Re: Re: Kris the Nurse, where are you?

[Guest guest]

Thank you for tracking me down....I read with great interest all the emails and draw from everyones experiences..I continue on Plaquenil, 2.5/5mg prednisone, and am trying to ween off that altoghter...I read with interest about the bumps others get on fingers and hands, I get lots of sore little bumps about the size of (excuse the expression) a wart. Ouch they hurt, and sometimes go away as soon as they come. I am still working parttime as a nurse. The other nurses watch my legs with interest, seems like day one they look pretty normal, day two red and puffy, day three huge, red and bumpy........that is all I work, three days out of 14.We have a new addition to our family, a 14 month old boy, I don't know if I told you that we do foster care for special needs kids.....we used to have a family of 3 kids, but now have a family of nine. We adopted 6.....and looks like baby K will also join the crowd. He is a delight, delayed due to meth and drugs ingested

inutero....also has plagiocephaly. My children keep my mind off my problems......I do find myself using my pain meds more. I have always avoided them, and bit the bullet so to speak. Now I realize how silly. No sense to be in pain. Thank you for looking me up....have a nice day. Kris the Nurse Strecker wrote: Hi Jan,If you mean Kris Coenen ********Kris Sohill's Case History5/23/05"sohill54017" Hello, and thank you for the warm welcome to your board. I was dxwithEN in 1992, actually it started in the late 80s with a rash on mylower legs. At first it was a lighter rash, but as time progessed itturned darker and redder. I noticed that it worsened when I was inthe sun, heated up, or had hormone fluctuation. In 92 I had a baby at theage of 37, sortly after he was born, I had a horrible flare up, tothe point that I lived for darvocet and prednisone. The pain in my legsand ankle joints was actually unbearable. The pred knocked it

rightout, but seems like my legs and reddness kept progressing, to thepoint now that to wear socks, support hose, or ted hose is puretorture. Now in about 1997 small brownish sores started forming, andmy dr(dermatologist) biopsed them, they came back positve forsarcoidosis. Since that time, sarc has infected my lungs, but my legsand ankles are the worst.In sarcoid it has been found out that vit D and the way itMetabolizes causes flare ups, as well as stress, illness, and well just theStupid

disease.I worked for 25 years as a nurse, but quit in 2000 as I can't standTo be on my legs. I am now going back to work parttime, but have red hotpatches on both lower legs. Sometimes I elevate them, and they turnjust as red and hot as soon as I stand up. Oh well.....Thank you in advance for giving me the opportunity to share in some ofyour storiesKris*****Kris is still a member getting all our emails.[the search engines on the Group site makes it easier to track down members]Love,

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[Guest guest]

Thank you for tracking me down....I read with great interest all the emails and draw from everyones experiences..I continue on Plaquenil, 2.5/5mg prednisone, and am trying to ween off that altoghter...I read with interest about the bumps others get on fingers and hands, I get lots of sore little bumps about the size of (excuse the expression) a wart. Ouch they hurt, and sometimes go away as soon as they come. I am still working parttime as a nurse. The other nurses watch my legs with interest, seems like day one they look pretty normal, day two red and puffy, day three huge, red and bumpy........that is all I work, three days out of 14.We have a new addition to our family, a 14 month old boy, I don't know if I told you that we do foster care for special needs kids.....we used to have a family of 3 kids, but now have a family of nine. We adopted 6.....and looks like baby K will also join the crowd. He is a delight, delayed due to meth and drugs ingested

inutero....also has plagiocephaly. My children keep my mind off my problems......I do find myself using my pain meds more. I have always avoided them, and bit the bullet so to speak. Now I realize how silly. No sense to be in pain. Thank you for looking me up....have a nice day. Kris the Nurse Strecker wrote: Hi Jan,If you mean Kris Coenen ********Kris Sohill's Case History5/23/05"sohill54017" Hello, and thank you for the warm welcome to your board. I was dxwithEN in 1992, actually it started in the late 80s with a rash on mylower legs. At first it was a lighter rash, but as time progessed itturned darker and redder. I noticed that it worsened when I was inthe sun, heated up, or had hormone fluctuation. In 92 I had a baby at theage of 37, sortly after he was born, I had a horrible flare up, tothe point that I lived for darvocet and prednisone. The pain in my legsand ankle joints was actually unbearable. The pred knocked it

rightout, but seems like my legs and reddness kept progressing, to thepoint now that to wear socks, support hose, or ted hose is puretorture. Now in about 1997 small brownish sores started forming, andmy dr(dermatologist) biopsed them, they came back positve forsarcoidosis. Since that time, sarc has infected my lungs, but my legsand ankles are the worst.In sarcoid it has been found out that vit D and the way itMetabolizes causes flare ups, as well as stress, illness, and well just theStupid

disease.I worked for 25 years as a nurse, but quit in 2000 as I can't standTo be on my legs. I am now going back to work parttime, but have red hotpatches on both lower legs. Sometimes I elevate them, and they turnjust as red and hot as soon as I stand up. Oh well.....Thank you in advance for giving me the opportunity to share in some ofyour storiesKris*****Kris is still a member getting all our emails.[the search engines on the Group site makes it easier to track down members]Love,

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Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Thank you for tracking me down....I read with great interest all the emails and draw from everyones experiences..I continue on Plaquenil, 2.5/5mg prednisone, and am trying to ween off that altoghter...I read with interest about the bumps others get on fingers and hands, I get lots of sore little bumps about the size of (excuse the expression) a wart. Ouch they hurt, and sometimes go away as soon as they come. I am still working parttime as a nurse. The other nurses watch my legs with interest, seems like day one they look pretty normal, day two red and puffy, day three huge, red and bumpy........that is all I work, three days out of 14.We have a new addition to our family, a 14 month old boy, I don't know if I told you that we do foster care for special needs kids.....we used to have a family of 3 kids, but now have a family of nine. We adopted 6.....and looks like baby K will also join the crowd. He is a delight, delayed due to meth and drugs ingested

inutero....also has plagiocephaly. My children keep my mind off my problems......I do find myself using my pain meds more. I have always avoided them, and bit the bullet so to speak. Now I realize how silly. No sense to be in pain. Thank you for looking me up....have a nice day. Kris the Nurse Strecker wrote: Hi Jan,If you mean Kris Coenen ********Kris Sohill's Case History5/23/05"sohill54017" Hello, and thank you for the warm welcome to your board. I was dxwithEN in 1992, actually it started in the late 80s with a rash on mylower legs. At first it was a lighter rash, but as time progessed itturned darker and redder. I noticed that it worsened when I was inthe sun, heated up, or had hormone fluctuation. In 92 I had a baby at theage of 37, sortly after he was born, I had a horrible flare up, tothe point that I lived for darvocet and prednisone. The pain in my legsand ankle joints was actually unbearable. The pred knocked it

rightout, but seems like my legs and reddness kept progressing, to thepoint now that to wear socks, support hose, or ted hose is puretorture. Now in about 1997 small brownish sores started forming, andmy dr(dermatologist) biopsed them, they came back positve forsarcoidosis. Since that time, sarc has infected my lungs, but my legsand ankles are the worst.In sarcoid it has been found out that vit D and the way itMetabolizes causes flare ups, as well as stress, illness, and well just theStupid

disease.I worked for 25 years as a nurse, but quit in 2000 as I can't standTo be on my legs. I am now going back to work parttime, but have red hotpatches on both lower legs. Sometimes I elevate them, and they turnjust as red and hot as soon as I stand up. Oh well.....Thank you in advance for giving me the opportunity to share in some ofyour storiesKris*****Kris is still a member getting all our emails.[the search engines on the Group site makes it easier to track down members]Love,

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Hi Kris..I am a nurse as well...they feel my EN is from strep infections..so I left the hospital environment.Well also because the walking around was hurting me very much too.I now work as a visiting nurse and have less frequent bouts .Although here I am off work once again ...with nodosoms all over my body. The nurses are always checking me out too..lol.I find I have to do something other than bedrest or i dwell on the pain too much and get upset..so doing a little work provides distraction for me. Kris Coenen wrote: Thank you for tracking me down....I read with great interest all the emails and draw from everyones experiences..I continue on Plaquenil, 2.5/5mg prednisone, and am trying to ween off that altoghter...I read with interest about the bumps others get on fingers and hands, I get

lots of sore little bumps about the size of (excuse the expression) a wart. Ouch they hurt, and sometimes go away as soon as they come. I am still working parttime as a nurse. The other nurses watch my legs with interest, seems like day one they look pretty normal, day two red and puffy, day three huge, red and bumpy........that is all I work, three days out of 14.We have a new addition to our family, a 14 month old boy, I don't know if I told you that we do foster care for special needs kids.....we used to have a family of 3 kids, but now have a family of nine. We adopted 6.....and looks like baby K will also join the crowd. He is a delight, delayed due to meth and drugs ingested inutero....also has plagiocephaly. My children keep my mind off my problems......I do find myself using my pain meds more. I have always avoided them, and bit the bullet so to speak. Now I realize how silly. No sense to be in pain. Thank you for looking me up....have a nice day. Kris the Nurse Strecker wrote: Hi Jan,If you mean Kris Coenen ********Kris Sohill's Case History5/23/05"sohill54017" Hello, and thank you for the warm welcome to your board. I was dxwithEN in 1992, actually it started in the late 80s with a rash on mylower legs. At first it was a lighter rash, but as time progessed itturned darker and redder. I noticed that it worsened when I was inthe sun, heated up, or had hormone fluctuation. In 92 I had a baby at theage of 37, sortly after he was born, I had a horrible flare up, tothe point that I lived for darvocet and prednisone. The pain in my legsand ankle joints was actually unbearable. The pred knocked it rightout, but seems like my legs and reddness kept progressing, to thepoint now that to wear socks, support hose, or ted hose is puretorture.

Now in about 1997 small brownish sores started forming, andmy dr(dermatologist) biopsed them, they came back positve forsarcoidosis. Since that time, sarc has infected my lungs, but my legsand ankles are the worst.In sarcoid it has been found out that vit D and the way itMetabolizes causes flare ups, as well as stress, illness, and well just theStupid disease.I worked for 25 years as a nurse, but quit in 2000 as I can't standTo be on my legs. I am now going back to work parttime, but

have red hotpatches on both lower legs. Sometimes I elevate them, and they turnjust as red and hot as soon as I stand up. Oh well.....Thank you in advance for giving me the opportunity to share in some ofyour storiesKris*****Kris is still a member getting all our emails.[the search engines on the Group site makes it easier to track down members]Love, Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze.

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[Guest guest]

Hi Kris..I am a nurse as well...they feel my EN is from strep infections..so I left the hospital environment.Well also because the walking around was hurting me very much too.I now work as a visiting nurse and have less frequent bouts .Although here I am off work once again ...with nodosoms all over my body. The nurses are always checking me out too..lol.I find I have to do something other than bedrest or i dwell on the pain too much and get upset..so doing a little work provides distraction for me. Kris Coenen wrote: Thank you for tracking me down....I read with great interest all the emails and draw from everyones experiences..I continue on Plaquenil, 2.5/5mg prednisone, and am trying to ween off that altoghter...I read with interest about the bumps others get on fingers and hands, I get

lots of sore little bumps about the size of (excuse the expression) a wart. Ouch they hurt, and sometimes go away as soon as they come. I am still working parttime as a nurse. The other nurses watch my legs with interest, seems like day one they look pretty normal, day two red and puffy, day three huge, red and bumpy........that is all I work, three days out of 14.We have a new addition to our family, a 14 month old boy, I don't know if I told you that we do foster care for special needs kids.....we used to have a family of 3 kids, but now have a family of nine. We adopted 6.....and looks like baby K will also join the crowd. He is a delight, delayed due to meth and drugs ingested inutero....also has plagiocephaly. My children keep my mind off my problems......I do find myself using my pain meds more. I have always avoided them, and bit the bullet so to speak. Now I realize how silly. No sense to be in pain. Thank you for looking me up....have a nice day. Kris the Nurse Strecker wrote: Hi Jan,If you mean Kris Coenen ********Kris Sohill's Case History5/23/05"sohill54017" Hello, and thank you for the warm welcome to your board. I was dxwithEN in 1992, actually it started in the late 80s with a rash on mylower legs. At first it was a lighter rash, but as time progessed itturned darker and redder. I noticed that it worsened when I was inthe sun, heated up, or had hormone fluctuation. In 92 I had a baby at theage of 37, sortly after he was born, I had a horrible flare up, tothe point that I lived for darvocet and prednisone. The pain in my legsand ankle joints was actually unbearable. The pred knocked it rightout, but seems like my legs and reddness kept progressing, to thepoint now that to wear socks, support hose, or ted hose is puretorture.

Now in about 1997 small brownish sores started forming, andmy dr(dermatologist) biopsed them, they came back positve forsarcoidosis. Since that time, sarc has infected my lungs, but my legsand ankles are the worst.In sarcoid it has been found out that vit D and the way itMetabolizes causes flare ups, as well as stress, illness, and well just theStupid disease.I worked for 25 years as a nurse, but quit in 2000 as I can't standTo be on my legs. I am now going back to work parttime, but

have red hotpatches on both lower legs. Sometimes I elevate them, and they turnjust as red and hot as soon as I stand up. Oh well.....Thank you in advance for giving me the opportunity to share in some ofyour storiesKris*****Kris is still a member getting all our emails.[the search engines on the Group site makes it easier to track down members]Love, Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze.

Make Yahoo! Canada your Homepage Yahoo! Canada Homepage

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i have appointment with my dr on the 16th for the lumps on my legs and the aultarsound that was taken on my veins a week ago ,he will then on the 16th tell me what those lumps are ,they are still big and painful , guess just asking this nurse jan what she thinks about this ,,,thanks kathy Kris Coenen wrote: Thank you for tracking me down....I read with great interest all

the emails and draw from everyones experiences..I continue on Plaquenil, 2.5/5mg prednisone, and am trying to ween off that altoghter...I read with interest about the bumps others get on fingers and hands, I get lots of sore little bumps about the size of (excuse the expression) a wart. Ouch they hurt, and sometimes go away as soon as they come. I am still working parttime as a nurse. The other nurses watch my legs with interest, seems like day one they look pretty normal, day two red and puffy, day three huge, red and bumpy........that is all I work, three days out of 14.We have a new addition to our family, a 14 month old boy, I don't know if I told you that we do foster care for special needs kids.....we used to have a family of 3 kids, but now have a family of nine. We adopted 6.....and looks like baby K will also join the crowd. He is a delight, delayed due to meth and drugs ingested inutero....also has plagiocephaly. My children keep my mind off my problems......I

do find myself using my pain meds more. I have always avoided them, and bit the bullet so to speak. Now I realize how silly. No sense to be in pain. Thank you for looking me up....have a nice day. Kris the Nurse Strecker wrote: Hi Jan,If you mean Kris Coenen ********Kris Sohill's Case History5/23/05"sohill54017" Hello, and thank you for the warm welcome to your board. I was

dxwithEN in 1992, actually it started in the late 80s with a rash on mylower legs. At first it was a lighter rash, but as time progessed itturned darker and redder. I noticed that it worsened when I was inthe sun, heated up, or had hormone fluctuation. In 92 I had a baby at theage of 37, sortly after he was born, I had a horrible flare up, tothe point that I lived for darvocet and prednisone. The pain in my legsand ankle joints was actually unbearable. The pred knocked it rightout, but seems like my legs and reddness kept

progressing, to thepoint now that to wear socks, support hose, or ted hose is puretorture. Now in about 1997 small brownish sores started forming, andmy dr(dermatologist) biopsed them, they came back positve forsarcoidosis. Since that time, sarc has infected my lungs, but my legsand ankles are the worst.In sarcoid it has been found out that vit D and the way itMetabolizes causes flare ups, as well as stress, illness, and well just theStupid disease.I worked for 25 years as a nurse,

but quit in 2000 as I can't standTo be on my legs. I am now going back to work parttime, but have red hotpatches on both lower legs. Sometimes I elevate them, and they turnjust as red and hot as soon as I stand up. Oh well.....Thank you in advance for giving me the opportunity to share in some ofyour storiesKris*****Kris is still a member getting all our emails.[the search engines on the Group site makes it easier to track down members]Love, Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze.

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[Guest guest]

i have appointment with my dr on the 16th for the lumps on my legs and the aultarsound that was taken on my veins a week ago ,he will then on the 16th tell me what those lumps are ,they are still big and painful , guess just asking this nurse jan what she thinks about this ,,,thanks kathy Kris Coenen wrote: Thank you for tracking me down....I read with great interest all

the emails and draw from everyones experiences..I continue on Plaquenil, 2.5/5mg prednisone, and am trying to ween off that altoghter...I read with interest about the bumps others get on fingers and hands, I get lots of sore little bumps about the size of (excuse the expression) a wart. Ouch they hurt, and sometimes go away as soon as they come. I am still working parttime as a nurse. The other nurses watch my legs with interest, seems like day one they look pretty normal, day two red and puffy, day three huge, red and bumpy........that is all I work, three days out of 14.We have a new addition to our family, a 14 month old boy, I don't know if I told you that we do foster care for special needs kids.....we used to have a family of 3 kids, but now have a family of nine. We adopted 6.....and looks like baby K will also join the crowd. He is a delight, delayed due to meth and drugs ingested inutero....also has plagiocephaly. My children keep my mind off my problems......I

do find myself using my pain meds more. I have always avoided them, and bit the bullet so to speak. Now I realize how silly. No sense to be in pain. Thank you for looking me up....have a nice day. Kris the Nurse Strecker wrote: Hi Jan,If you mean Kris Coenen ********Kris Sohill's Case History5/23/05"sohill54017" Hello, and thank you for the warm welcome to your board. I was

dxwithEN in 1992, actually it started in the late 80s with a rash on mylower legs. At first it was a lighter rash, but as time progessed itturned darker and redder. I noticed that it worsened when I was inthe sun, heated up, or had hormone fluctuation. In 92 I had a baby at theage of 37, sortly after he was born, I had a horrible flare up, tothe point that I lived for darvocet and prednisone. The pain in my legsand ankle joints was actually unbearable. The pred knocked it rightout, but seems like my legs and reddness kept

progressing, to thepoint now that to wear socks, support hose, or ted hose is puretorture. Now in about 1997 small brownish sores started forming, andmy dr(dermatologist) biopsed them, they came back positve forsarcoidosis. Since that time, sarc has infected my lungs, but my legsand ankles are the worst.In sarcoid it has been found out that vit D and the way itMetabolizes causes flare ups, as well as stress, illness, and well just theStupid disease.I worked for 25 years as a nurse,

but quit in 2000 as I can't standTo be on my legs. I am now going back to work parttime, but have red hotpatches on both lower legs. Sometimes I elevate them, and they turnjust as red and hot as soon as I stand up. Oh well.....Thank you in advance for giving me the opportunity to share in some ofyour storiesKris*****Kris is still a member getting all our emails.[the search engines on the Group site makes it easier to track down members]Love, Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze.

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[Guest guest]

i have appointment with my dr on the 16th for the lumps on my legs and the aultarsound that was taken on my veins a week ago ,he will then on the 16th tell me what those lumps are ,they are still big and painful , guess just asking this nurse jan what she thinks about this ,,,thanks kathy Kris Coenen wrote: Thank you for tracking me down....I read with great interest all

the emails and draw from everyones experiences..I continue on Plaquenil, 2.5/5mg prednisone, and am trying to ween off that altoghter...I read with interest about the bumps others get on fingers and hands, I get lots of sore little bumps about the size of (excuse the expression) a wart. Ouch they hurt, and sometimes go away as soon as they come. I am still working parttime as a nurse. The other nurses watch my legs with interest, seems like day one they look pretty normal, day two red and puffy, day three huge, red and bumpy........that is all I work, three days out of 14.We have a new addition to our family, a 14 month old boy, I don't know if I told you that we do foster care for special needs kids.....we used to have a family of 3 kids, but now have a family of nine. We adopted 6.....and looks like baby K will also join the crowd. He is a delight, delayed due to meth and drugs ingested inutero....also has plagiocephaly. My children keep my mind off my problems......I

do find myself using my pain meds more. I have always avoided them, and bit the bullet so to speak. Now I realize how silly. No sense to be in pain. Thank you for looking me up....have a nice day. Kris the Nurse Strecker wrote: Hi Jan,If you mean Kris Coenen ********Kris Sohill's Case History5/23/05"sohill54017" Hello, and thank you for the warm welcome to your board. I was

dxwithEN in 1992, actually it started in the late 80s with a rash on mylower legs. At first it was a lighter rash, but as time progessed itturned darker and redder. I noticed that it worsened when I was inthe sun, heated up, or had hormone fluctuation. In 92 I had a baby at theage of 37, sortly after he was born, I had a horrible flare up, tothe point that I lived for darvocet and prednisone. The pain in my legsand ankle joints was actually unbearable. The pred knocked it rightout, but seems like my legs and reddness kept

progressing, to thepoint now that to wear socks, support hose, or ted hose is puretorture. Now in about 1997 small brownish sores started forming, andmy dr(dermatologist) biopsed them, they came back positve forsarcoidosis. Since that time, sarc has infected my lungs, but my legsand ankles are the worst.In sarcoid it has been found out that vit D and the way itMetabolizes causes flare ups, as well as stress, illness, and well just theStupid disease.I worked for 25 years as a nurse,

but quit in 2000 as I can't standTo be on my legs. I am now going back to work parttime, but have red hotpatches on both lower legs. Sometimes I elevate them, and they turnjust as red and hot as soon as I stand up. Oh well.....Thank you in advance for giving me the opportunity to share in some ofyour storiesKris*****Kris is still a member getting all our emails.[the search engines on the Group site makes it easier to track down members]Love, Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze.

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[Guest guest]

gosh, I would hate to even guess on that one....usually and ultarasound of the legs is looking for varicosities, or problems with viens. I have subcutanious sarcoid-which causes my EN...good luck, the lumps are the dumps..(sorry couldn't help myself) Krisvelvet2172 wrote: i have appointment with my dr on the 16th for the lumps on my legs and the aultarsound that was taken on my veins a week ago ,he will then on the 16th tell me what those lumps are ,they are still big and painful , guess just asking this nurse kris what she

thinks about this ,,,thanks kathy Kris Coenen wrote: Thank you for tracking me down....I read with great interest all the emails and draw from everyones experiences..I continue on Plaquenil, 2.5/5mg prednisone, and am trying to ween off that altoghter...I read with interest about the bumps others get on fingers and hands, I get lots of sore little bumps about the size of (excuse the expression) a wart. Ouch they hurt, and sometimes go away as soon as they come. I am still working parttime as a nurse. The other nurses watch my legs with interest, seems like day one they look pretty normal, day two red and puffy, day three huge, red and

bumpy........that is all I work, three days out of 14.We have a new addition to our family, a 14 month old boy, I don't know if I told you that we do foster care for special needs kids.....we used to have a family of 3 kids, but now have a family of nine. We adopted 6.....and looks like baby K will also join the crowd. He is a delight, delayed due to meth and drugs ingested inutero....also has plagiocephaly. My children keep my mind off my problems......I do find myself using my pain meds more. I have always avoided them, and bit the bullet so to speak. Now I realize how silly. No sense to be in pain. Thank you for looking me up....have a nice day. Kris the Nurse Strecker wrote: Hi Jan,If you mean

Kris Coenen ********Kris Sohill's Case History5/23/05"sohill54017" Hello, and thank you for the warm welcome to your board. I was dxwithEN in 1992, actually it started in the late 80s with a rash on mylower legs. At first it was a lighter rash, but as time progessed itturned darker and redder. I noticed that it worsened when I was inthe sun, heated up, or had hormone fluctuation. In 92 I had a baby at

theage of 37, sortly after he was born, I had a horrible flare up, tothe point that I lived for darvocet and prednisone. The pain in my legsand ankle joints was actually unbearable. The pred knocked it rightout, but seems like my legs and reddness kept progressing, to thepoint now that to wear socks, support hose, or ted hose is puretorture. Now in about 1997 small brownish sores started forming, andmy dr(dermatologist) biopsed them, they came back positve forsarcoidosis. Since that time, sarc has infected my lungs, but my legsand ankles are the worst.In sarcoid it has been found out that vit D and the way itMetabolizes causes flare ups, as well as stress, illness, and well just theStupid disease.I worked for 25 years as a nurse, but quit in 2000 as I can't standTo be on my legs. I am now going back to work parttime, but have red hotpatches on both lower legs. Sometimes I elevate them, and they turnjust as red and hot as soon as I stand up. Oh well.....Thank you in advance for giving me

the opportunity to share in some ofyour storiesKris*****Kris is still a member getting all our emails.[the search engines on the Group site makes it easier to track down members]Love, Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze. Yahoo! MailUse Photomail to share photos without annoying attachments.

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[Guest guest]

gosh, I would hate to even guess on that one....usually and ultarasound of the legs is looking for varicosities, or problems with viens. I have subcutanious sarcoid-which causes my EN...good luck, the lumps are the dumps..(sorry couldn't help myself) Krisvelvet2172 wrote: i have appointment with my dr on the 16th for the lumps on my legs and the aultarsound that was taken on my veins a week ago ,he will then on the 16th tell me what those lumps are ,they are still big and painful , guess just asking this nurse kris what she

thinks about this ,,,thanks kathy Kris Coenen wrote: Thank you for tracking me down....I read with great interest all the emails and draw from everyones experiences..I continue on Plaquenil, 2.5/5mg prednisone, and am trying to ween off that altoghter...I read with interest about the bumps others get on fingers and hands, I get lots of sore little bumps about the size of (excuse the expression) a wart. Ouch they hurt, and sometimes go away as soon as they come. I am still working parttime as a nurse. The other nurses watch my legs with interest, seems like day one they look pretty normal, day two red and puffy, day three huge, red and

bumpy........that is all I work, three days out of 14.We have a new addition to our family, a 14 month old boy, I don't know if I told you that we do foster care for special needs kids.....we used to have a family of 3 kids, but now have a family of nine. We adopted 6.....and looks like baby K will also join the crowd. He is a delight, delayed due to meth and drugs ingested inutero....also has plagiocephaly. My children keep my mind off my problems......I do find myself using my pain meds more. I have always avoided them, and bit the bullet so to speak. Now I realize how silly. No sense to be in pain. Thank you for looking me up....have a nice day. Kris the Nurse Strecker wrote: Hi Jan,If you mean

Kris Coenen ********Kris Sohill's Case History5/23/05"sohill54017" Hello, and thank you for the warm welcome to your board. I was dxwithEN in 1992, actually it started in the late 80s with a rash on mylower legs. At first it was a lighter rash, but as time progessed itturned darker and redder. I noticed that it worsened when I was inthe sun, heated up, or had hormone fluctuation. In 92 I had a baby at

theage of 37, sortly after he was born, I had a horrible flare up, tothe point that I lived for darvocet and prednisone. The pain in my legsand ankle joints was actually unbearable. The pred knocked it rightout, but seems like my legs and reddness kept progressing, to thepoint now that to wear socks, support hose, or ted hose is puretorture. Now in about 1997 small brownish sores started forming, andmy dr(dermatologist) biopsed them, they came back positve forsarcoidosis. Since that time, sarc has infected my lungs, but my legsand ankles are the worst.In sarcoid it has been found out that vit D and the way itMetabolizes causes flare ups, as well as stress, illness, and well just theStupid disease.I worked for 25 years as a nurse, but quit in 2000 as I can't standTo be on my legs. I am now going back to work parttime, but have red hotpatches on both lower legs. Sometimes I elevate them, and they turnjust as red and hot as soon as I stand up. Oh well.....Thank you in advance for giving me

the opportunity to share in some ofyour storiesKris*****Kris is still a member getting all our emails.[the search engines on the Group site makes it easier to track down members]Love, Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze. Yahoo! MailUse Photomail to share photos without annoying attachments.

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gosh, I would hate to even guess on that one....usually and ultarasound of the legs is looking for varicosities, or problems with viens. I have subcutanious sarcoid-which causes my EN...good luck, the lumps are the dumps..(sorry couldn't help myself) Krisvelvet2172 wrote: i have appointment with my dr on the 16th for the lumps on my legs and the aultarsound that was taken on my veins a week ago ,he will then on the 16th tell me what those lumps are ,they are still big and painful , guess just asking this nurse kris what she

thinks about this ,,,thanks kathy Kris Coenen wrote: Thank you for tracking me down....I read with great interest all the emails and draw from everyones experiences..I continue on Plaquenil, 2.5/5mg prednisone, and am trying to ween off that altoghter...I read with interest about the bumps others get on fingers and hands, I get lots of sore little bumps about the size of (excuse the expression) a wart. Ouch they hurt, and sometimes go away as soon as they come. I am still working parttime as a nurse. The other nurses watch my legs with interest, seems like day one they look pretty normal, day two red and puffy, day three huge, red and

bumpy........that is all I work, three days out of 14.We have a new addition to our family, a 14 month old boy, I don't know if I told you that we do foster care for special needs kids.....we used to have a family of 3 kids, but now have a family of nine. We adopted 6.....and looks like baby K will also join the crowd. He is a delight, delayed due to meth and drugs ingested inutero....also has plagiocephaly. My children keep my mind off my problems......I do find myself using my pain meds more. I have always avoided them, and bit the bullet so to speak. Now I realize how silly. No sense to be in pain. Thank you for looking me up....have a nice day. Kris the Nurse Strecker wrote: Hi Jan,If you mean

Kris Coenen ********Kris Sohill's Case History5/23/05"sohill54017" Hello, and thank you for the warm welcome to your board. I was dxwithEN in 1992, actually it started in the late 80s with a rash on mylower legs. At first it was a lighter rash, but as time progessed itturned darker and redder. I noticed that it worsened when I was inthe sun, heated up, or had hormone fluctuation. In 92 I had a baby at

theage of 37, sortly after he was born, I had a horrible flare up, tothe point that I lived for darvocet and prednisone. The pain in my legsand ankle joints was actually unbearable. The pred knocked it rightout, but seems like my legs and reddness kept progressing, to thepoint now that to wear socks, support hose, or ted hose is puretorture. Now in about 1997 small brownish sores started forming, andmy dr(dermatologist) biopsed them, they came back positve forsarcoidosis. Since that time, sarc has infected my lungs, but my legsand ankles are the worst.In sarcoid it has been found out that vit D and the way itMetabolizes causes flare ups, as well as stress, illness, and well just theStupid disease.I worked for 25 years as a nurse, but quit in 2000 as I can't standTo be on my legs. I am now going back to work parttime, but have red hotpatches on both lower legs. Sometimes I elevate them, and they turnjust as red and hot as soon as I stand up. Oh well.....Thank you in advance for giving me

the opportunity to share in some ofyour storiesKris*****Kris is still a member getting all our emails.[the search engines on the Group site makes it easier to track down members]Love, Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze. Yahoo! MailUse Photomail to share photos without annoying attachments.

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Bring photos to life! New PhotoMail makes sharing a breeze.