Re: Newly diagnosed with EN

[Guest guest]

Hi Carol,

Welcome to our Group!

I'm 58 and I've had EN for 37 years (and that's the truth too ;-) )

We all have differing experiences with EN. Some lucky people only have

one bout in their whole life. Others have recurrent and go into

remissions and flare ups (like me), and others never seen to reach

remission and just learn to live with it.

Have you had tests to find the underlying cause? If not, you really

should. Although in up to half the cases no cause is found (like me

again).

It can take a lot of detective work to find the trigger or cause, but

we have many leads here if your doctor is not familiar with EN.

I'd seriously consider taking time off work for bedrest. It can speed

remission. There is some thought that it can also keep one from

getting EN again, but this is just a theory.

When I first got EN at age 21 I was misdiagnosed and spent about 2 1/2

weeks in bed [as I couldn't walk]. I had a 3 yr. remission after that.

Then I tried to work in spite of EN--and the remissions became less

frequent :-( Of coures, that's just me. Everyone is different as I

said. Only time will tell which pattern of EN emerges for you.

Please invite your doctor to the group. All doctors are welcomed here.

Shins up! [our motto, describing leg elevation]

Love,