Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Dear Sharon, On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added the information to our " Member Medical History " Files on the Group site and posted it below. You now have Full EN Group privileges. You are receiving ALL EN Group emails, and you can go to the EN Group site whenever you like by going to : http://health.groups.yahoo.com/group/erythema_nodosum_Group/ and logging on with your Yahoo ID and secret password. You do not have to have the group emails delivered to be a member here. I was 21 when I came down with EN for the first time too. Today I am 58. I was misdiagneosed for the first 5 yrs., and there were no drugs for EN then, even if they knew what I had. I have found that bedrest works well for me, but we are all different. I have found that if I don't allow the remission to become " solid " it can flare up again. Many of us have used prednisone, and we are happy to talk about it and other treatments. Above all, do not worry. Stress can make EN worse for many of us. And once the major tests are done to rule out serious illness, you can rest easy in your mind at least. When your daughter feels better she may wish to join the group too. We are a big happy and supportive family here. Welcome! Love, ********* Sharon Blackman's Daughter Case History 9/27/05 " Sharon Blackburn " sharon101896yahoo (DOT) 1. Your name and age:Sharon39....daughter with en 21 2. Your location South Carolina 3. Your email address: sharon101896@... 4. Your Yahoo ID sharon101896 5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. I have a 21 year old daughter who has recently been diagnosed with this..As a parent i'm very worried because i know nothing about this disease 6. List any other health conditions. No other health problems 7. State what medications or treatments you take for EN, and their effectiveness: she has been givin steriod sots..it started to clear up and came right back..Right now she has 2 pain meds..laratab and vicadin...and she started on prednisone tonight 8. When did you first get erythema nodosum or PG?diagnosed 1 month ago 9. How long have you had erythema nodosum or PG? Notices the lumps on the legs about 3 months ago 10. Do you agree to treat all EN members with respect?I will treat everyone with respect 11.Do you agree to post NO advertisements for any products or services? Yes i agree 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) Found this group through yahoo search Quote Link to comment Share on other sites More sharing options...
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