Welcome, New Member, Landini/Case History

[Guest guest]

Dear ,

On behalf of all our members, welcome to our Erythema Nodosum Group!

Thanks for sending in your Questionnaire. I have added the information

to our " Member Medical History " Files on the Group site and posted it

below.

You now have Full EN Group privileges.

You are receiving EN Group emails, and you can also go to the EN Group

site whenever you like:

http://health.groups.yahoo.com/group/erythema_nodosum_Group/

and logging on with your Yahoo ID and secret password.

You do not have to have the group emails delivered to be a member here.

You are quite knowledgeable about sarc. and EN. Hopefully you have

Lofgren's syndrome, which will have a good outcome. As you probably

know, when EN is the presenting symptom of sarc. it is " usually " a

sign that the sarc. will go into permanent remission within 2-3 yrs.

This is no guarantee, just the textbook case. I know quite a few who

didn't have such a fortunate outcome.

I live in Orange County CA., and yes do get checked for Cocci.

http://www.emedicine.com/radio/topic179.htm

We have members here with sarc., cocci and EN, so you have come to the

right place. Welcome!

Love,

******

Landini's Case History

2/3/06

1. Your name and age: , 43

2. Your location: Ventura, CA

3. Your email address: mgalileo2000@...

4. Your Yahoo: ID M_merced2000

5. Describe your erythema nodosum/PG symptoms or, if you do not have

EN or PG, please explain why you wish to join this group.

I was diagnosed with EN two weeks ago. I am a VERY active person who

runs 3-5 miles per day, hikes, climbs, ride my bike and generally is

ext, takes long extended trips to remote backcountry locations, and in

general is extremely fit.

After returning from a five week trip to climb Mt. Aconcagua in

Argentina, I resumed my normal work and weekly training schedule.

Up at 4:45 AM, run 3-6 in the morning, at work by 10:00, off by 4:00

and run, bike or climb in the evening for an hour, light vegetarian

meal for dinner, in bed my 9:30.

This is very routine for me, and I have been training with a similar

schedule for many years now.

One week after returning I broke out on my legs with bright red bumps.

I had absolutely no other symptoms.

The bumps got bigger and hotter and even though I had no other

symptoms, I knew something was not right, so I went in to have it

checked. The doctor immediately diagnosed EN.

We went through a long list of questions to try and isolate the

possible cause. I was given a chest x-ray which revealed great

looking lungs, but slightly swollen lymph nodes.

I was then referred to a Rheumatologist, who has been monitoring my

progress and prescribed Naprosyn.

I was told that my condition was likely caused by sarcoidosis, and was

self-limited and would likely clear up in 3-6 weeks.

I was concerned that I may have Cocci, a fungal infection which also

causes EN, as I am in a very high risk group, spending lot's of time

in the South West deserts, given that I was asymptomatic, and because

of the slight swelling in my lymph nodes the doctor seemed to feel

that Sarcodoisis was more likely than Cocci.

I was told that testing would be more appropriate if/when symptoms

occurred. One week after diagnosis, I became VERY symptomatic, with

fever, fatigue, malaise, night sweats, and severe swelling in my feet

and ankles.

I also now have a dry cough. the cough is very mild, but there.

In my follow-up to the doctor I was told these symptoms were quite

normal and that the severe swelling in my legs, ankles, and feet could

persists for weeks.

In addition to the 500 mg of Naprosyn that I am taking twice a day,

the doctor also perscribed Colchicine .6 mg twice a day to see if this

would reduce the swelling.

After one week, feel much better. Fever is gone, generally I have

more energy, but the swelling is still quite severe.

The bumps themselves have now completely flattened and look more like

bruises, that cover my entire legs.

My legs, ankles and feet are still quite swollen. I am scheduled to

continue with the medication through next week and then

I have a follow-up scheduled. I am also planning on scheduling time

with a herbalist and acupuncturist and to discuss natural and/or

homeopathic remedies.

6. List any other health conditions.

None. Very fit and extremely active.

7. State what medications or treatments you take for EN, and their

effectiveness:

Please see #5 above.

8. When did you first get erythema nodosum or PG?

Two weeks ago.

9. How long have you had erythema nodosum or PG?

Two weeks.

10. Do you agree to treat all EN members with respect?

Absolutely!

11.Do you agree to post NO advertisements for any products or services?

I agree

12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search,

referral from another group or person etc.)

MSN Search

[Guest guest]

Dear ,

Thank you so much for such a warm welcome!

It is wonderful to have found a supportive place to share and

exchange information. I look forward to participating!

Best,

>

> Dear ,

> On behalf of all our members, welcome to our Erythema Nodosum

Group!

>

> Thanks for sending in your Questionnaire. I have added the

information

> to our " Member Medical History " Files on the Group site and posted

it

> below.

>

> You now have Full EN Group privileges.

>

> You are receiving EN Group emails, and you can also go to the EN

Group

> site whenever you like:

>

> http://health.groups.yahoo.com/group/erythema_nodosum_Group/

>

> and logging on with your Yahoo ID and secret password.

>

> You do not have to have the group emails delivered to be a member

here.

>

> You are quite knowledgeable about sarc. and EN. Hopefully you have

> Lofgren's syndrome, which will have a good outcome. As you probably

> know, when EN is the presenting symptom of sarc. it is " usually " a

> sign that the sarc. will go into permanent remission within 2-3

yrs.

> This is no guarantee, just the textbook case. I know quite a few

who

> didn't have such a fortunate outcome.

>

> I live in Orange County CA., and yes do get checked for Cocci.

>

> http://www.emedicine.com/radio/topic179.htm

>

> We have members here with sarc., cocci and EN, so you have come to

the

> right place. Welcome!

>

> Love,

>

>

>

> ******

> Landini's Case History

>

> 2/3/06

>

> 1. Your name and age: , 43

>

> 2. Your location: Ventura, CA

>

> 3. Your email address: mgalileo2000@...

>

> 4. Your Yahoo: ID M_merced2000

>

> 5. Describe your erythema nodosum/PG symptoms or, if you do not

have

> EN or PG, please explain why you wish to join this group.

>

> I was diagnosed with EN two weeks ago. I am a VERY active person

who

> runs 3-5 miles per day, hikes, climbs, ride my bike and generally

is

> ext, takes long extended trips to remote backcountry locations,

and in

> general is extremely fit.

>

> After returning from a five week trip to climb Mt. Aconcagua in

> Argentina, I resumed my normal work and weekly training schedule.

>

> Up at 4:45 AM, run 3-6 in the morning, at work by 10:00, off by

4:00

> and run, bike or climb in the evening for an hour, light vegetarian

> meal for dinner, in bed my 9:30.

>

> This is very routine for me, and I have been training with a

similar

> schedule for many years now.

>

> One week after returning I broke out on my legs with bright red

bumps.

> I had absolutely no other symptoms.

>

> The bumps got bigger and hotter and even though I had no other

> symptoms, I knew something was not right, so I went in to have it

> checked. The doctor immediately diagnosed EN.

>

> We went through a long list of questions to try and isolate the

> possible cause. I was given a chest x-ray which revealed great

> looking lungs, but slightly swollen lymph nodes.

>

> I was then referred to a Rheumatologist, who has been monitoring my

> progress and prescribed Naprosyn.

>

> I was told that my condition was likely caused by sarcoidosis, and

was

> self-limited and would likely clear up in 3-6 weeks.

>

> I was concerned that I may have Cocci, a fungal infection which

also

> causes EN, as I am in a very high risk group, spending lot's of

time

> in the South West deserts, given that I was asymptomatic, and

because

> of the slight swelling in my lymph nodes the doctor seemed to feel

> that Sarcodoisis was more likely than Cocci.

>

> I was told that testing would be more appropriate if/when symptoms

> occurred. One week after diagnosis, I became VERY symptomatic,

with

> fever, fatigue, malaise, night sweats, and severe swelling in my

feet

> and ankles.

>

> I also now have a dry cough. the cough is very mild, but there.

>

> In my follow-up to the doctor I was told these symptoms were quite

> normal and that the severe swelling in my legs, ankles, and feet

could

> persists for weeks.

>

> In addition to the 500 mg of Naprosyn that I am taking twice a day,

> the doctor also perscribed Colchicine .6 mg twice a day to see if

this

> would reduce the swelling.

>

> After one week, feel much better. Fever is gone, generally I have

> more energy, but the swelling is still quite severe.

>

> The bumps themselves have now completely flattened and look more

like

> bruises, that cover my entire legs.

>

> My legs, ankles and feet are still quite swollen. I am scheduled

to

> continue with the medication through next week and then

>

> I have a follow-up scheduled. I am also planning on scheduling

time

> with a herbalist and acupuncturist and to discuss natural and/or

> homeopathic remedies.

>

> 6. List any other health conditions.

>

> None. Very fit and extremely active.

>

> 7. State what medications or treatments you take for EN, and their

> effectiveness:

>

> Please see #5 above.

>

> 8. When did you first get erythema nodosum or PG?

>

> Two weeks ago.

>

> 9. How long have you had erythema nodosum or PG?

>

> Two weeks.

>

> 10. Do you agree to treat all EN members with respect?

>

> Absolutely!

>

>

> 11.Do you agree to post NO advertisements for any products or

services?

>

> I agree

>

>

> 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search,

> referral from another group or person etc.)

>

> MSN Search

>

[Guest guest]

Dear ,

Thank you so much for such a warm welcome!

It is wonderful to have found a supportive place to share and

exchange information. I look forward to participating!

Best,

>

> Dear ,

> On behalf of all our members, welcome to our Erythema Nodosum

Group!

>

> Thanks for sending in your Questionnaire. I have added the

information

> to our " Member Medical History " Files on the Group site and posted

it

> below.

>

> You now have Full EN Group privileges.

>

> You are receiving EN Group emails, and you can also go to the EN

Group

> site whenever you like:

>

> http://health.groups.yahoo.com/group/erythema_nodosum_Group/

>

> and logging on with your Yahoo ID and secret password.

>

> You do not have to have the group emails delivered to be a member

here.

>

> You are quite knowledgeable about sarc. and EN. Hopefully you have

> Lofgren's syndrome, which will have a good outcome. As you probably

> know, when EN is the presenting symptom of sarc. it is " usually " a

> sign that the sarc. will go into permanent remission within 2-3

yrs.

> This is no guarantee, just the textbook case. I know quite a few

who

> didn't have such a fortunate outcome.

>

> I live in Orange County CA., and yes do get checked for Cocci.

>

> http://www.emedicine.com/radio/topic179.htm

>

> We have members here with sarc., cocci and EN, so you have come to

the

> right place. Welcome!

>

> Love,

>

>

>

> ******

> Landini's Case History

>

> 2/3/06

>

> 1. Your name and age: , 43

>

> 2. Your location: Ventura, CA

>

> 3. Your email address: mgalileo2000@...

>

> 4. Your Yahoo: ID M_merced2000

>

> 5. Describe your erythema nodosum/PG symptoms or, if you do not

have

> EN or PG, please explain why you wish to join this group.

>

> I was diagnosed with EN two weeks ago. I am a VERY active person

who

> runs 3-5 miles per day, hikes, climbs, ride my bike and generally

is

> ext, takes long extended trips to remote backcountry locations,

and in

> general is extremely fit.

>

> After returning from a five week trip to climb Mt. Aconcagua in

> Argentina, I resumed my normal work and weekly training schedule.

>

> Up at 4:45 AM, run 3-6 in the morning, at work by 10:00, off by

4:00

> and run, bike or climb in the evening for an hour, light vegetarian

> meal for dinner, in bed my 9:30.

>

> This is very routine for me, and I have been training with a

similar

> schedule for many years now.

>

> One week after returning I broke out on my legs with bright red

bumps.

> I had absolutely no other symptoms.

>

> The bumps got bigger and hotter and even though I had no other

> symptoms, I knew something was not right, so I went in to have it

> checked. The doctor immediately diagnosed EN.

>

> We went through a long list of questions to try and isolate the

> possible cause. I was given a chest x-ray which revealed great

> looking lungs, but slightly swollen lymph nodes.

>

> I was then referred to a Rheumatologist, who has been monitoring my

> progress and prescribed Naprosyn.

>

> I was told that my condition was likely caused by sarcoidosis, and

was

> self-limited and would likely clear up in 3-6 weeks.

>

> I was concerned that I may have Cocci, a fungal infection which

also

> causes EN, as I am in a very high risk group, spending lot's of

time

> in the South West deserts, given that I was asymptomatic, and

because

> of the slight swelling in my lymph nodes the doctor seemed to feel

> that Sarcodoisis was more likely than Cocci.

>

> I was told that testing would be more appropriate if/when symptoms

> occurred. One week after diagnosis, I became VERY symptomatic,

with

> fever, fatigue, malaise, night sweats, and severe swelling in my

feet

> and ankles.

>

> I also now have a dry cough. the cough is very mild, but there.

>

> In my follow-up to the doctor I was told these symptoms were quite

> normal and that the severe swelling in my legs, ankles, and feet

could

> persists for weeks.

>

> In addition to the 500 mg of Naprosyn that I am taking twice a day,

> the doctor also perscribed Colchicine .6 mg twice a day to see if

this

> would reduce the swelling.

>

> After one week, feel much better. Fever is gone, generally I have

> more energy, but the swelling is still quite severe.

>

> The bumps themselves have now completely flattened and look more

like

> bruises, that cover my entire legs.

>

> My legs, ankles and feet are still quite swollen. I am scheduled

to

> continue with the medication through next week and then

>

> I have a follow-up scheduled. I am also planning on scheduling

time

> with a herbalist and acupuncturist and to discuss natural and/or

> homeopathic remedies.

>

> 6. List any other health conditions.

>

> None. Very fit and extremely active.

>

> 7. State what medications or treatments you take for EN, and their

> effectiveness:

>

> Please see #5 above.

>

> 8. When did you first get erythema nodosum or PG?

>

> Two weeks ago.

>

> 9. How long have you had erythema nodosum or PG?

>

> Two weeks.

>

> 10. Do you agree to treat all EN members with respect?

>

> Absolutely!

>

>

> 11.Do you agree to post NO advertisements for any products or

services?

>

> I agree

>

>

> 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search,

> referral from another group or person etc.)

>

> MSN Search

>

[Guest guest]

Dear ,

Thank you so much for such a warm welcome!

It is wonderful to have found a supportive place to share and

exchange information. I look forward to participating!

Best,

>

> Dear ,

> On behalf of all our members, welcome to our Erythema Nodosum

Group!

>

> Thanks for sending in your Questionnaire. I have added the

information

> to our " Member Medical History " Files on the Group site and posted

it

> below.

>

> You now have Full EN Group privileges.

>

> You are receiving EN Group emails, and you can also go to the EN

Group

> site whenever you like:

>

> http://health.groups.yahoo.com/group/erythema_nodosum_Group/

>

> and logging on with your Yahoo ID and secret password.

>

> You do not have to have the group emails delivered to be a member

here.

>

> You are quite knowledgeable about sarc. and EN. Hopefully you have

> Lofgren's syndrome, which will have a good outcome. As you probably

> know, when EN is the presenting symptom of sarc. it is " usually " a

> sign that the sarc. will go into permanent remission within 2-3

yrs.

> This is no guarantee, just the textbook case. I know quite a few

who

> didn't have such a fortunate outcome.

>

> I live in Orange County CA., and yes do get checked for Cocci.

>

> http://www.emedicine.com/radio/topic179.htm

>

> We have members here with sarc., cocci and EN, so you have come to

the

> right place. Welcome!

>

> Love,

>

>

>

> ******

> Landini's Case History

>

> 2/3/06

>

> 1. Your name and age: , 43

>

> 2. Your location: Ventura, CA

>

> 3. Your email address: mgalileo2000@...

>

> 4. Your Yahoo: ID M_merced2000

>

> 5. Describe your erythema nodosum/PG symptoms or, if you do not

have

> EN or PG, please explain why you wish to join this group.

>

> I was diagnosed with EN two weeks ago. I am a VERY active person

who

> runs 3-5 miles per day, hikes, climbs, ride my bike and generally

is

> ext, takes long extended trips to remote backcountry locations,

and in

> general is extremely fit.

>

> After returning from a five week trip to climb Mt. Aconcagua in

> Argentina, I resumed my normal work and weekly training schedule.

>

> Up at 4:45 AM, run 3-6 in the morning, at work by 10:00, off by

4:00

> and run, bike or climb in the evening for an hour, light vegetarian

> meal for dinner, in bed my 9:30.

>

> This is very routine for me, and I have been training with a

similar

> schedule for many years now.

>

> One week after returning I broke out on my legs with bright red

bumps.

> I had absolutely no other symptoms.

>

> The bumps got bigger and hotter and even though I had no other

> symptoms, I knew something was not right, so I went in to have it

> checked. The doctor immediately diagnosed EN.

>

> We went through a long list of questions to try and isolate the

> possible cause. I was given a chest x-ray which revealed great

> looking lungs, but slightly swollen lymph nodes.

>

> I was then referred to a Rheumatologist, who has been monitoring my

> progress and prescribed Naprosyn.

>

> I was told that my condition was likely caused by sarcoidosis, and

was

> self-limited and would likely clear up in 3-6 weeks.

>

> I was concerned that I may have Cocci, a fungal infection which

also

> causes EN, as I am in a very high risk group, spending lot's of

time

> in the South West deserts, given that I was asymptomatic, and

because

> of the slight swelling in my lymph nodes the doctor seemed to feel

> that Sarcodoisis was more likely than Cocci.

>

> I was told that testing would be more appropriate if/when symptoms

> occurred. One week after diagnosis, I became VERY symptomatic,

with

> fever, fatigue, malaise, night sweats, and severe swelling in my

feet

> and ankles.

>

> I also now have a dry cough. the cough is very mild, but there.

>

> In my follow-up to the doctor I was told these symptoms were quite

> normal and that the severe swelling in my legs, ankles, and feet

could

> persists for weeks.

>

> In addition to the 500 mg of Naprosyn that I am taking twice a day,

> the doctor also perscribed Colchicine .6 mg twice a day to see if

this

> would reduce the swelling.

>

> After one week, feel much better. Fever is gone, generally I have

> more energy, but the swelling is still quite severe.

>

> The bumps themselves have now completely flattened and look more

like

> bruises, that cover my entire legs.

>

> My legs, ankles and feet are still quite swollen. I am scheduled

to

> continue with the medication through next week and then

>

> I have a follow-up scheduled. I am also planning on scheduling

time

> with a herbalist and acupuncturist and to discuss natural and/or

> homeopathic remedies.

>

> 6. List any other health conditions.

>

> None. Very fit and extremely active.

>

> 7. State what medications or treatments you take for EN, and their

> effectiveness:

>

> Please see #5 above.

>

> 8. When did you first get erythema nodosum or PG?

>

> Two weeks ago.

>

> 9. How long have you had erythema nodosum or PG?

>

> Two weeks.

>

> 10. Do you agree to treat all EN members with respect?

>

> Absolutely!

>

>

> 11.Do you agree to post NO advertisements for any products or

services?

>

> I agree

>

>

> 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search,

> referral from another group or person etc.)

>

> MSN Search

>