Re: Kris the Nurse, where are you?

[Guest guest]

Hi Jan,

If you mean Kris Coenen

********

Kris Sohill's Case History

5/23/05

"sohill54017"

Hello, and thank you for the warm welcome to your board. I was dx

with

EN in 1992, actually it started in the late 80s with a rash on my

lower legs. At first it was a lighter rash, but as time progessed it

turned darker and redder. I noticed that it worsened when I was in

the sun, heated up, or had hormone fluctuation. In 92 I had a baby at the

age of 37, sortly after he was born, I had a horrible flare up, to

the point that I lived for darvocet and prednisone. The pain in my legs

and ankle joints was actually unbearable. The pred knocked it right

out, but seems like my legs and reddness kept progressing, to the

point now that to wear socks, support hose, or ted hose is pure

torture. Now in about 1997 small brownish sores started forming, and

my dr(dermatologist) biopsed them, they came back positve for

sarcoidosis. Since that time, sarc has infected my lungs, but my legs

and ankles are the worst.

In sarcoid it has been found out that vit D and the way it

Metabolizes causes flare ups, as well as stress, illness, and well just the

Stupid disease.

I worked for 25 years as a nurse, but quit in 2000 as I can't stand

To be on my legs. I am now going back to work parttime, but have red hot

patches on both lower legs. Sometimes I elevate them, and they turn

just as red and hot as soon as I stand up. Oh well.....

Thank you in advance for giving me the opportunity to share in some of

your stories

Kris

*****

Kris is still a member getting all our emails.

[the search engines on the Group site makes it easier to track down members]

Love,