Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 Hi to all: made it through his infusion without any major problems. His blood pressure did get low, but the nurses at the hospital know Jake from his chemo days and remembered that he has low b/p to begin with. They hooked him up to a monitor and checked it every 5 minutes. The reason they did it so often is that his baseline reading--taken immediately after he was playing in the playroom--was 89/48. the doc said to call if it fell below 90 or 50. He dropped down to 65/35 before the day ended and the nurses suggested that I get a cuff and monitor this at home for a few weeks to see if he needs to see a cardiologist. Does this sound like anything any of you have dealt with? I can't seem to find anything about low b/p, only high. Also, he has a chance of Congestive Heart Failure due to the chemo, so this may be why the nurses stressed it to me. The main trouble with the immunologist yesterday was that he no longer wants Jake pre-medicated, wouldn't listen to my fears, and then took 3 hours to call the nurse back with the discharge orders. A three hour infusion took us from 9 to 6:30 from start to finish. Also, he has given yet another diagnosis--dysgammaglobulinanemia. I never heard of this, has anyone else? Also, Jake had a CBC drawn because he's been acting extremely anemic the last week or so. The nurses even said he looked pale and anemic. We got the blood tests back and his hemoglobin is great--14.4! But, his nuetrophils and lymphocytes were backwards--again. The nuet. are high, the lymph. are low. Does anyone else have this or could it still be a carryover from Chemo--his have been like this since he's come off the chemo. Thanks for all the input--it's helped me learn and givin me the courage to let the drs. know I won't deal with things I'm not sure about. I'm still debating the testing in June. --mom to -dysgammaglobulinanemia, asthma, ALL-in remission Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 Hi Dysgammaglobulinanemia has been described to me as a dysregulation of the antibodies. They are present but they aren't doing there job well or correctly. Hope that helps. Kinsey has been called that at times also. Gail Kinsey - CVID IDF Volunteer Quote Link to comment Share on other sites More sharing options...
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