of research that looks at negative outcomes for parents. This study

will provide for a more balanced understanding of how having a child with a

disability can change a person's life.

Benefits of the study

include an opportunity to reflect upon the positive psychological growth that

you may have experienced following the birth of your child with a disability.

The survey will take

approximately 60-90 minutes to complete and consists of a series of

questionnaires about you and your child. At the end of the study you will have

the opportunity to write your thoughts in an unstructured format. For further

information, you may contact Ulman by email at .ulman@... or by phone at or 1..

**IF THE LINK DOES

NOT WORK YOU CAN CUT AND PASTE THE WEB ADDRESS INTO A NEW WINDOW** You may begin

participation in the study immediately by clicking on of the following link:

http://www.surveymonkey.com/s.aspx?sm=9PcSEcLZbbEXiYGmlWussw_3d_3d

We hope to hear from

you!

Best,

Ulman