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Hello everyone just thought I would let you all know how I am Just

about got over my operation although I am having terrible pain frome

the scar tissue, I had another flare up before christmas and am now

just starting to get another one the lumps seem to be coming out on the

back of my legs more, I seem to have indentations on the front of my

legs and feet where I usually get them I was wondering after having so

many flare ups could it be that the fatty cells wear away that would

explain the indentations, also I am swelling up so much I am putting on

nearly half a stone with all the swelling I seem to be drinking water

constantly and not weeing much I think all this fluid I am drinking is

going down to my bottom half my ankles have been that swollen that I

cannot bend my ankles my knees the same and also I am retaining water

around my abdomen, feeling so tired all the time and not wanting even

to get out of bed and that is not like me at all, had blood tests done

before christmas as because my en first flared up after me having

rhumatic fever my doctor was convinced that it was strep that was

causing it but that came back negative the only thing he found again

was that my B12 was down and also my folic acid he was convinced I was

a veritarian as he said they get it due to not eating meat and poor

diet but I assured him I am not a vegitarian. Anyway enough of me going

on hope you are all well and everyone had a good christmas, I have not

been on because firstly the operation which hit me for six then a

friend died a week before christmas,christmas went well then on new

years eve my uncle finally lost his battle to cancer so I have not had

much time but I will be keeping in touch now,god bless everyone and

keep well Love

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Hi ,

I'm so sorry to hear that you lost both your friend and Uncle over the

holidays. Let's hope 2006 will be Healthier and Happier for you and

all of us!

Interesting about the loss of fat you also experience from EN. I think

it is caused by repeated trauma of flare ups. I read this also happens

withe diabetics who repeatedly inject insulin and those who need to

take steriod shots.

I wonder if after the fat is gone will the EN also stop? Will there be

nothing left to make lumps? I am wondering if this is why I am

enjoying a longer than usual remission or if the triclosan is the

reason. Either way is good because it could mean that eventually EN

will " burn out " or that the triclosan will arrest some cases.

Take care, and I do hope you start to feel much better soon!

Love,

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Hi ,

I'm so sorry to hear that you lost both your friend and Uncle over the

holidays. Let's hope 2006 will be Healthier and Happier for you and

all of us!

Interesting about the loss of fat you also experience from EN. I think

it is caused by repeated trauma of flare ups. I read this also happens

withe diabetics who repeatedly inject insulin and those who need to

take steriod shots.

I wonder if after the fat is gone will the EN also stop? Will there be

nothing left to make lumps? I am wondering if this is why I am

enjoying a longer than usual remission or if the triclosan is the

reason. Either way is good because it could mean that eventually EN

will " burn out " or that the triclosan will arrest some cases.

Take care, and I do hope you start to feel much better soon!

Love,

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