Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 I was diagnosed Hypothyroid when I was 18 (with a TSH of 96.5). By the time I was 21, I had RAI because of autoimmune thyroiditis (not sure which antibodies--Endo never checked for that) & was put on Levothyroxine. After loosing my insurance, I self-medicated for a while & kept up the norm that my doctor began. Unfortunately I never felt good & never lost any weight despite countless diets & exercise routines. I finally switched to a doctor (not an Endo) I could afford--who gave discounts to " pay out-of-pocket " patients. I have been seeing this doctor for 4 years now & I'm 28. When I first started seeing him, he raised my dose of Levothyroxine & for the first time ever, I felt great & started loosing weight (my levels were great, as well). 2 months later, my pharmacy substituted Synthroid for the out-of-stock levothyroixine--same doseage. That month, I gained back the 40 lbs I had just lost. I immediately went back to the doctor & he contacted the pharmacy and added a stipulation " No Substitutes. " It has been close to 4 years now & I have yet to loose any weight or feel good again--but I have " normal " labs. Dieting seems to only help me maintain the 260 lbs I am at now & we have been trying for a baby for 7yrs. Of course, I know I'm symptomatic, so I know trying right now is doing as much good as wishing on a star. A few months ago, I went back for my annual check-up & had him test Free T4 & Free T3. My T4 was in the middle of the normal range, but my T3 was at the very minimum of the normal range. --Doc says everything's normal & that not everything is thyroid related...meaning my being symptomatic--I'm like a walking hypothyroid symptoms check list. He did say, however, that there might be something else wrong with the thyroid issues, but that he doesn't know much about it, so I need to find an Endocrinologist. Can anyone help with that? I don't know if maybe I should try being tested for 's Syndrome (I have those symptoms)? Do any of you even know of a doctor who will test/treat for that? I am just so frustrated and I want to feel good & loose weight. I live in Central Texas (between Waco & Temple) but I travel to Austin to see my regular doctor. Any help on finding a doctor or any suggestions on testing because of possible reasons I am struggling would be greatly appreciated. Thanks so Much! ~Amber Quote Link to comment Share on other sites More sharing options...
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