for Lorri - Rheumatic ...

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Lorri

I hope that you are feeling alittle better, dont know if you know

but i have been ill since november wih EN and after ending up in

hospital over christmas they have not diagonosed me with

Streptococcal, i have never had a sore throat either, i am now on a

two week course of penicillin, i have not had a severe EN for nearly

two weeks, but the last week i have been aching and my spot come and

go, i am on steriods aswell, but got to reduce them slowly... Any

advice or info or if i can help you just let me know, but dont know

that much myself about this really.

Like you I am very tired, but have a 8 month old baby and sleeping

in the day is not a question, but i do grab the occasional half hour

when she does, rest does help - i am usually in bed by 10pm if i can

make it by then...

Hugs to you, keep resting.

Becky

>

> In a message dated 1/13/2006 9:00:40 P.M. Mountain Standard Time,

> rebeccastrecker@y... writes:

>

> Hi Lorri,

>

> you are living proof that you can have a raging strep. infection

> without a sore throat. I wish all doctors knew that.

>

> Me too!! How ironic that I used to tell people who had strep

throat that I

> must be immune to it because I've NEVER had it. It's almost

scary because I

> have to be VERY careful about getting Strep and have all my sore

throats

> checked....WHAT SORE THROATS??!! Maybe I'll be one that

says, " Uggh...it's EN

> again..guess I have strep. "

>

> I had my strep

> levels tested last yr. and mine was a measley 34. Still, don't

have a

> clue what causes the EN, but have been in remission for longer

than

> usual now. :-)

>

>

> I'm glad that you are in remission. WTG!

>

>

> Are you feeling better since going on the meds?

> Not really. Today is only my 2nd full day taking it. The doctor

called on

> Tuesday with my results and said he would call in the medication,

but by 9 pm

> they had not received the call. Wednesday we picked it up in

the evening

> and I took 1 pill before bed. I'm looking forward to feeling

better though.

> My legs are still swelling and that causes discomfort, but with

hopeful

> weight loss on WW and getting rid of the streptococcal infection,

I imagine I'll

> be feeling better by Spring. I say Spring because when I was

first diagnosed

> with EN, I was told 3-6 weeks...and it's been 5 months now. I'm

taking it one

> day at a time.

>

> I have started taking naps during the day because I am still very

tired and

> get worn out very quickly. It really helps me during the hard

part of the

> day , 2-4 pm. Even if it's only an hour, I feel a bit more

energy. I realize

> now that my body has been fighting horrible Streptococcal

infections since

> August and that anything I can do to regain some strength and

energy is well

> worth it. I felt guilty at first because I thought I " should " be

playing with

> my kids, etc.....however, if I don't rest and take care of myself

now....who

> knows...ya know?

>

> My son came up to us this evening and his throat is very red and

his tonsils

> are swollen. It happened right after he ate dinner, so we gave

him some

> Benedryl and we're going to watch it and see what happens. If

he's still

> swollen and red tomorrow morning, I'm taking him in for a strep

culture. It

> wouldn't surprise me, I imagine we have Streptococcal Bacteria

running rampant all

> over this house....EEK!! LYSOL!!!!!!!!

>

> Wishing you and the Group a Happy Weekend!

>

>

>

>

> You too!!

>

> Lorri

>