Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 I think that why we all want a cure for our children Its not out there right now. Those that say they have cured I dont believe, Just as with any neurological disorder it can be made better, it can be controlled with medication but not cured. It doesnt mean that if there is a therapy to help our child that we dont do it, We all want the best for our children but to expect that our children will be cured overnight is only setting ourselves up for disappointment. I love my daughter for who she is-autism and all, if I could cure her I would only take away the parts of autism that make her life difficult but the way she views things and how she expresses them it the autism that makes her think that way and I wouldnt change her for the world. Its what makes her unique and special, I think that those on the spectrum like Sondra and I know for sure Kassiene like who they are and being a little differantk, because why their autism can cause much problems it is also what makes them who they are and I am grateful that I have the priviledge to know them. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 I think that why we all want a cure for our children Its not out there right now. Those that say they have cured I dont believe, Just as with any neurological disorder it can be made better, it can be controlled with medication but not cured. It doesnt mean that if there is a therapy to help our child that we dont do it, We all want the best for our children but to expect that our children will be cured overnight is only setting ourselves up for disappointment. I love my daughter for who she is-autism and all, if I could cure her I would only take away the parts of autism that make her life difficult but the way she views things and how she expresses them it the autism that makes her think that way and I wouldnt change her for the world. Its what makes her unique and special, I think that those on the spectrum like Sondra and I know for sure Kassiene like who they are and being a little differantk, because why their autism can cause much problems it is also what makes them who they are and I am grateful that I have the priviledge to know them. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 Pennie, thanks for your comment! My husband & I feel the same way about Sky. Of course like all parents if there is anything we could do for her to make her life a little bit easier we would do it. I hate to see her struggle trying to communicate, it just breaks my heart. I agree with what our Ped. Neuro. had to say, but I keep seeing so many comments saying they are cured or almost cured so I wondered if I was missing something. Wendie > I think that why we all want a cure for our children Its not out there right > now. Those that say they have cured I dont believe, Just as with any > neurological disorder it can be made better, it can be controlled with > medication but not cured. It doesnt mean that if there is a therapy to help > our child that we dont do it, We all want the best for our children but to > expect that our children will be cured overnight is only setting ourselves up > for disappointment. I love my daughter for who she is-autism and all, if I > could cure her I would only take away the parts of autism that make her life > difficult but the way she views things and how she expresses them it the > autism that makes her think that way and I wouldnt change her for the world. > Its what makes her unique and special, I think that those on the spectrum > like Sondra and I know for sure Kassiene like who they are and being a little > differantk, because why their autism can cause much problems it is also what > makes them who they are and I am grateful that I have the priviledge to know > them. > > Pennie > Abby's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 Pennie, thanks for your comment! My husband & I feel the same way about Sky. Of course like all parents if there is anything we could do for her to make her life a little bit easier we would do it. I hate to see her struggle trying to communicate, it just breaks my heart. I agree with what our Ped. Neuro. had to say, but I keep seeing so many comments saying they are cured or almost cured so I wondered if I was missing something. Wendie > I think that why we all want a cure for our children Its not out there right > now. Those that say they have cured I dont believe, Just as with any > neurological disorder it can be made better, it can be controlled with > medication but not cured. It doesnt mean that if there is a therapy to help > our child that we dont do it, We all want the best for our children but to > expect that our children will be cured overnight is only setting ourselves up > for disappointment. I love my daughter for who she is-autism and all, if I > could cure her I would only take away the parts of autism that make her life > difficult but the way she views things and how she expresses them it the > autism that makes her think that way and I wouldnt change her for the world. > Its what makes her unique and special, I think that those on the spectrum > like Sondra and I know for sure Kassiene like who they are and being a little > differantk, because why their autism can cause much problems it is also what > makes them who they are and I am grateful that I have the priviledge to know > them. > > Pennie > Abby's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Wendie I don't believe there is a " cure " for our girls, but do believe with time and therapy and in some cases medications our girls can learn how to live and thrive in the world. We love Skylar just the way she is. Autism makes Skylar the person she is. I agree with Pennie if I could take autism away it would only be the parts that make her life difficult. Tracey wendiehorack wrote: > Pennie, thanks for your comment! My husband & I feel the same way > about Sky. Of course like all parents if there is anything we could > do for her to make her life a little bit easier we would do it. I > hate to see her struggle trying to communicate, it just breaks my > heart. I agree with what our Ped. Neuro. had to say, but I keep > seeing so many comments saying they are cured or almost cured so I > wondered if I was missing something. > Wendie > > > I think that why we all want a cure for our children Its not out > there right > > now. Those that say they have cured I dont believe, Just as with > any > > neurological disorder it can be made better, it can be controlled > with > > medication but not cured. It doesnt mean that if there is a therapy > to help > > our child that we dont do it, We all want the best for our children > but to > > expect that our children will be cured overnight is only setting > ourselves up > > for disappointment. I love my daughter for who she is-autism and > all, if I > > could cure her I would only take away the parts of autism that make > her life > > difficult but the way she views things and how she expresses them > it the > > autism that makes her think that way and I wouldnt change her for > the world. > > Its what makes her unique and special, I think that those on the > spectrum > > like Sondra and I know for sure Kassiene like who they are and > being a little > > differantk, because why their autism can cause much problems it is > also what > > makes them who they are and I am grateful that I have the > priviledge to know > > them. > > > > Pennie > > Abby's Mom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Wendie I don't believe there is a " cure " for our girls, but do believe with time and therapy and in some cases medications our girls can learn how to live and thrive in the world. We love Skylar just the way she is. Autism makes Skylar the person she is. I agree with Pennie if I could take autism away it would only be the parts that make her life difficult. Tracey wendiehorack wrote: > Pennie, thanks for your comment! My husband & I feel the same way > about Sky. Of course like all parents if there is anything we could > do for her to make her life a little bit easier we would do it. I > hate to see her struggle trying to communicate, it just breaks my > heart. I agree with what our Ped. Neuro. had to say, but I keep > seeing so many comments saying they are cured or almost cured so I > wondered if I was missing something. > Wendie > > > I think that why we all want a cure for our children Its not out > there right > > now. Those that say they have cured I dont believe, Just as with > any > > neurological disorder it can be made better, it can be controlled > with > > medication but not cured. It doesnt mean that if there is a therapy > to help > > our child that we dont do it, We all want the best for our children > but to > > expect that our children will be cured overnight is only setting > ourselves up > > for disappointment. I love my daughter for who she is-autism and > all, if I > > could cure her I would only take away the parts of autism that make > her life > > difficult but the way she views things and how she expresses them > it the > > autism that makes her think that way and I wouldnt change her for > the world. > > Its what makes her unique and special, I think that those on the > spectrum > > like Sondra and I know for sure Kassiene like who they are and > being a little > > differantk, because why their autism can cause much problems it is > also what > > makes them who they are and I am grateful that I have the > priviledge to know > > them. > > > > Pennie > > Abby's Mom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Wendie I don't believe there is a " cure " for our girls, but do believe with time and therapy and in some cases medications our girls can learn how to live and thrive in the world. We love Skylar just the way she is. Autism makes Skylar the person she is. I agree with Pennie if I could take autism away it would only be the parts that make her life difficult. Tracey wendiehorack wrote: > Pennie, thanks for your comment! My husband & I feel the same way > about Sky. Of course like all parents if there is anything we could > do for her to make her life a little bit easier we would do it. I > hate to see her struggle trying to communicate, it just breaks my > heart. I agree with what our Ped. Neuro. had to say, but I keep > seeing so many comments saying they are cured or almost cured so I > wondered if I was missing something. > Wendie > > > I think that why we all want a cure for our children Its not out > there right > > now. Those that say they have cured I dont believe, Just as with > any > > neurological disorder it can be made better, it can be controlled > with > > medication but not cured. It doesnt mean that if there is a therapy > to help > > our child that we dont do it, We all want the best for our children > but to > > expect that our children will be cured overnight is only setting > ourselves up > > for disappointment. I love my daughter for who she is-autism and > all, if I > > could cure her I would only take away the parts of autism that make > her life > > difficult but the way she views things and how she expresses them > it the > > autism that makes her think that way and I wouldnt change her for > the world. > > Its what makes her unique and special, I think that those on the > spectrum > > like Sondra and I know for sure Kassiene like who they are and > being a little > > differantk, because why their autism can cause much problems it is > also what > > makes them who they are and I am grateful that I have the > priviledge to know > > them. > > > > Pennie > > Abby's Mom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Hi Christ Welcome to the list. Tracey (Mom to Skylar 10 1/2 and autistic) Perdz wrote: > Never say never-many children -many-have had their diagnosis lifted or > are almost totally " neurotypical " . Have you heard the story of Dan > Marino's son-he was severely autistic in third grade-he is now 13 and > you can not tell he ever had a problem. > > BTW, I am new to the list and have enjoyed everyone's comments! > > P. > Pittsburgh > Mommy to Eva, 4, HFA > Re: Cure? > > > Pennie, thanks for your comment! My husband & I feel the same way > about Sky. Of course like all parents if there is anything we could > do for her to make her life a little bit easier we would do it. I > hate to see her struggle trying to communicate, it just breaks my > heart. I agree with what our Ped. Neuro. had to say, but I keep > seeing so many comments saying they are cured or almost cured so I > wondered if I was missing something. > Wendie > > > I think that why we all want a cure for our children Its not out > there right > > now. Those that say they have cured I dont believe, Just as with > any > > neurological disorder it can be made better, it can be controlled > with > > medication but not cured. It doesnt mean that if there is a therapy > to help > > our child that we dont do it, We all want the best for our children > but to > > expect that our children will be cured overnight is only setting > ourselves up > > for disappointment. I love my daughter for who she is-autism and > all, if I > > could cure her I would only take away the parts of autism that make > her life > > difficult but the way she views things and how she expresses them > it the > > autism that makes her think that way and I wouldnt change her for > the world. > > Its what makes her unique and special, I think that those on the > spectrum > > like Sondra and I know for sure Kassiene like who they are and > being a little > > differantk, because why their autism can cause much problems it is > also what > > makes them who they are and I am grateful that I have the > priviledge to know > > them. > > > > Pennie > > Abby's Mom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Hi Christ Welcome to the list. Tracey (Mom to Skylar 10 1/2 and autistic) Perdz wrote: > Never say never-many children -many-have had their diagnosis lifted or > are almost totally " neurotypical " . Have you heard the story of Dan > Marino's son-he was severely autistic in third grade-he is now 13 and > you can not tell he ever had a problem. > > BTW, I am new to the list and have enjoyed everyone's comments! > > P. > Pittsburgh > Mommy to Eva, 4, HFA > Re: Cure? > > > Pennie, thanks for your comment! My husband & I feel the same way > about Sky. Of course like all parents if there is anything we could > do for her to make her life a little bit easier we would do it. I > hate to see her struggle trying to communicate, it just breaks my > heart. I agree with what our Ped. Neuro. had to say, but I keep > seeing so many comments saying they are cured or almost cured so I > wondered if I was missing something. > Wendie > > > I think that why we all want a cure for our children Its not out > there right > > now. Those that say they have cured I dont believe, Just as with > any > > neurological disorder it can be made better, it can be controlled > with > > medication but not cured. It doesnt mean that if there is a therapy > to help > > our child that we dont do it, We all want the best for our children > but to > > expect that our children will be cured overnight is only setting > ourselves up > > for disappointment. I love my daughter for who she is-autism and > all, if I > > could cure her I would only take away the parts of autism that make > her life > > difficult but the way she views things and how she expresses them > it the > > autism that makes her think that way and I wouldnt change her for > the world. > > Its what makes her unique and special, I think that those on the > spectrum > > like Sondra and I know for sure Kassiene like who they are and > being a little > > differantk, because why their autism can cause much problems it is > also what > > makes them who they are and I am grateful that I have the > priviledge to know > > them. > > > > Pennie > > Abby's Mom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Hi Christ Welcome to the list. Tracey (Mom to Skylar 10 1/2 and autistic) Perdz wrote: > Never say never-many children -many-have had their diagnosis lifted or > are almost totally " neurotypical " . Have you heard the story of Dan > Marino's son-he was severely autistic in third grade-he is now 13 and > you can not tell he ever had a problem. > > BTW, I am new to the list and have enjoyed everyone's comments! > > P. > Pittsburgh > Mommy to Eva, 4, HFA > Re: Cure? > > > Pennie, thanks for your comment! My husband & I feel the same way > about Sky. Of course like all parents if there is anything we could > do for her to make her life a little bit easier we would do it. I > hate to see her struggle trying to communicate, it just breaks my > heart. I agree with what our Ped. Neuro. had to say, but I keep > seeing so many comments saying they are cured or almost cured so I > wondered if I was missing something. > Wendie > > > I think that why we all want a cure for our children Its not out > there right > > now. Those that say they have cured I dont believe, Just as with > any > > neurological disorder it can be made better, it can be controlled > with > > medication but not cured. It doesnt mean that if there is a therapy > to help > > our child that we dont do it, We all want the best for our children > but to > > expect that our children will be cured overnight is only setting > ourselves up > > for disappointment. I love my daughter for who she is-autism and > all, if I > > could cure her I would only take away the parts of autism that make > her life > > difficult but the way she views things and how she expresses them > it the > > autism that makes her think that way and I wouldnt change her for > the world. > > Its what makes her unique and special, I think that those on the > spectrum > > like Sondra and I know for sure Kassiene like who they are and > being a little > > differantk, because why their autism can cause much problems it is > also what > > makes them who they are and I am grateful that I have the > priviledge to know > > them. > > > > Pennie > > Abby's Mom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Kassiane Yelbis wrote: Kassiane, I dont mean to offend anyone by anything I say. I am just saying that if everyone could be cured of anything that they have then I think it would be wonderful, that includes cancer, diabetes, blindness, epilepy, and many many more. I am not saying that you or anyone is defective because I strongly believe that God doesnt make any junk. He made us perfectly in our own ways. I just wish there were a cure for autism. But I will always love and cherish my daughter for who she is, not what she can or cannot do. Who says NTs are perfect, noone is, we have all fallen short of His glory. Sorry if you were offended, it wasnt meant to hurt anyone. >> You know what the difference between cancer and the other things you listed (except blindness maybe) and autism? They make people sick. Autism doesnt. Someone with cancer has the exact same personality they have before they got sick. Eplilepsy doesnt effect personality either. Nor does diabetes. Autism DOES. Autism runs to the core of my being, and the being of all on the spectrum. You can't remove it without removing who the person is. Since you admit that NTs are not perfect, I am honestly wondering what the big rush to make us into them is then. In MY experience, NTs, especially as children, range from tolerable to insufferable little brats who think they are better than everyone who is different. I do not want to be part of a culture that thinks its OK to lock a classmate into a locker because she is different. I do not want to be part of a culture that demands conformity to the group. I do not want to be part of a culture that thinks its members are neutral and normative just because they are the majority. I want to be me, as I am. Struggles and all. I want my culture of acceptance and zero subtext. I want myu culture of " I see you are upset and overwhelmed. Would a squish help? Is there anything else I can do? " I want my culture of people who, diverse as we are, share the common thread of this neurology called autism that puts us out of the mainstreatm. And I want future auties and aspies to have that option too. We arent perfect either, but it is who we are, and God intended me to be who I am RIGHT NOW. Kassiane _______________________________________________________________ Get the FREE email that has everyone talking at http://www.mail2world.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Kassiane Yelbis wrote: Kassiane, I dont mean to offend anyone by anything I say. I am just saying that if everyone could be cured of anything that they have then I think it would be wonderful, that includes cancer, diabetes, blindness, epilepy, and many many more. I am not saying that you or anyone is defective because I strongly believe that God doesnt make any junk. He made us perfectly in our own ways. I just wish there were a cure for autism. But I will always love and cherish my daughter for who she is, not what she can or cannot do. Who says NTs are perfect, noone is, we have all fallen short of His glory. Sorry if you were offended, it wasnt meant to hurt anyone. >> You know what the difference between cancer and the other things you listed (except blindness maybe) and autism? They make people sick. Autism doesnt. Someone with cancer has the exact same personality they have before they got sick. Eplilepsy doesnt effect personality either. Nor does diabetes. Autism DOES. Autism runs to the core of my being, and the being of all on the spectrum. You can't remove it without removing who the person is. Since you admit that NTs are not perfect, I am honestly wondering what the big rush to make us into them is then. In MY experience, NTs, especially as children, range from tolerable to insufferable little brats who think they are better than everyone who is different. I do not want to be part of a culture that thinks its OK to lock a classmate into a locker because she is different. I do not want to be part of a culture that demands conformity to the group. I do not want to be part of a culture that thinks its members are neutral and normative just because they are the majority. I want to be me, as I am. Struggles and all. I want my culture of acceptance and zero subtext. I want myu culture of " I see you are upset and overwhelmed. Would a squish help? Is there anything else I can do? " I want my culture of people who, diverse as we are, share the common thread of this neurology called autism that puts us out of the mainstreatm. And I want future auties and aspies to have that option too. We arent perfect either, but it is who we are, and God intended me to be who I am RIGHT NOW. Kassiane _______________________________________________________________ Get the FREE email that has everyone talking at http://www.mail2world.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Kass, thank-you for that reply about NT's!!! that made my day, you are so wonderful!>> Im glad there's at least one person it didnt upset =) Kassiane .. _______________________________________________________________ Get the FREE email that has everyone talking at http://www.mail2world.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 thanks Tracey! Re: Cure? > > > Pennie, thanks for your comment! My husband & I feel the same way > about Sky. Of course like all parents if there is anything we could > do for her to make her life a little bit easier we would do it. I > hate to see her struggle trying to communicate, it just breaks my > heart. I agree with what our Ped. Neuro. had to say, but I keep > seeing so many comments saying they are cured or almost cured so I > wondered if I was missing something. > Wendie > > > I think that why we all want a cure for our children Its not out > there right > > now. Those that say they have cured I dont believe, Just as with > any > > neurological disorder it can be made better, it can be controlled > with > > medication but not cured. It doesnt mean that if there is a therapy > to help > > our child that we dont do it, We all want the best for our children > but to > > expect that our children will be cured overnight is only setting > ourselves up > > for disappointment. I love my daughter for who she is-autism and > all, if I > > could cure her I would only take away the parts of autism that make > her life > > difficult but the way she views things and how she expresses them > it the > > autism that makes her think that way and I wouldnt change her for > the world. > > Its what makes her unique and special, I think that those on the > spectrum > > like Sondra and I know for sure Kassiene like who they are and > being a little > > differantk, because why their autism can cause much problems it is > also what > > makes them who they are and I am grateful that I have the > priviledge to know > > them. > > > > Pennie > > Abby's Mom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Kassianne, Make it two! I never get upset by your point of view and in fact, welcome it wether I agree or not. I think I've probably mentioned before that prior to having Olivia the only things I really knew about autism came from Rain Man (which you mentioned hating having people tell you that K-mart sucks). Reading posts from you and Sondra help me see what I might expect from Olivia in the future. I hope she has your wit. However, while she's still only 2, if there's a cure, I'd take it. Not so much the way of thinking or anything but I'd love her stomach issues to be resolved so we could teach her how to play (she's always in so much pain), I'd love for her tactile defensiveness to go away so she could enjoy touching things...that sort of stuff. No matter what, cure or not, I will love this child with all I have. I'm her mother and that's what mother's are supposed to do. I only want what's best for her, being autistic isn't the problem, it's the crap that comes with it that sucks. Not all NT kids are rude, by the way. My oldest daughter is the most compassionate kid I've ever met. I think bullies are bred by bullies. Keep those thoughts coming, I love it. Rhonda Olivia's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Make it two! I never get upset by your point of view and in fact, welcome it wether I agree or not. >> Glad to hear it. Some people on lists in general are of the " when I want your opinion I will give it to you! " philosophy,. < only things I really knew about autism came from Rain Man (which you mentioned hating having people tell you that K-mart sucks). Reading posts from you and Sondra help me see what I might expect from Olivia in the future. I hope she has your wit. However, while she's still only 2, if there's a cure, I'd take it. Not so much the way of thinking or anything but I'd love her stomach issues to be resolved so we could teach her how to play (she's always in so much pain), I'd love for her tactile defensiveness to go away so she could enjoy touching things...that sort of stuff.>> I want her stomach issues to be resolved too. IMO those are not autism. They go along with autism alot of the time, but even those of us without those are autistic (I have almost NO stomach issues, unless one counts food inolerances, but Im still spectrum, I have an aspie friend with even fewer stomach and immune issues than me, etc). I'm all in favor of making people more comfortable in their skin. I am opposed to changing their skin. <<No matter what, cure or not, I will love this child with all I have. I'm her mother and that's what mother's are supposed to do. I only want what's best for her, being autistic isn't the problem, it's the crap that comes with it that sucks. Not all NT kids are rude, by the way. My oldest daughter is the most compassionate kid I've ever met. I think bullies are bred by bullies.>> Thats exactly it. What comes WITH autism is the problem. Health issues. Sensory oversensitivities (vestibular undersensitivity is alot of fun though, so if I'd have to give that up to get rid of hyperacusis Id keep the sensitive ears). Attitude problems. But not autism. I'm glad you raised such a jewel of an older daughter. The world needs more compassionate kiddos. I know LOTS of kids, and unfortunatly once they hit about age 9 they get rude around here =( Kassiane _______________________________________________________________ Get the FREE email that has everyone talking at http://www.mail2world.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 make it 3 Pennie abbys mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 whew, that's harsh. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Someone with cancer most likely will never have the same personality as they did before. Ask someone with cancer if they are the same. Epilepsy very much affects personality. Ask an adult who can never drive to a friend's house, has to take meds with side affects, etc. Diabetes definitely affects personality. Sometimes I can't think straight or even remember my kids' names because my sugar is out of whack. Just because someone has a physical sickness does not mean it does not affect their personalities and social lives. Just as with autism, the physical symptoms cause the personality to form differently. Some with cancer say they would not give up their cancer experience because of how it changed them; yet they would overwhelmingly say to find a cure. I met a woman last Christmas whose 4 yr old son drowned in a lake nearby their house because he wandered off. Ask that mom if his autism hurt him. Was he cherished, wonderful, precious, perfect? Yes. Was his autism a problem? Ask the rescuers who drug the lake bottom or his family, who could not keep him safe, no matter what kind of locks they used. Debi Someone with cancer has the exact same personality they > have before they got sick. Eplilepsy doesnt effect personality either. > Nor does diabetes. Autism DOES. removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Someone with cancer most likely will never have the same personality as they did before. Ask someone with cancer if they are the same. Epilepsy very much affects personality. Ask an adult who can never drive to a friend's house, has to take meds with side affects, etc. Diabetes definitely affects personality. Sometimes I can't think straight or even remember my kids' names because my sugar is out of whack. Just because someone has a physical sickness does not mean it does not affect their personalities and social lives. Just as with autism, the physical symptoms cause the personality to form differently. Some with cancer say they would not give up their cancer experience because of how it changed them; yet they would overwhelmingly say to find a cure. I met a woman last Christmas whose 4 yr old son drowned in a lake nearby their house because he wandered off. Ask that mom if his autism hurt him. Was he cherished, wonderful, precious, perfect? Yes. Was his autism a problem? Ask the rescuers who drug the lake bottom or his family, who could not keep him safe, no matter what kind of locks they used. Debi Someone with cancer has the exact same personality they > have before they got sick. Eplilepsy doesnt effect personality either. > Nor does diabetes. Autism DOES. removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Someone with cancer most likely will never have the same personality as they did before. Ask someone with cancer if they are the same. Epilepsy very much affects personality. Ask an adult who can never drive to a friend's house, has to take meds with side affects, etc. Diabetes definitely affects personality. Sometimes I can't think straight or even remember my kids' names because my sugar is out of whack. Just because someone has a physical sickness does not mean it does not affect their personalities and social lives. Just as with autism, the physical symptoms cause the personality to form differently. Some with cancer say they would not give up their cancer experience because of how it changed them; yet they would overwhelmingly say to find a cure. I met a woman last Christmas whose 4 yr old son drowned in a lake nearby their house because he wandered off. Ask that mom if his autism hurt him. Was he cherished, wonderful, precious, perfect? Yes. Was his autism a problem? Ask the rescuers who drug the lake bottom or his family, who could not keep him safe, no matter what kind of locks they used. Debi Someone with cancer has the exact same personality they > have before they got sick. Eplilepsy doesnt effect personality either. > Nor does diabetes. Autism DOES. removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Someone with cancer most likely will never have the same personality as they did before. Ask someone with cancer if they are the same.>> Take away the cancer and they are still the same THEM they were before. Epilepsy very much affects personality. Ask an adult who can never drive to a friend's house, has to take meds with side affects, etc.>> Thats not personality, that is what one can DO. < straight or even remember my kids' names because my sugar is out of whack.>> As soon as your sugar is fixed you are again YOU. Take away the diabetes and you are still YOU. < does not affect their personalities and social lives. Just as with autism, the physical symptoms cause the personality to form differently. Some with cancer say they would not give up their cancer experience because of how it changed them; yet they would overwhelmingly say to find a cure.>> Talk to autistic adults. See how many of us want a cure. THe answer is startlingly close to NONE. People donmt die from autism. They die from what people do to them because of autism, but the neurology itself is not terminal. < nearby their house because he wandered off. Ask that mom if his autism hurt him. Was he cherished, wonderful, precious, perfect? Yes. Was his autism a problem? Ask the rescuers who drug the lake bottom or his family, who could not keep him safe, no matter what kind of locks they used.>> Not all autism is running away. That is tragic, it really is, and I am so sorry that family lost their little boy. I know families who are losing their children in other ways-losing who they really are, or their time to enjoy with them, by forcing them into molds of typicality. Kassiane _______________________________________________________________ Get the FREE email that has everyone talking at http://www.mail2world.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 > > > Someone with cancer most likely will never have the same personality > as they did before. Ask someone with cancer if they are the same.>> > > Take away the cancer and they are still the same THEM they were before. Take away the cause of autism and they will still be them. It is the same thing, just different diseases. A > > Epilepsy very much affects personality. Ask an adult who can never > drive to a friend's house, has to take meds with side affects, etc.>> > > Thats not personality, that is what one can DO. What one can do affects and shapes their personality. Me being able/unable to do certain things is part of what shapes me and makes me the person I am today. > < > straight or even remember my kids' names because my sugar is out of > whack.>> > > As soon as your sugar is fixed you are again YOU. Take away the diabetes > and you are still YOU. As soon as the symptoms of autism are fixed, they are still them. I cannot get my sugar consistantly fixed, just as autistics cannot get their biological issues fixed, same thing, different symptoms and disease names. > < > does not affect their personalities and social lives. Just as with > autism, the physical symptoms cause the personality to form > differently. Some with cancer say they would not give up their cancer > experience because of how it changed them; yet they would > overwhelmingly say to find a cure.>> > > Talk to autistic adults. See how many of us want a cure. THe answer is > startlingly close to NONE. People donmt die from autism. They die from > what people do to them because of autism, but the neurology itself is > not terminal. > > > nearby their house because he wandered off. Ask that mom if his > autism hurt him. Was he cherished, wonderful, precious, perfect? Yes. > Was his autism a problem? Ask the rescuers who drug the lake bottom > or his family, who could not keep him safe, no matter what kind of > locks they used.>> > > Not all autism is running away. That is tragic, it really is, and I am > so sorry that family lost their little boy. I know families who are > losing their children in other ways-losing who they really are, or their > time to enjoy with them, by forcing them into molds of typicality. > > Kassiane I know NT people who lose their kids because of attempting to force them into something they are not. We are talking about curing the biological problems. > Get the FREE email that has everyone talking at > http://www.mail2world.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 A cure for autism would be the same as murder. with a cure, i would not be me. i think anything that alleviates the discomforts of autism, eg gf/cf to take away effects of inappropriate diet is fine. i do not like the fact that many autistic children have so many therapies that they do not have time for childhood. i think that is cruelty. I do far better in life now i do not pretend to be normal. i have a very good job and have a promotion coming up, so it is not harming me at all to be well known as a person with Asperger Syndrome. I am insulted by the desire to eliminate the traits that are bringing me success in life. i got this promotion because i am honest. i do not join factions and cliques in the workplace, so i will be an impartial administrator. i perseverate so that i work until a job is done, and done well. that is because my job is one of my special interests. these qualities are valued by my boss that my dress sense is overlooked, and she has got over the fact that i do not exhibit collegiality. cure intolerance, not autism Re: Cure? This is just my opinion on a cure for autism. I do not believe that a cure is developed as of yet. I am hoping and praying that there comes a day that one will be found. I do know that therapy is a good start as the child (or adult) learns to function better in society. My Skylar has had years of therapy and yes I believe it has made alot of good changes in her but according to her neurologist it isnt something you grow out of , it is always there but as I said before, they learn to function better. I am seeing alot of improvement with therapies and medication. I am very proud of my daughter even if she is autistic because it helps me to appreciate her every accomplishment. I don't know if she will ever function as well as some do but every little bit makes a big difference. And if I can do anything in my power to help find a cure I will do it. I would not want another person to be affected by this disorder. But this is only my opinion. (Sky) wendiehorack wrote:I just wanted to get some feedback from you guys. Our Ped. Neuro. stated to us that there is not a cure for Autism so we shouldn't expect to " cure " Sky. He said there's a possibility that she could improve enough to graduate from her therapies, but it would be something she would always have to work at. So I'm wondering how all of you feel about that statement. Do you agree or disagree? The reason I'm asking is I see a lot people on the internet writing about their child being cured or almost cured. Wendie __________________________________________________________________ Try AOL and get 1045 hours FREE for 45 days! http://free.aol.com/tryaolfree/index.adp?375380 Get AOL Instant Messenger 5.1 for FREE! Download Now! http://aim.aol.com/aimnew/Aim/register.adp?promo=380455 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 You didn't upset me!!! Cheryl S Re: Cure? Kass, thank-you for that reply about NT's!!! that made my day, you are so wonderful!>> Im glad there's at least one person it didnt upset =) Kassiane .. _______________________________________________________________ Get the FREE email that has everyone talking at http://www.mail2world.com Quote Link to comment Share on other sites More sharing options...
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