Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 i clean adam's neb tubing/mask/etc. with a warm water/vinegar solution every few days. going for another transfusion today, hemaglobin down to 7.5 Hem/Onc says his erythropoetin levels are high which means adam makes plenty of the hormone that stimulates red cell production, it's just his bone marrow isn't cooperating. i think we're headed toward a bmt, and we're so afraid. sandy adam's mom (zero iga, cvid, autoimmune hemolytic anemia, g-tube, etc.) Quote Link to comment Share on other sites More sharing options...
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