Welcome, New Member Jan Kaye/Case History

[Guest guest]

Dear Jan,

On behalf of all our members, welcome to our Erythema Nodosum Group!

Thanks for sending in your Questionnaire. I have added the information

to our " Member Medical History " Files on the Group site and posted it

below.

You now have Full EN Group privileges.

You are receiving ALL EN Group emails, and you can also go to the EN

Group site whenever you like:

http://health.groups.yahoo.com/group/erythema_nodosum_Group/

and logging on with your Yahoo ID and secret password.

You do not have to have the group emails delivered to be a member here.

I am very familiar with LDN (LowDoseNaltrexone) and I belong to 2 LDN

Yahoo Groups. I am aware of the work being done and the good results

many are having with it, but you are the first I know of who is taking

it for EN. Most who take it are using it for MS or Crohn's. In America

it is often hard to get a dr. to prescribe it, and then a hassle to

find a compounding pharmacy to fill the script. Many in the USA use

Skips Pharmacy, which I think is in Florida. I'm very interested to

see if LDN helps you. If it does, we may have a cheap and effective

new use of an old drug to add to our arsonal. Pleae keep us posted on

your progress with it. Good luck, and Welcome to our Group!

Love,

*******

Jan Kaye's Case History

11/3/05

1. Your name and age: Jan Kaye 46

2. Your location Edmonton

3. Your email address:

jkfsoccer18@...

4. Your Yahoo ID jkfsoccer18

5. Describe your erythema nodosum/PG symptoms or, if you do not have

EN or PG, please explain why you wish to join this group.

I first was diagnosed when I was 39 or 40 (1999). I was in a very

stressfull job and marriage at the time. I resigned from my job and

was on bedrest for about a month (with children I was really only

resting when they were in school) The lesions were evident in both

legs most on the lower half. After about 3 – 4 months they cleared

up. In 2004 I started getting 3 – 4 lumps regularly and have

continued since that time. Sometimes I will get a bit of a sore

throat, cough and sniffles but nothing to extreme. The Dr. put me on

natural cortisone in the spring of 2005 with no changes. He has just

prescribed LDN (LowDoseNaltrexone). During this last year and a half

I have been going through separation and divorce and went back to

school so stress level was pretty high. Stress has decreased in the

last month so I am hoping to see some improvement in the lesions and

with the new prescription. I wear pressure stockings as well because

in 1991 when my son was born I had DVT in my left leg (which is where

I get 95% of my lesions) from the groin to the ankle was filled with

clots. I wonder if this has any link to EN? My left leg swells and

gets tired easily so the stockings help to ease both of those

symptoms. I also feel when I have lesions the stockings help to

support them so they are not has painful.

6. List any other health conditions.

None

7. State what medications or treatments you take for EN, and their

effectiveness: See above

8. When did you first get erythema nodosum or PG? 1999

9. How long have you had erythema nodosum or PG? 6 yrs

10. Do you agree to treat all EN members with respect? Yes

11.Do you agree to post NO advertisements for any products or

services? Yes

12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search,

referral from another group or person etc.) Google