Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 Hi, I feel lately like an investigative reporter. Some of the wonderful people on this list have emailed me personally at times and thank me for asking the questions that they are uncomfortable asking or talking about topics that they would like to but don't quite want to get into the fray. They call themselves the " lurkers " I call them the silent, but important, majority, and I applaud all of you. I would like all of you to throw your thoughts out here, sometimes you have to be willing to take the heat, but your thoughts are all very important, and your experiences as well. We all grow from the experiences from each of our lives with our kids. We all need to question as a group techniques and theories presented by the variety of professionals currently working in the field. We are still the most valid testing ground I believe. We know instinctively what works, what doesn't and what despite the highest of praise by the authorities is just not worth trying. Don't ever underestimate what conclusions scientific or not you as a parent make about teaching a child with autism. You are now and always will be your child's best teacher, mainly because you are committed, you are dedicated to finding the best ways to reach these elusive kids, and because your quest for knowledge is based on love and deep committement. Before I ramble let me get to the point. I posted questions of HOW the VB programs work for the older school aged kids and especially for the more severe kids, like mine. I only received a few responses, and those were posted to the list so you could all read them. What I am hearing, (and consultants please jump in and comment) is that so far only a few persons are using some VB techniques officially in schools? All are using a combination of techniques from the " traditional " approaches, visual assistance, schedules, tokens etc. I was trying to find out IF there is a protocol that VB consultants use in school to tackle the tough issues, but I did not hear back yet as to this specific protocol. IF we are using " traditional " supports mixed in with a VB program, I'd have to tender the question WHY? I don't know the answer. ONe would have to surmise that there is a valid reason to keep these " traditional " protocols in place, and as parents who are knowledgeable as these parents are, they know they need these to get the best results for their child. There could be many reasons, the child is not verbal enough to be able to be directed solely with verbal prompting, the child is more severe and language is not the primary means of communication? But then I have to ask what the VB approach provides for these kids. Because my concern is IF this philosophy does not factor in the kids who do not improve enough with verbal technique methods to become highly communicative, what do they suggest instead for this particular child? Should I make the assumption then that when we get into the school settings VB is interspersed with traditional supports? But I don't think it is with the blessing of Drs. S/P/Carbone, but those of you who are better informed than I am please correct me if I am wrong. I know Dr. Carbone lectures quite a bit, is he yet lecturing on the older children, the more severe, and the school aged permanently language challenged kids who need a specific set of supports to get them through the day and varied settings? I also know that he does not seem to support the use of techniques by PCDI for instance, (activity schedules, tokens etc), my specific question then is what do they suggest then for these kids who need more ? I am really trying to get to the bottom of my question which is: For those kids who are NOT going to be conversational, not going to mainstream without a lot of support, where does the VB programming go with them? What form of supports do Drs. Sundberg/Partington, et al put into place when the realization is that this child will not use verbal language as the main means of communication, but will need other techniques to support independence and communication. What compliance procedures are utilized when children who are older and more savvy are not interested in any of the reinforcers offered, and are smart enough to know no matter how you disguise it, work is work. For these kids a different means other than pairing is required to reach them and secure compliance. I am having questions and keep hitting a wall as far as these particular questions are concerned. No answers really. I have always tried to ferret out the pros and cons of approaches to ABA and while I support VB in its philosophy, I am beginning to feel more and more that as a parent of a child with more severe spectrum autism that this approach is not enough for us to secure ongoing compliance in a variety of situations, and most especially in a challenging school situation. Those of you who have replied to my post have also indicated that you use a variety of techniques to get the best results, which I am totally in favor of. BUT big question is it an all or nothing approach with VB consultants. If you use the VB approach, then these other techniques not used ? Or do they give their blessing for the continuation of supports that will allow a better level of function based on the child's individual need? While I support VB I also have to wonder if it is wise for us as parents to put our " eggs in this one basket " as an approach, since for my more severe child these approaches alone I don't feel will get us where we need to go. I think a number of us have said on more than one occasion that mixing a variety of techniques and individualizing per child is Key and I wholeheartedly second that notion, but then the question is does the VB philosophy support this as well? To have a VB consultant who also acknowledges that other techniques may be necessary and should be used I would say for me would be ultimately the best approach. So what do you as parents say, I invite your comments, flames and thoughts. I hope you all have lots to say! Cate Quote Link to comment Share on other sites More sharing options...
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