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Carol (and ): Thanks so much for responding to my request for

more information - and any experience others have had. It really helps

a lot when you can talk to someone who has been diagnosed with this

since I don't know anyone around here that has. The " bed rest " is so

difficult as I was always such an active person -

walking at least three miles a day with my dog, working part-time and

simply enjoying life. The last six weeks have been really tough, but I

am trying to keep an positive attitude. After reading that some people

have had this for so long, I'd better not be complaining.

My ankles and feet are really swelled so I am keeping them elevated as

much as possible. The doctor put me on colchicine just last week. It

seems like my legs do look a little better and thank God, I am not

getting any new ones. Anyway, this group will be a huge help to me.

THANKS!

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