Re: Fw: DS Clinical Trials- From Dr Craig Garner

[Guest guest]

But how do you decide which ones are ok to try to fix/help? Why

is cognition a sacred cow that we are not supposed to try to improve? That is

all I am trying to point out.

Personally, I do not agree with giving kids Prozac until the

clinical trials have been completed..but I am keeping an open mind towards

using them in the future, if the clinical trials show that they are safe to

use.

kathyR

From:

DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of Csvillars@...

Sent: Monday, July 07, 2008 9:52 PM

To: DownSyndromeInfoExchange

Subject: Re: [DownSyndromeInfoExchange] Re: Fw: DS Clinical Trials- From

Dr Craig Garner

There

is a big difference between fixing and helping. I had a friend who

decided her child needed to be fixed and she almost killed him with all her

experimentations with on supplement after another. See, if one doesn't go

with the in crowd look how they jump out and start with the old cliches that if

it's ok to fix one thing why not the other. I don't see where anyone said

it was ok or not ok we just said we feel differently.

Carol

In

a message dated 7/7/2008 9:48:33 P.M. Eastern Daylight Time, Kathy_R@...

writes:

I don’t understand why it is ok to *fix*

a child’s heart defect, treat hypothyroidism,leukemia,, etc, yet we balk at

treatments to improve cognition. What is sacred about cognition that it is *bad*

to do what you can to improve it if possible? Why do therapy at all if we

“accept our kids as they are� Isn’t therapy ‘fixing’ kids? Isn’t school??

If a person’s IQ could be improved a few

points, that might be the difference between them having to live in a group home/assisted

care and being able to live independently.

KathyR

From: DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of Csvillars@...

Sent: Monday, July 07, 2008 9:20 PM

To: DownSyndromeInfoExchange

Subject: Re: [DownSyndromeInfoExchange] Re: Fw: DS Clinical Trials- From

Dr Craig Garner

You most certainly have the right to think what you

please but to say many parents are apathetic regarding their children IS just

an opinion. To me it bothers me when people speak of someone

with DS as having a disease that needs to be cured. Trisha is not a

guinea pig or an experiment and I choose not to treat her as such. I do

not fill her up with the latest craze of supplements or send her to therapy to

the point that she no longer has a life, It's not only about accepting her the

way she is but it's also about learning from her as well because of the way she

is. There is much we could learn from our children if only we took the

time instead of spending most of our time trying to fix them. Did anyone

ever stop to think maybe our children are here because they are here to teach

us the basic of life like, slow down, accept people as they are not as we would

want them to be or even maybe to help us learn how to deal with old age?

Do I want to give Trisha opportunities to learn and to grow, of course I do but

what I do not want to do is change who she is. Trisha is a gift from God

just like her brother was a gift from God why should one try to perfect

something that just maybe is already perfect but because we think if someone is

different they need to be fixed just maybe it's us who needs to be fixed.

It's not our children who need the fixing it's the rest of us because it's the

so called normal people who will abuse them, take advantage of them now please

explain why I would want my child to be normal again? I'd much rather be

spending my time finding supplements for the " normal people " that

will help them to be accepting, kind, compassionate, non-abusive etc.

That's where the work is really needed. With all the high blood

pressure, heart disease, cancers obesity and so forth it seems to me we ought

to work on ourselves before trying to fix someone else. I wonder what

goes on in the heads of our kids and I wonder if they think we can't love them

as they are because we are always trying to fix them and make them what

we deem better but just maybe they are ok and happy with who they are and how

they are. People used to say the children with DS were always happy but

now that isn't true any more so I have to wonder were they always happy or at

least happier before we decided they needed fixing? Have you ever asked

yourself what is it that they are smiling at when we see nothing that we think

would make them smile? Teaching them, making sure they are healthy is a

parent's job just like it is for any of our children regardless of their

abilities but when we as parents get so gungho over it that they no longer have

lives beyond their disabilities all in the name of helping them I have to

wonder why we are so fired up crazy to fix something when we ourselves are

probably more damaged and in need of fixing ourselves. This of course is

only my opinion and please don't say I am apathetic or have my head in the

ground because like everyone else I am entitled to my opinion and to raise my

child as best as I can just like I did for my son who is supposedly

" typical " . I want her to have a good life just like I want for

my son but that doesn't mean a good life can only be obtained if she is

" normal " . We all have a purpose in life just because we don't

always know what that purpose is for each of us doesn't mean that only those

who are " normal " have a purpose. Sometimes I think Trisha's

purpose is to drive me crazy and then I remember oh no that was her brother's

job and then I look at her and know that whatever her purpose is in life she

will actually do better reaching it than I will because she still has the

ability to think with an open mind and not be judgmental or cynical as some of

us have become. She takes her time which drives me crazy but would

probably help lower my blood pressure if I just followed her lead. :-)

Do not ever think I am not passionate about my child

because I am but I just think sometimes when we fix things now we

don't know what we might have broken for the future. It's just like with

the vaccines, what at one time was thought to be a fix is now today

considered a huge mistake and what we do today as a fix people 10-20 or

more years from now might just think how barbaric we are. We don't know

what drugs can do to our bodies as we age and by the time our kids are our

age we won't be there to say I'm sorry if our fixes actually broke something

else. JMHO.

Carol

Trishasmom

In a message dated 7/7/2008 8:32:46 P.M. Eastern Daylight

Time, mscheitlin@... writes:

It seems to

me that many parents with children with DS are rather

apathetic about their child's condition

Gas prices getting you down? Search AOL

Autos for fuel-efficient used cars.

Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.

[Guest guest]

But how do you decide which ones are ok to try to fix/help? Why

is cognition a sacred cow that we are not supposed to try to improve? That is

all I am trying to point out.

Personally, I do not agree with giving kids Prozac until the

clinical trials have been completed..but I am keeping an open mind towards

using them in the future, if the clinical trials show that they are safe to

use.

kathyR

From:

DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of Csvillars@...

Sent: Monday, July 07, 2008 9:52 PM

To: DownSyndromeInfoExchange

Subject: Re: [DownSyndromeInfoExchange] Re: Fw: DS Clinical Trials- From

Dr Craig Garner

There

is a big difference between fixing and helping. I had a friend who

decided her child needed to be fixed and she almost killed him with all her

experimentations with on supplement after another. See, if one doesn't go

with the in crowd look how they jump out and start with the old cliches that if

it's ok to fix one thing why not the other. I don't see where anyone said

it was ok or not ok we just said we feel differently.

Carol

In

a message dated 7/7/2008 9:48:33 P.M. Eastern Daylight Time, Kathy_R@...

writes:

I don’t understand why it is ok to *fix*

a child’s heart defect, treat hypothyroidism,leukemia,, etc, yet we balk at

treatments to improve cognition. What is sacred about cognition that it is *bad*

to do what you can to improve it if possible? Why do therapy at all if we

“accept our kids as they are� Isn’t therapy ‘fixing’ kids? Isn’t school??

If a person’s IQ could be improved a few

points, that might be the difference between them having to live in a group home/assisted

care and being able to live independently.

KathyR

From: DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of Csvillars@...

Sent: Monday, July 07, 2008 9:20 PM

To: DownSyndromeInfoExchange

Subject: Re: [DownSyndromeInfoExchange] Re: Fw: DS Clinical Trials- From

Dr Craig Garner

You most certainly have the right to think what you

please but to say many parents are apathetic regarding their children IS just

an opinion. To me it bothers me when people speak of someone

with DS as having a disease that needs to be cured. Trisha is not a

guinea pig or an experiment and I choose not to treat her as such. I do

not fill her up with the latest craze of supplements or send her to therapy to

the point that she no longer has a life, It's not only about accepting her the

way she is but it's also about learning from her as well because of the way she

is. There is much we could learn from our children if only we took the

time instead of spending most of our time trying to fix them. Did anyone

ever stop to think maybe our children are here because they are here to teach

us the basic of life like, slow down, accept people as they are not as we would

want them to be or even maybe to help us learn how to deal with old age?

Do I want to give Trisha opportunities to learn and to grow, of course I do but

what I do not want to do is change who she is. Trisha is a gift from God

just like her brother was a gift from God why should one try to perfect

something that just maybe is already perfect but because we think if someone is

different they need to be fixed just maybe it's us who needs to be fixed.

It's not our children who need the fixing it's the rest of us because it's the

so called normal people who will abuse them, take advantage of them now please

explain why I would want my child to be normal again? I'd much rather be

spending my time finding supplements for the " normal people " that

will help them to be accepting, kind, compassionate, non-abusive etc.

That's where the work is really needed. With all the high blood

pressure, heart disease, cancers obesity and so forth it seems to me we ought

to work on ourselves before trying to fix someone else. I wonder what

goes on in the heads of our kids and I wonder if they think we can't love them

as they are because we are always trying to fix them and make them what

we deem better but just maybe they are ok and happy with who they are and how

they are. People used to say the children with DS were always happy but

now that isn't true any more so I have to wonder were they always happy or at

least happier before we decided they needed fixing? Have you ever asked

yourself what is it that they are smiling at when we see nothing that we think

would make them smile? Teaching them, making sure they are healthy is a

parent's job just like it is for any of our children regardless of their

abilities but when we as parents get so gungho over it that they no longer have

lives beyond their disabilities all in the name of helping them I have to

wonder why we are so fired up crazy to fix something when we ourselves are

probably more damaged and in need of fixing ourselves. This of course is

only my opinion and please don't say I am apathetic or have my head in the

ground because like everyone else I am entitled to my opinion and to raise my

child as best as I can just like I did for my son who is supposedly

" typical " . I want her to have a good life just like I want for

my son but that doesn't mean a good life can only be obtained if she is

" normal " . We all have a purpose in life just because we don't

always know what that purpose is for each of us doesn't mean that only those

who are " normal " have a purpose. Sometimes I think Trisha's

purpose is to drive me crazy and then I remember oh no that was her brother's

job and then I look at her and know that whatever her purpose is in life she

will actually do better reaching it than I will because she still has the

ability to think with an open mind and not be judgmental or cynical as some of

us have become. She takes her time which drives me crazy but would

probably help lower my blood pressure if I just followed her lead. :-)

Do not ever think I am not passionate about my child

because I am but I just think sometimes when we fix things now we

don't know what we might have broken for the future. It's just like with

the vaccines, what at one time was thought to be a fix is now today

considered a huge mistake and what we do today as a fix people 10-20 or

more years from now might just think how barbaric we are. We don't know

what drugs can do to our bodies as we age and by the time our kids are our

age we won't be there to say I'm sorry if our fixes actually broke something

else. JMHO.

Carol

Trishasmom

In a message dated 7/7/2008 8:32:46 P.M. Eastern Daylight

Time, mscheitlin@... writes:

It seems to

me that many parents with children with DS are rather

apathetic about their child's condition

Gas prices getting you down? Search AOL

Autos for fuel-efficient used cars.

Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.

[Guest guest]

-

Whatever drug is given for cognition would probably have to be

taken for the rest of the person’s life,anyway,, right? Or am I just not

understanding it?

From:

DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of

Sent: Monday, July 07, 2008 9:49 PM

To: DownSyndromeInfoExchange

Subject: Re: [DownSyndromeInfoExchange] Re: Fw: DS Clinical Trials- From

Dr Craig Garner

Marsha,

I do research medicines. As a RN, I am constantly getting

information about new drugs coming out.

I do have a problem with most medicines especially Prozac.

Prozac is a psych med that can become addictive to which is is near

impossible for that individual taking it to go off of it. I know this because

of my sister in law. She has been on it for years and can not stop taking it.

Im and all for new research that improves my son's life but

am just skeptical about them.

Carol,

I certainly understand your feelings - but I still maintain that if a

safe and effective treatment can be provided for these children, then

it ought to be done. Perhaps not for your daughter, but for those who

would choose such a treatment. I also understand your concern about

the drugs, I think that we're all concerned - but we need to move

ahead. It seems to me that the general public with normal children

are more sympathetic and enthusiastic about change for these children

than many parents of children with DS. I'm sorry, I just don't

understand what motivates them. I've always looked for answers and

I'm not always the most balanced in that aspect, but I just don't

understand parents who won't even try Ginkgo Biloba. They're not

motivated to even do that much or research it.

Also, remember that people with DS are susceptable to AD at an early age.

Marsha

>

> You most certainly have the right to think what you please but to

say many

> parents are apathetic regarding their children IS just an opinion.

To me it

> bothers me when people speak of someone with DS as having a disease

that needs

> to be cured. Trisha is not a guinea pig or an experiment and I

choose not

> to treat her as such. I do not fill her up with the latest craze of

> supplements or send her to therapy to the point that she no longer

has a life, It's

> not only about accepting her the way she is but it's also about

learning from

> her as well because of the way she is. There is much we could

learn from our

> children if only we took the time instead of spending most of our

time trying

> to fix them. Did anyone ever stop to think maybe our children are

here

> because they are here to teach us the basic of life like, slow

down, accept

> people as they are not as we would want them to be or even maybe to

help us learn

> how to deal with old age? Do I want to give Trisha opportunities

to learn

> and to grow, of course I do but what I do not want to do is change

who she is.

> Trisha is a gift from God just like her brother was a gift from God

why

> should one try to perfect something that just maybe is already

perfect but

> because we think if someone is different they need to be fixed just

maybe it's us

> who needs to be fixed. It's not our children who need the fixing

it's the

> rest of us because it's the so called normal people who will abuse

them, take

> advantage of them now please explain why I would want my child to

be normal

> again? I'd much rather be spending my time finding supplements for

the " normal

> people " that will help them to be accepting, kind, compassionate,

non-abusive

> etc. That's where the work is really needed. With all the high

blood

> pressure, heart disease, cancers obesity and so forth it seems to

me we ought to

> work on ourselves before trying to fix someone else. I wonder what

goes on

> in the heads of our kids and I wonder if they think we can't love

them as they

> are because we are always trying to fix them and make them what we

deem

> better but just maybe they are ok and happy with who they are and

how they are.

> People used to say the children with DS were always happy but now

that isn't

> true any more so I have to wonder were they always happy or at

least happier

> before we decided they needed fixing? Have you ever asked yourself

what is

> it that they are smiling at when we see nothing that we think would

make them

> smile? Teaching them, making sure they are healthy is a parent's

job just

> like it is for any of our children regardless of their abilities

but when we

> as parents get so gungho over it that they no longer have lives

beyond their

> disabilities all in the name of helping them I have to wonder why

we are so

> fired up crazy to fix something when we ourselves are probably more

damaged and

> in need of fixing ourselves. This of course is only my opinion and

please

> don't say I am apathetic or have my head in the ground because like

everyone

> else I am entitled to my opinion and to raise my child as best as I

can just

> like I did for my son who is supposedly " typical " . I want her to

have a good

> life just like I want for my son but that doesn't mean a good life

can only

> be obtained if she is " normal " . We all have a purpose in life

just

because we

> don't always know what that purpose is for each of us doesn't mean

that only

> those who are " normal " have a purpose. Sometimes I think

Trisha's

purpose

> is to drive me crazy and then I remember oh no that was her

brother's job and

> then I look at her and know that whatever her purpose is in life

she will

> actually do better reaching it than I will because she still has

the ability to

> think with an open mind and not be judgmental or cynical as some of

us have

> become. She takes her time which drives me crazy but would

probably help

> lower my blood pressure if I just followed her lead. :-)

>

> Do not ever think I am not passionate about my child because I am

but I just

> think sometimes when we fix things now we don't know what we might

have

> broken for the future. It's just like with the vaccines, what at

one time was

> thought to be a fix is now today considered a huge mistake and what

we do today

> as a fix people 10-20 or more years from now might just think how

barbaric

> we are. We don't know what drugs can do to our bodies as we age

and by the

> time our kids are our age we won't be there to say I'm sorry if our

fixes

> actually broke something else. JMHO.

>

> Carol

> Trishasmom

>

>

> In a message dated 7/7/2008 8:32:46 P.M. Eastern Daylight Time,

> mscheitlin@... writes:

>

> It seems to me that many parents with children with DS are rather

> apathetic about their child's condition

>

>

>

>

> **************Gas prices getting you down? Search AOL Autos for

> fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

>

[Guest guest]

-

Whatever drug is given for cognition would probably have to be

taken for the rest of the person’s life,anyway,, right? Or am I just not

understanding it?

From:

DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of

Sent: Monday, July 07, 2008 9:49 PM

To: DownSyndromeInfoExchange

Subject: Re: [DownSyndromeInfoExchange] Re: Fw: DS Clinical Trials- From

Dr Craig Garner

Marsha,

I do research medicines. As a RN, I am constantly getting

information about new drugs coming out.

I do have a problem with most medicines especially Prozac.

Prozac is a psych med that can become addictive to which is is near

impossible for that individual taking it to go off of it. I know this because

of my sister in law. She has been on it for years and can not stop taking it.

Im and all for new research that improves my son's life but

am just skeptical about them.

Carol,

I certainly understand your feelings - but I still maintain that if a

safe and effective treatment can be provided for these children, then

it ought to be done. Perhaps not for your daughter, but for those who

would choose such a treatment. I also understand your concern about

the drugs, I think that we're all concerned - but we need to move

ahead. It seems to me that the general public with normal children

are more sympathetic and enthusiastic about change for these children

than many parents of children with DS. I'm sorry, I just don't

understand what motivates them. I've always looked for answers and

I'm not always the most balanced in that aspect, but I just don't

understand parents who won't even try Ginkgo Biloba. They're not

motivated to even do that much or research it.

Also, remember that people with DS are susceptable to AD at an early age.

Marsha

>

> You most certainly have the right to think what you please but to

say many

> parents are apathetic regarding their children IS just an opinion.

To me it

> bothers me when people speak of someone with DS as having a disease

that needs

> to be cured. Trisha is not a guinea pig or an experiment and I

choose not

> to treat her as such. I do not fill her up with the latest craze of

> supplements or send her to therapy to the point that she no longer

has a life, It's

> not only about accepting her the way she is but it's also about

learning from

> her as well because of the way she is. There is much we could

learn from our

> children if only we took the time instead of spending most of our

time trying

> to fix them. Did anyone ever stop to think maybe our children are

here

> because they are here to teach us the basic of life like, slow

down, accept

> people as they are not as we would want them to be or even maybe to

help us learn

> how to deal with old age? Do I want to give Trisha opportunities

to learn

> and to grow, of course I do but what I do not want to do is change

who she is.

> Trisha is a gift from God just like her brother was a gift from God

why

> should one try to perfect something that just maybe is already

perfect but

> because we think if someone is different they need to be fixed just

maybe it's us

> who needs to be fixed. It's not our children who need the fixing

it's the

> rest of us because it's the so called normal people who will abuse

them, take

> advantage of them now please explain why I would want my child to

be normal

> again? I'd much rather be spending my time finding supplements for

the " normal

> people " that will help them to be accepting, kind, compassionate,

non-abusive

> etc. That's where the work is really needed. With all the high

blood

> pressure, heart disease, cancers obesity and so forth it seems to

me we ought to

> work on ourselves before trying to fix someone else. I wonder what

goes on

> in the heads of our kids and I wonder if they think we can't love

them as they

> are because we are always trying to fix them and make them what we

deem

> better but just maybe they are ok and happy with who they are and

how they are.

> People used to say the children with DS were always happy but now

that isn't

> true any more so I have to wonder were they always happy or at

least happier

> before we decided they needed fixing? Have you ever asked yourself

what is

> it that they are smiling at when we see nothing that we think would

make them

> smile? Teaching them, making sure they are healthy is a parent's

job just

> like it is for any of our children regardless of their abilities

but when we

> as parents get so gungho over it that they no longer have lives

beyond their

> disabilities all in the name of helping them I have to wonder why

we are so

> fired up crazy to fix something when we ourselves are probably more

damaged and

> in need of fixing ourselves. This of course is only my opinion and

please

> don't say I am apathetic or have my head in the ground because like

everyone

> else I am entitled to my opinion and to raise my child as best as I

can just

> like I did for my son who is supposedly " typical " . I want her to

have a good

> life just like I want for my son but that doesn't mean a good life

can only

> be obtained if she is " normal " . We all have a purpose in life

just

because we

> don't always know what that purpose is for each of us doesn't mean

that only

> those who are " normal " have a purpose. Sometimes I think

Trisha's

purpose

> is to drive me crazy and then I remember oh no that was her

brother's job and

> then I look at her and know that whatever her purpose is in life

she will

> actually do better reaching it than I will because she still has

the ability to

> think with an open mind and not be judgmental or cynical as some of

us have

> become. She takes her time which drives me crazy but would

probably help

> lower my blood pressure if I just followed her lead. :-)

>

> Do not ever think I am not passionate about my child because I am

but I just

> think sometimes when we fix things now we don't know what we might

have

> broken for the future. It's just like with the vaccines, what at

one time was

> thought to be a fix is now today considered a huge mistake and what

we do today

> as a fix people 10-20 or more years from now might just think how

barbaric

> we are. We don't know what drugs can do to our bodies as we age

and by the

> time our kids are our age we won't be there to say I'm sorry if our

fixes

> actually broke something else. JMHO.

>

> Carol

> Trishasmom

>

>

> In a message dated 7/7/2008 8:32:46 P.M. Eastern Daylight Time,

> mscheitlin@... writes:

>

> It seems to me that many parents with children with DS are rather

> apathetic about their child's condition

>

>

>

>

> **************Gas prices getting you down? Search AOL Autos for

> fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

>

[Guest guest]

I like a good debate, and of course I agree that we all need to

be polite. If I crossed that line, it certainly wasn’t intentional, but I apologize

if anyone thought I was rude in my remarks.

KathyR

From:

DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of iammamapie

Sent: Tuesday, July 08, 2008 7:46 AM

To: DownSyndromeInfoExchange

Subject: Re: [DownSyndromeInfoExchange] Re: Fw: DS Clinical Trials- From

Dr Craig Garner

I agree,

That is what I was trying to say Last week.

Disagree but do it in a respectful way. I would think the list

owners would know that

and ask that everyone try and respect what others have to say and

disagree in a nice way with out lashing out at each other.

Carol

From: Caroline Skalsky

Subject: Re: [DownSyndromeInfoExchange] Re: Fw: DS Clinical Trials- From Dr

Craig Garner

To: DownSyndromeInfoExchange

Date: Monday, July 7, 2008, 11:18 PM

Hey everyone, I think it is getting a little mean in this latest

exchange.... ..sorry I know I am not the moderator, but I just read all

these emails at once and yikes (!!) I could feel the tension.

Of course we are all doing what *we* think is best for our children.

Some of us may give supplements others not, but at a minimum we need to

have respect for their opinions. I do not think any of us plans to run

out and get the latest *craze* drug to give to our children without

doing research. I do not think you will find one parent on this list who

would say to another from the list that they don't care about their

child. We all care or we would not be on this list in the first place

seeking advice, support, help and encouragement for our children.

What we really need to do is be supportive of one another whatever path

we choose.

" nough said....

Caroline

> .

>

>

[Guest guest]

I do also and I apologize for the use of the word " apathy " . Many

parents that I know have been very informed with fundraising for the

Buddy Walk and social groups. Many are much more strong in advocacy

when it comes to IEP's, etc. My personal interest and focus has

always been on how I can help my child, not on how I can convince the

school system and others to value him. For years, I have researched

this or that trying to find ways to address the cognitive issues. I

don't understand the lack of interest in doing so. Different strokes

for different folks. Some of these parents have strengths that I

don't have. It seems that parents with DS can be very suspicious of

each other and scared to discuss what we are trying with our kids. I

often feel more freedom in discussing these things with others than

with parents of children with DS. It almost seems " taboo " to discuss

it, swept under the rug. It's probably just a lack of interest..

In my experience, parents of children with Autism are much more

aggressive in seeking treatment. One gentleman told me that he spent

$15,000 last summer for his son and that he would do anything for him.

Maybe I have just ran into the right people, but I have encountered

this type of attitude various times. Again, this is my opinion.

Marsha

>

>

> Subject: Re: [DownSyndromeInfoExchange] Re: Fw: DS Clinical Trials-

From Dr

> Craig Garner

> To: DownSyndromeInfoExchange

> Date: Monday, July 7, 2008, 11:18 PM

>

> Hey everyone, I think it is getting a little mean in this latest

> exchange.... ..sorry I know I am not the moderator, but I just read all

> these emails at once and yikes (!!) I could feel the tension.

>

> Of course we are all doing what *we* think is best for our children.

> Some of us may give supplements others not, but at a minimum we need to

> have respect for their opinions. I do not think any of us plans to run

> out and get the latest *craze* drug to give to our children without

> doing research. I do not think you will find one parent on this list

who

> would say to another from the list that they don't care about their

> child. We all care or we would not be on this list in the first place

> seeking advice, support, help and encouragement for our children.

>

> What we really need to do is be supportive of one another whatever path

> we choose.

>

> " nough said....

>

> Caroline

>

> > .

> >

> >

>