Re: Tranquillizer Question

[Guest guest]

Dear ,

Thanks for telling us your experience with atavan and trazedon. I

don't have trouble sleeping and even when I am flared up, the pain is

not too much for me to sleep through. I am very lucky that way because

for me sleep is the treatment that works.

I noticed a lump in the usual place Sat. night. I stayed in bed and

slept (mostly) until Sunday evening. the EN didn't progress yet to the

bright red and swollen phase. I am going about my business with the

TEDS stocking now, and waiting to see if the lump goes into remission

or proceeds to the flare.

I have heard many members say the prednisone only works while they are

on it, and the EN comes back with a vengeance once they stop.

Taking Potassium Iodide (SSKI) is supposedly better for those first

bouts of EN, but not when it is chronic, so I've read. We are so in

need of a treatment that works for those of us who have had this for

years. We seem to be the forgotten disorder. As Rodney Dangerfield,

bless his soul, said we get " No Respect " .

Love,